Discussions By Condition: I cannot get a diagnosis.

Strange medical mystery

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • January 7, 2009
  • 06:41 PM

19 year old girl has now been diagnosed with pseudotumor Cerebri. no effect from medication to lower spinal fluid. had a very traumatic birth and toe walked for the first 10 years of her life. Extremely intelligent, good socially. but has had strange pains and migraines for lifetime . she got a very bad headache one day when she was 12 years old and has not had any relief from it since, it has never gone away, not even for a minute!!!!! I need help, she is very logical and sometimes a little blue about the way her life has been taken over by pain, but really no one deserves this to last forever!!! PLEASE I NEED TO HELP HER, THE DOCTORS SAID SHE WILL GO BLIND SOON, SHE ALREADY HAS SUFFERED SUDDEN VISION LOSS FROM IT.

she also has had a hypothyroid since age 13. gets constant infections of anything, from surgery to her cuticles. she has had CT scans , MRIs and spinal taps.
her pressure is very high and she may need a shunt, but it seems like it is all connected somehow...

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2 Replies:

  • Is there anywhere these days with out cell phone towers and such? we live in trenton NJ currently. the entire state is a hubbub of electric waves. When she was young we lived in a very very old house in a rural part of PA. and when we moved to Albuquerque NM, she was in so much pain, but it is 5000 ft above sea level there... I don't know anywhere in the USA that wouldn't have a lot of microwave or cell hone towers and such.........
    Anonymous 42789 Replies
    • January 8, 2009
    • 05:49 PM
    • 0
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  • I believe something genetic is going on. Have you seen a geneticist?
    aquila 1263 Replies
    • January 9, 2009
    • 08:53 PM
    • 0
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