Discussions By Condition: I cannot get a diagnosis.

strange "migrating" pains

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • January 15, 2007
  • 02:42 PM

My son is 11.5 years old and has Familial Dysautonomia (FD). Hesuffers in the last weeks strange "migrating" pains. It starts in one organ of his body and after a few seconds moves to another location, and so on for minutes or even houres. It happens every morning and every evening, when he goes to sleep, but also, sporadicly, troughout the day and even waking him from sleep at night. The pain seems to be stronger when his blood pressure in high, but it is definitely not blood pressure dependened.
We checked all the examination that we could think about, including abdomenal ultrasound, bones scaning, rhaumatic factors, chest screening, EBV, CMV, but except for accelerated blood sedimentation rate,(it was after a pneomonia) all the checks gave negative results. It also doesn's seem like growth pain, because it takes place all over the body and not only on joints or bones.
Has someone experienced such a phenomenon, especially with FD ?

Reply Flag this Discussion

2 Replies:

  • Please check into Lyme disease & its co-infections. I had migrating pains for several yrs and the Lyme went undx'd all that time...Do a search on it.Good Luck.
    Anonymous 42789 Replies
    • January 17, 2007
    • 00:09 PM
    • 0
    Flag this Response
  • I googled your son's illness as I have not heard of it before. Sounds like this can sometimes cause an oversensitivity (as well as undersensitivity) to pain. Could also be an FD crises? Is he taking a lot of medications? What are they? Either way I recommend acupuncture to help manage your son's symptoms. In Chinese medicine this condition is often diagnosed as Qi stagnation with wind - causing your son's pain to migrate and move around a lot. To find one near you please visit www.acufinder.com and type in your zip code. Best of luck to you.Doctor of Oriental Medicine
    acuann 3080 Replies
    • January 17, 2007
    • 03:01 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.