Discussions By Condition: I cannot get a diagnosis.

Strange recurrent diarrhea symptoms every few weeks. No diagnosis.

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • January 21, 2014
  • 08:53 AM

Please help me. I'm a 16 year old girl, with no family history of these symptoms that I know of. The doctors have been really rough with me, and I'm scared. It's affecting my social life, my whole world is upside down. I don't leave the house much because of my symptoms, and I've begun to walk in circles without a diagnosis.

For about 8 months now, I've been having strange recurrent diarrhea that comes and goes at random. For the most part, it comes every two to three weeks. Sometimes less, sometimes more. The symptoms start suddenly, stay for a few days, and then leave without a trace. During this time, I have to make multiple bathroom trips and my appetite is gone. There is no visible blood in my stool, my stools are not black during this time. They aren't exactly entirely watery or loose, but rather a mix between diarrhea and normal stools. It's hard to describe and hard to understand. The most notable thing is that these stools are very quick moving, come with urgency, burn, and smell absolutely horrible. Like eggs that are starting to go bad or on it's worst occasion, acidic. Sometimes, a fever of 101 will accompany these symptoms, but the fever only stays for a day or even a few hours. I also become very tired, on one occasion I slept for 16 hours straight. Anti-diarrheals do not work when my symptoms appear.

After two blood tests with no results, I'm wondering if my doctor even cares enough. I'm wondering if they are even testing for the right things. I became furious with the lack of insight on my problem, and asked my doctor to give me a stool sample to check for parasites and infections. This came back a few days ago as negative.

I'm in fear of doing a colonoscopy or an endoscopy because of the preparation for the procedure. I'm also in fear of not learning anything about my condition. Of results coming back normal and then being stranded in the same rut as before. The tests also terrify me.

The symptoms are not brought on by any foods. I'm worried that what is going on inside me is killing me.

Stress seems to bring symptoms on, however, these bouts are different from the ones explained above. These do not last as long as well.

I may like to add that I have anxiety disorder, depression, and OCD. However, these conditions have been managed well, and they aren't playing a factor in my life as much as they used to. My anxiety was non-existent when my stomach problems appeared. I was living a much better life, and now it's been taken away from me again.

I do drink caffeinated beverages often, and my lifestyle has become completely inactive due to homeschooling. I do not exercise, I am very out of shape. I am not overweight in the slightest bit. 5'1 and 95 pounds. My family is working with me to get me back in shape and to reduce my caffeine intake. However, reducing the caffeine hasn't been helping my symptoms at all.

My symptoms back in June were happening every week, every few days. I felt really sick, I couldn't spend time with my loved ones. It isn't as bad as it was before. Now it only happens every few weeks.

My symptoms started after eating out at a fast food restaurant. I ate half of my burger and felt horrible. My intestines hurt horribly. I felt horrible for a few days, even having to wake up to use the bathroom. I thought I had a stomach bug, and did the best thing I could do, rest. The symptoms soon passed but something didn't feel right. A week later or so, I came down with more diarrhea, more stomach cramps. And then I started to worry.
I got a blood test done a month later with negative results. A month or two later after that, another blood test was taken, Still negative. My blood pressure and heart rate was fine. And I asked the doctor to give me a stool sample, since I was worried I could have gotten a parasite from the food. The stool sample came back negative. And then I began to feel more and more hopeless.

* I wanted to also add that just recently, my eyesight has been kind of strange. I've been getting weird recurrent eye problems (infections?) that are similar to pink-eye, and make my eyelids red and swollen. My eyes water a lot and get closed shut while I sleep. I'm not sure if this is related or not, but it is annoying and hard to explain to people why my face looks like that. It doesn't seem to be related to any allergies, as I don't have any allergies. This problem also comes every once in a while, and only stays for a few days before slowly fading away. I have not yet seen a doctor for this particular problem. Though I do plan on doing so. *

Has anyone had the same problem as me? I'm running out of options. I'm scared, worried, and my family keeps asking "What happened to our daughter?". I want to go outside, go shopping, and spend time with them without worrying about the pain and urgency. I don't want to feel sick anymore.

Please if there is someone out there, anyone at all who can shed a light on my condition, please..

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5 Replies:

  • Do you have your gallbladder? I have what you have and I have a mixture of disorders. I have IBS and an over production of bile. With so much diarrhea you are loosing all your "good" bacteria and needs to replaced. Try yogurt with live cultures and ask your doctor if you can take align. This could take several weeks to work.you need to have 3-4 yogurts a day. Try this and see if it works.
    Anonymous 0 Replies
    • February 16, 2014
    • 01:38 PM
    • 0
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  • Your symptoms sound like they could be from Chron's disease. Check it out http://www.mayoclinic.org/diseases-conditions/crohns-disease/basics/symptoms/con-20032061
    Anonymous 1 Replies
    • February 19, 2014
    • 07:59 PM
    • 0
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  • I have a multitude of stomach problems and my point of view is that you at least need to have a EGD done. Several years ago I was diagnosed with Mastocytic Entercolitis and you have a lot of the same symptoms. It is diagnosed by doing a biopsy of tissue when they do the procedure. If you don't want to have the test done, try taking an antihistamine at bedtime and Pepcid and see if that helps. It shouldn't hurt you and if it helps, it is an easy fix.
    Anonymous 1 Replies Flag this Response
  • Start taking probiotics daily in yogurt. Really solved my diarrhea.
    Anonymous 0 Replies Flag this Response
  • I have had something very similar to this. No one has ever been able to tell me anything either. Transient symptoms make for difficult diagnosis or unbelieving doctors. I had other issues too that after seeing a Naturopath have seemed to clear up or at least lessen a lot. It might be worth a try.
    Anonymous 1 Replies Flag this Response
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