I have five children, four boys and one girl. All of our boys started out normal in size, however they soon drop in the charts. We have experienced weight loss, slow gain, no change for the first 18 months to 30 months in their growth. Developmentally, they are usually up to par in all areas, except some had speech delays. We had ear infections, bronchial infections, asthma, and reflux in all of them. We discovered in son 3 that he had velar movement issues. More info on that, he was the slowest in language development, although ahead in every other area. We qualified for speech therapy, due to almost apraxic conditions, and during this time we notcied when he said "ahhh" there was no movement in the back of his throat. This improved with time and therapy. We never had to actually go to an ENT, although this was set up. Before therapy, he could make no guttural sounds at all. He is still a little nasal and breathy when he talks, but is now ahead in his overall speech. As a matter of fact, he taught himself how to identify the alphabet by 2.5 yrs! He is now trying to read at 3.5!
However, now our 2 yr son is showing some of the same signs. He is now gaining better, but still small for his age. We get minimal weight gain, if any at each visit, and he still has some reflux problems, but most of all, there is almost no movement in his throat when he says "ahhh". :eek: :confused: And he always yells instead of talking!!!:)
The speech therapist feels, as do we, that if two in a row have had this problem, then it is a possibility that there was some of it in each child, with differing degrees in each one. The oldest three boys did outgrow these symptoms, at different times, when they started chewing and swallowing whole foods all the time and speech really began to develop. (0ur last ped did not even know this was an issue they could have!!!)
We recently changed peds, since our last ped said this was due to not feeding our children properly or enough. She labeled them organic FTT, and then told me to have no more children, since I was already in over my head! :mad: We even went into the hospital to let her see. We were right, she was wrong, and she still had her opinions. I kept charts, journals, diapers, and I really got nowhere, and now have a somewhat jaded view of the medical community.
Can anyone here identify with the symptoms and any answers....Sorry for the super long post, venting.... The only thing I found is pharangealpalatino something or other and the symptoms seem to fit. We have ruled out CF, malabsorption issues, and the basic genetic disorders tested for at birth. Please help if you have ideas!!
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