19 year old girl has now been diagnosed with pseudotumor Cerebri. no effect from medication to lower spinal fluid. had a very traumatic birth and toe walked for the first 10 years of her life. Extremely intelligent, good socially. but has had strange pains and migraines for lifetime . she got a very bad headache one day when she was 12 years old and has not had any relief from it since, it has never gone away, not even for a minute!!!!! I need help, she is very logical and sometimes a little blue about the way her life has been taken over by pain, but really no one deserves this to last forever!!! PLEASE I NEED TO HELP HER, THE DOCTORS SAID SHE WILL GO BLIND SOON, SHE ALREADY HAS SUFFERED SUDDEN VISION LOSS FROM IT.
she also has had a hypothyroid since age 13. gets constant infections of anything, from surgery to her cuticles. she has had CT scans , MRIs and spinal taps.
her pressure is very high and she may need a shunt, but it seems like it is all connected somehow...
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