Discussions By Condition: I cannot get a diagnosis.

Strange Symptoms and No Resolution

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: SomeoneNeedingHelp
  • February 24, 2009
  • 03:02 AM

For the last few weeks I've been having several strange issues. I first noticed problems with my memory. My memory hasn't been really sharp for sometime (College) but it's been descent. However, it went downhill fast over the period of about a week. Another strange symptom I had was 1 instance of vertigo while driving in a heavy snow storm (it lasted for about 8 - 10 minutes and then got better). It was my first and only instance of vertigo.

The other strange issues are that my reasoning seems to have been greatly diminished (focusing for long periods of time and holding complex ideas in my head are very hard if not impossible). I have had some clumsiness and I had loss of dexterity in my hands. Also, I had issues with everything being at a slight angle for a few minutes and then returning to normal (happened about 5 - 8 times).

About 3 weeks ago, I went to see my primary care physician and told him my issues. He drew some blood and asked me to go in for an MRI. The following day I was feeling the worst I've felt the whole time and I had major concern that it might be something immediately life threatening, so I went to the emergency room. The did a blood test for things that they thought would need to be taken care of immediately and nothing else as my primary care physician was doing a more comprehensive work up. They also took me in for a CAT scan with dye to check to see if I had anything they needed to preform surgery for right away. They found nothing in my blood workup or CAT scan.

Three days later I went in for an MRI. They found no issues. The next Monday I got my extensive blood results back from my primary care physician. Everything was normal except one thing they dismissed because of my age, weight and size and that was "Elevated Creatinine with a normal GFR indicates that ceratinine is elevated because of patient's muscle mass as opposed to decreased kidney function".

I also went to see a Neurologist after all my tests. He did the same tests as my primary care physician (squeeze his finger, push up and push down for my legs and arms and had me walk a line). He said the only things he could think of were a lack of sleep (I average 5 - 7 hours a night during the week and 10 on the weekends) and sleep apnea. He said unless it gets bad again that we shouldn't look at sleep apnea. He said if I were in my 40's then it could be a form a dementia.

In the last 2 weeks I've felt alright but most prominently I have trouble concentrating and problems reasoning (as described above). More sleep does generally make me feel better but my reasoning is still diminished.

Vitals:
Male
28 years old
240 lb

Hopefully I wasn't too wordy there but I wanted to give a through explanation of my issues.

Does anyone have any ideas what it could be or where I should direct my primary care physician to look?

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11 Replies:

  • How truly odd. All of your symptoms sound strangely familiar. This happened to me 14 years ago. Slowly progressed to losing chunks of time - just couldn't remember. Then I got a severe headache that wouldn't go away for days. Suddenly my arms and legs went numb, I couldn't focus on anything happening or being said. I was a really stupid college kid with a severe doctor phobia, so instead of going to the ER, I waited it out & then went to the physician on campus. The symptoms went away, but left me in a fog. Just taking a shower exhausted me from the concentration involved in shampooing my hair. I couldn't go down steps anymore while looking at the stairs, or I'd trip.When I finally went to my family doc back home, he felt I had had a mini-stroke. But I never got the MRI he suggested.I have never returned to my former mental "sharpness". I still can't look at the stairs when I go down them, or I feel like I will fall.Please post results if ever you find them!
    Anonymous 42789 Replies
    • February 24, 2009
    • 05:43 AM
    • 0
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  • For the last few weeks I've been having several strange issues. I first noticed problems with my memory. My memory hasn't been really sharp for sometime (College) but it's been descent. However, it went downhill fast over the period of about a week. Another strange symptom I had was 1 instance of vertigo while driving in a heavy snow storm (it lasted for about 8 - 10 minutes and then got better). It was my first and only instance of vertigo. The other strange issues are that my reasoning seems to have been greatly diminished (focusing for long periods of time and holding complex ideas in my head are very hard if not impossible). I have had some clumsiness and I had loss of dexterity in my hands. Also, I had issues with everything being at a slight angle for a few minutes and then returning to normal (happened about 5 - 8 times). About 3 weeks ago, I went to see my primary care physician and told him my issues. He drew some blood and asked me to go in for an MRI. The following day I was feeling the worst I've felt the whole time and I had major concern that it might be something immediately life threatening, so I went to the emergency room. The did a blood test for things that they thought would need to be taken care of immediately and nothing else as my primary care physician was doing a more comprehensive work up. They also took me in for a CAT scan with dye to check to see if I had anything they needed to preform surgery for right away. They found nothing in my blood workup or CAT scan.Three days later I went in for an MRI. They found no issues. The next Monday I got my extensive blood results back from my primary care physician. Everything was normal except one thing they dismissed because of my age, weight and size and that was "Elevated Creatinine with a normal GFR indicates that ceratinine is elevated because of patient's muscle mass as opposed to decreased kidney function".I also went to see a Neurologist after all my tests. He did the same tests as my primary care physician (squeeze his finger, push up and push down for my legs and arms and had me walk a line). He said the only things he could think of were a lack of sleep (I average 5 - 7 hours a night during the week and 10 on the weekends) and sleep apnea. He said unless it gets bad again that we shouldn't look at sleep apnea. He said if I were in my 40's then it could be a form a dementia. In the last 2 weeks I've felt alright but most prominently I have trouble concentrating and problems reasoning (as described above). More sleep does generally make me feel better but my reasoning is still diminished. Vitals:Male28 years old240 lbHopefully I wasn't too wordy there but I wanted to give a through explanation of my issues.Does anyone have any ideas what it could be or where I should direct my primary care physician to look?Wow, it is bittersweet to find people that seem to have my issues. I too have had two CT scans and and MRI (all without contrast) and no one can seem to tell me what is wrong. It is important to note that I was in a minor auto accident 6 weeks before my symptoms started. My list of symptoms (the "spells" I refer to seem to be similar to absence seizures):Mental:Dizziness/vertigo/"spacey" "drugged" feelingSpeech/pronunciation issuesDyslexia even with numbers or in speechMemory loss/mind going blank, even mid-sentencePhysical:Random skin hypersensitivity (occasionally)Sore achy joints/pelvis Random sharp, stabbing pains in different parts of the bodyAnt bite pain, bugs crawling feelingsArmpit sweat smells like cat urineSkin problems (daily, fluctuate in severity)Unexplained weight gain, unable to loseHeadaches/migraines dailyShortness of breath sometimes feeling like deathExtreme fatigue/insomniaBuzzing, vibrating, pulsing sensationsEyes crossingAbnormal glucose fluctuationsHair lossSuperficial numbness (sometimes even in scalp)Muscle fatigue, muscles giving out (ankles, knees)Muscle spasms, 'charlie horse' feeling in muscles (particularly back muscles)Muscle twitching (sometimes in face)Head twitching when nervousInstantaneous extreme urgency to urinate/loss of bladder controlMoving shadows and flashing lights in peripheral visionArm/elbow acheSwollen anklesDuring "spells":Intense dizziness/spacey, "drugged" feelingTension builds in neck and upper backPressure in head/headache (usually front half of head)Feeling of electrical shocks causing twitching (typically in upper body)Muscle spasmsExtreme itching (causes twitching)Slurred speechLoss of time (seconds)Left arm aches (sometimes)HeadacheExtreme fatigue afterward
    Anonymous 42789 Replies
    • August 10, 2009
    • 08:22 PM
    • 0
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  • Have you all been checked for Lyme? Ticks also are carrying Bartonella, Babesia (sp??) and other co-infections.A lot, actualy MANY symptoms that you describe are the same that I had. I have been diagnosed with Lyme and Bartonella.If you havent been checked out for Lyme and the co-infections I would look into it.
    Anonymous 42789 Replies
    • August 11, 2009
    • 11:21 AM
    • 0
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  • Isn't the human body a strange and wonderful thing? Unfortunately, SomeoneNeedingHelp, your symptoms could be any number of things, so you are probably going to need lots of patience while your doctors rule out one thing after another. Lucky for you, if both the CAT scan and MRI are normal, chances are good that nothing you have is life threatening. Don't know if that eases your mind any. I don't know what blood tests you had run, but I'm assuming your doctor ruled out the usual infection (with a CBC/Sed Rate) or problems with blood sugar. I would also have him/her check your blood pressure, not just sitting but lying and standing (orthostatic hypotension can cause vertigo).In the meantime, there are a few things you can do which might help and won't harm you. One of them is to keep a food diary of everything you eat, the weather that day, and when you feel bad. What will that tell you? Well, if you have a mild blood sugar problem (which may not show on the standard test, you'd need a full fasting blood sugar series to check), you'll have problems thinking clearly some time after you eat sweet/refined foods. You may have a mild food allergy or you may be having abnormal migraines (and these could be triggered by certain foods or weather patterns).Check to see if you have symptoms when the weather is a certain way, or after rapid temperature/climate changes. Also, when you feel bad, check to see what you have eaten 30 minutes previously, 4 hours previously, or the day before. If you see a consistent problem, trying removing that food item and seeing if your symptoms improve.You can regain mental acuity by practicing your mind! Daily puzzles, new experiences, and staying physically active are all good brain things. Engage ALL your senses, smell, touch, thought, taste, etc.It sounds like the vertigo was a one-time issue. If vertigo or dizziness continues, try some home-Epley maneuvers. (These are a series of movements that help to restore your inner ear's sense of balance.) A website with some examples is http://www.dizziness-and-balance.com/disorders/bppv/bppv.htmlI hope this gives you some ideas to get you started. Just have patience and work with your doctor through this frustrating ordeal. Stay proactive in your health care and good luck to you!Jade
    Anonymous 42789 Replies
    • August 11, 2009
    • 04:06 PM
    • 0
    Flag this Response
  • i cured my memory/ concentration issues by doing a "candida-cleanse" diet.it also solved weird rashes and stregthened my immune system ridiculously...i thought i was just "getting old" and "losing it" and catching the flu every 10 secondsnext a vitamin B deficiency... like B12... look into thatthen i agree food allergies are possible... you 'd be amazed at what something like cheese or wheat flour does to you if you are allergic and dont realize... bloating feeling, nausea, fogginess, etci also had a visual problem caused by what i think was just really bad anxiety when i was a late teenager. the thing about walking up the steps, or taking a shower... it was an anxiety freak out panic attack kinda thing that i took muscle relaxers to help me get thru...tho eventually i started to get addicted to them so i chose to stop my prescription...i classically conditioned myself by eating m&m's with my medecine and eventually i just ate m&m's when i felt nervous.it was enough that it never came back...
    Anonymous 42789 Replies
    • December 6, 2009
    • 04:08 AM
    • 0
    Flag this Response
  • i cured my memory/ concentration issues by doing a "candida-cleanse" diet.it also solved weird rashes and stregthened my immune system ridiculously...i thought i was just "getting old" and "losing it" and catching the flu every 10 secondsnext a vitamin B deficiency... like B12... look into thatthen i agree food allergies are possible... you 'd be amazed at what something like cheese or wheat flour does to you if you are allergic and dont realize... bloating feeling, nausea, fogginess, etci also had a visual problem caused by what i think was just really bad anxiety when i was a late teenager. the thing about walking up the steps, or taking a shower... it was an anxiety freak out panic attack kinda thing that i took muscle relaxers to help me get thru...tho eventually i started to get addicted to them so i chose to stop my prescription...i classically conditioned myself by eating m&m's with my medecine and eventually i just ate m&m's when i felt nervous.it was enough that it never came back...THE Symptoms of funny smell and after a CT scan is interesting.I had exactly the same...but also....I was bitten by a tick several years agoa big red blotch appeared but it went away I i thought no more of it...could this have made me feel tired?..but I have recently noticed that my stomach is bloated..fat almost..when I HAVE HAD A SLIM STOMACH FOR YEARS AND YEARS.... and feels sore...apparently this can be symptoms of http://en.wikipedia.org/wiki/Cushing's_syndrome which is a form of diabeties..but in terms of water..any help to flush out the funny smell firstly?..and then the bloated feeling, fat belly and painpul and tender guts below belly button and right side back and front!????
    Anonymous 42789 Replies Flag this Response
  • i know you said u had blood tests but double check to see if they tested your thyriod hormones.
    Anonymous 42789 Replies Flag this Response
  • I dont have any idea of what the original posters issue is or others here but have an idea for vampath Wow, it is bittersweet to find people that seem to have my issues. I too have had two CT scans and and MRI (all without contrast) and no one can seem to tell me what is wrong. It is important to note that I was in a minor auto accident 6 weeks before my symptoms started. My list of symptoms (the "spells" I refer to seem to be similar to absence seizures):Mental:Dizziness/vertigo/"spacey" "drugged" feelingSpeech/pronunciation issuesDyslexia even with numbers or in speechMemory loss/mind going blank, even mid-sentence Physical:Random skin hypersensitivity (occasionally)Sore achy joints/pelvis Random sharp, stabbing pains in different parts of the bodyAnt bite pain, bugs crawling feelingsArmpit sweat smells like cat urineSkin problems (daily, fluctuate in severity)Unexplained weight gain, unable to loseHeadaches/migraines dailyShortness of breath sometimes feeling like deathExtreme fatigue/insomniaBuzzing, vibrating, pulsing sensationsEyes crossingAbnormal glucose fluctuationsHair lossSuperficial numbness (sometimes even in scalp)Muscle fatigue, muscles giving out (ankles, knees)Muscle spasms, 'charlie horse' feeling in muscles (particularly back muscles)Muscle twitching (sometimes in face)Head twitching when nervousInstantaneous extreme urgency to urinate/loss of bladder controlMoving shadows and flashing lights in peripheral visionArm/elbow acheSwollen ankles During "spells":Intense dizziness/spacey, "drugged" feelingTension builds in neck and upper backPressure in head/headache (usually front half of head)Feeling of electrical shocks causing twitching (typically in upper body)Muscle spasmsExtreme itching (causes twitching)Slurred speechLoss of time (seconds)Left arm aches (sometimes)HeadacheExtreme fatigue afterward Your history (of an accident before the symptoms came on.. im also wondering if they gave you blood or any form of blood products or a vaccination due to accident..) Trauma, vaccinations, blood or blood products (XMRV virus is currently under investigation) .. can be triggering events to chronic fatigue immunity dysfunction syndrome CFIDS. Your history and symptoms are consistant for CFIDS. There is a second rare illness which can coexist with CFIDS (sorry i cant think right now what it is called) but that can cause the ant bite pain and bugs crawling symptom (or maybe due to neuro stuff going on with CFIDS, that symptom may happen anyway with it without the other condition?). I've got CFIDS and had all those symptoms and more (including the ants biting and something crawling under my skin feel), except the swollen ankles (one of my hands thou swells), my arm pits dont smell of cat pee but the smell from there used to really really stink (embarrassing i was scrubbing under my arms 3 times a day), instead of moving shadows and flashing lights.. i used to see blobs of green at times in my vision .. and i dont have the urine issue. But i have all the other symptoms and more. I suggest you go to the not crazy forum for CFIDS or just research online (thou there is so much confusion over this illness, including how to define it) and find out more. best luck
    taniaaust1 2267 Replies Flag this Response
  • October, 2010Definitely get checked for Lymes. If you are experiencing extreme fatigue, muscle pain all over, electric zaps to the brain, ridiculous weight gain and an uncontrollable temper, pleases get checked for lymes and know that you may test negative multiple times! These symptoms also replicate MS so if Lymes continues to test negative, rule out MS.I was to ***l and back and those symptoms I've listed above are the most prominent. Other symptoms are eye twitching and disintegrating vision (which by the way, never comes back after treatment).Have you all been checked for Lyme? Ticks also are carrying Bartonella, Babesia (sp??) and other co-infections.A lot, actualy MANY symptoms that you describe are the same that I had. I have been diagnosed with Lyme and Bartonella.If you havent been checked out for Lyme and the co-infections I would look into it.
    Anonymous 42789 Replies
    • October 9, 2010
    • 01:57 AM
    • 0
    Flag this Response
  • It might be Fibromyalgia, which is simillar to Lyme, in a way. The test is very simple. They check 18 "tender points" with certain pressure on your body. If you experience pain in at least 11 out of 18, then you have Fibromyalgia. I was diagnosed with it, four years ago. It is a syndrome that causes many unflattering symptoms in different parts of the body like aching, stifness.. but what made me first look for a cure, was when i got Brain-fog because of it. i did not know what was that i experienced, until my Dr. diagnosed the condition and he prescribed for me a mild anti-depressant, Tryptizol (Amitryptiline), which made cured the brain-fog almost 95%, even after i quit it. although, the other aching problems, partially got back after i quit it. Good luck and God bless you.
    Anonymous 42789 Replies Flag this Response
  • I just came across this, did you ever find out what was wrong? I have the same symptoms.
    Anonymous 1 Replies
    • November 14, 2014
    • 01:35 AM
    • 0
    Flag this Response
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