My son is 11.5 years old and has Familial Dysautonomia (FD). Hesuffers in the last weeks strange "migrating" pains. It starts in one organ of his body and after a few seconds moves to another location, and so on for minutes or even houres. It happens every morning and every evening, when he goes to sleep, but also, sporadicly, troughout the day and even waking him from sleep at night. The pain seems to be stronger when his blood pressure in high, but it is definitely not blood pressure dependened.
We checked all the examination that we could think about, including abdomenal ultrasound, bones scaning, rhaumatic factors, chest screening, EBV, CMV, but except for accelerated blood sedimentation rate,(it was after a pneomonia) all the checks gave negative results. It also doesn's seem like growth pain, because it takes place all over the body and not only on joints or bones.
Has someone experienced such a phenomenon, especially with FD ?
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