Discussions By Condition: I cannot get a diagnosis.

Stomach Pain

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • June 6, 2007
  • 04:21 PM


This must be one of the hardest ailments to diagnose. My daughter, 21 years old, has had severe stomach pain on and off for 6 years. Here is a snapshot of things done over the years:

Doctor says:
Lactose intolerant (So she stays away from dairy)
Food allergies (she stays away from certain foods)
Upper GI Tests OK
X-rays and CAT Scan OK
Colonoscopy OK
Gallbladder removed (Dr said Gallbladder was in bad shape)
Stomach continue….
Dr. Says it may take a year for her body to get used to working w/o GB
2 years after surgery…still has same issues
Go to Dr. at Northwestern in Chicago
Dr. prescribes mild antidepressant for , “nervous stomach”
Stomach issues slow down

After 7 months on mild antidepressants, we take her off drug
Stomach is OK for a while
Several months pass and she gets pain attacks that double her over, cause her to sweat and shake
Pain goes away, stomach hurts for a couple of days apparently due to muscle convulsions

She is religious with her attention to food intake and type, but it seems that there is no pattern to what she eats and when the attacks come. Yesterday she was at work doing what she loves, student teaching when an attack came. She had to go home to get relief.

Diarrhea is also a symptom. She tries to belch to relieve pain. Her stomach gets bloated feeling. Sometimes the pain radiates to her side and back.

We are getting ready to go through another round of Dr. visits. It seems that the symptoms are being treated but we never get to the cause.

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1 Replies:

  • i guess because i had these very same symptoms, running from dr to specialist to dr and no answers. I was told about celiac disease and also found out that even after a negative biopsy, a person can still have this disease ( i was told this from a woman at the celiac association who suffered from celiac's) Has your daughter ever cut back on the gluten. I did. And after years of suffering, i finally got rid of the pains. I still wasn't completely convinced, so after 3 months of being gluten free, i experimented and ate 2 cupcakes and the wrath of pain doubled me up worse than ever, the diarrhea came back (uggh) i dehydrated and lost eloctrolytes, potasium and iron, and wound up in the hospital for about 1 week on an iv and meds. Let's say i'll never eat gluten again after that! Look up Celiac's disease, if you don't know anything about it already. hope it helps!
    joanimation 7 Replies Flag this Response
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