Discussions By Condition: I cannot get a diagnosis.

Still no diagnosis; maybe its Sarcoidosis in the liver?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: maecharl
  • March 27, 2007
  • 05:11 AM

Ok, here goes; I am a 41yr old female mother of 2. I have had a fever on and off for the past 2 years along with just not feeling well, tired and some weird feeling in the upper right quadrant of my abdomen, almost like there is something under there, and there is pain, sharp pain at times. The fever is now daily and so is the pain its take my breath away sharp, and uncomfortable feeling in the upper right quadrant of my abdomen. Went to MD, did alot of tests; CAT chest, and abdomen, ultra sound of upper and lower abdomen. Found dilated common bile duct on ultra sound and minute spots in all 4 parts of my lungs. Had ERCP and my common bile duct is 1.6cm, and the pancreatic duct is also abnormally dilated. (Had cholecysectomy in 2000,and Hx of common bile duct blockage in 1990 with very high liver enzymes but no jaundice, white stools and dark urine.)
Positive Epstein Barh, elevated liver enzymes and they continue to rise, and an elevated ACE, my WBC slightly elevated. I am now taking pain medication and tylenol every 4-6 hours for the pain and fever, its the only way I can function daily. I had a liver biopsy last week, and it was negative for any abnormalities. My hematologists thinks I could have sarcoidosis in my liver, which wouldn't show up in the biopsy unless a granuloma was in the actual tissue removed from the biopsy. Does anyone know how they can diagnose sarcoidosis in the liver? I have also had a 50 pound weight gain in the past two years. I do have little red dots on both my hands and forearms. Any ideas of what has been making my life pure ***l for the last two years?

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  • You could have a biopsy done of the involved parts of your lung. From that they would be able to see the non caseating granulomas that are present in Sarcoidosis.
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