Discussions By Condition: I cannot get a diagnosis.

stiff walk, nerve damage?

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: zakchaz
  • January 3, 2009
  • 02:12 AM

My partner has for the past 8 years had a stiff leg. She says that it feels that her leg belongs to someone else, not her. She has had at least 5 MRI and many more CT scans. she has been to many doctors, as well as chiropractic, acupuncture, acupressure, and sports doctors.

NOTHING HELPS. Each year she gets worse. Not one of the doctors has found a definite cause. Any ideas? (we live in Tokyo, and she has been to almost all the big hospitals)

Her leg also spasms, but she has no pain during the spasms. They can be near violent, almost kicking. Usually when we sleep, but sometimes while she is sitting.

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4 Replies:

  • you might try just some basic physio therepy on a daily basis to loosen up the muscles. Also, i am not a doctor but you might ask about some anti convulsants. Phenobarbital is a common one, as is clonazepam. good luck!
    Anonymous 42,789 Replies
    • January 3, 2009
    • 02:58 AM
    • 0
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  • Has she had an EMG?I've never heard of these symptoms.
    richard wayne2b 1,232 Replies
    • January 3, 2009
    • 01:55 PM
    • 0
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  • Indeed, this is Stiff-leg syndrome and represents a focal form of stiff-person syndrome. I would have your healthcare team perform lab studies to determine the presence of Anti-GAD antibodies and a spinal tap to determine the presence of oligoclonal bands and elevated IgG synthesis. The anti-GAD is often present in spinal fluid as well in these cases. Also, an EMG would indeed be recommended and what they'll be looking for is sustained motor-unit firing despite the attempts to relax the muscles. They also need to study the contraction/relaxation relationship at the muscle groups of the affected leg. In this syndrome, the muscles designed to act against contraction muscles are involuntarily activated as well. So they will see motor-firing of muscle groups simultaneously where under normal conditions, would not be the case. These two inconsistencies represent the activity that causes a person to sense the limb as stiff in nature. Treatment is somewhat controversial, but evidence that drugs like GABA enhancers such as Baclofen have demonstrated positive results in some patients, but improvement in physical symtoms is infrequent. Intravenous immunoglobulin treatment has also been observed to provide some attenuation of symptoms, but again, the evidence is not conclusive. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • January 3, 2009
    • 02:22 PM
    • 0
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  • She has never heard of an EMG, and neither have I. Thank goodness for You Tube.Some additional information.She can not raise her leg easily. She really needs to think and try to lift her leg. Recently, her ankle has become much more stiff, and her foot and ankle have become more painful. When walking she must swing her left leg. Her left foot also shakes when walking down steps.Any EMG testing places in Japan?Stuart
    zakchaz 1 Replies
    • January 4, 2009
    • 09:15 AM
    • 0
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