Discussions By Condition: I cannot get a diagnosis.

still no diagnoses

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: whatifitsu
  • November 7, 2010
  • 05:15 AM

After a CT of my cervical spine due to continued worsening of chronic pain symptoms, they discovered an anterior mediastinal mass. I have done "almost" everything from thyroid scan, fine needle biopsy of thyroid, ultrasound of thyroid,parathryoid and neck region, plus a couple of other tests. My calcium and parathyroid as well as thyroid blood levels are all normal, with the exception of my initial parathyroid panel which was sky high. The lesion measured 1.8cm x 1.3cm on the CT in May,2010. In August during the fine needle biopsy, it measured 1.9cm x 1.8cm and there were not enough cells to give a conclusive diagnosis.

My question is this: Who should I see to have any further testing done such as a thoracoscopy, mediastinoscopy, etc? Should I see an Endocrinologist? My primary says she is leaning away from that because not all Endocrinologists can perform testing in the area where the lesion is. It is in a very peculiar place, behind the collar bone.

Any and all help would be greatly appreciated.


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2 Replies:

  • This should be followed up. You decide who you think is best for this. You may even see more than one doctor.In the mean time, I suggest you have a healthy diet and lifestyle, so your body is in the best condition possible, whatever the outcome of the diagnosis.
    Anonymous 42789 Replies
    • November 7, 2010
    • 05:32 AM
    • 0
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  • Thank you. I saw a pulmonary specialist today, and he is sending me for a CT scan of chest and neck. He said had he seen me 6 months ago, he would still say it is time to do it again, but especially since there are no concrete answers. He was optimistic, saying he doubted it was anything serious, that most happen at any earlier age, but never say never. I felt really encouraged and hopeful after leaving his office.
    whatifitsu 2 Replies
    • November 10, 2010
    • 03:38 AM
    • 0
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