Discussions By Condition: I cannot get a diagnosis.

Stenotrophomonas maltophilia & more - 11 month old

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Scully0007
  • February 28, 2009
  • 03:45 AM

My daughter who will be a year old next week has had medical problems since she had her first seizure at 7 months old. I have other threads on here with all the details but to sum it up she first had seizures then was hospitalized for a week (her first Christmas) with mastoiditis & a sinus infection. Following surgery to drain the fluid and place tubes she was doing much better and we thought the infection was causing the seizures. A culture of the fluid in her ear came back Streptococcus pneumoniae. She was discharged on the antibiotic Augmenten for 1-week (Following a week of IV antibiotics).

She had more seizures in January and they did a nasal culture. The results were as follows...

Result #1
Streptococcus pneumoniae
Moderate growth

Result #2
Stenotrophomonas maltophilia
Heavy growth

She's been on the antibiotic Cefdinir (Omnicef) 125 MG since January 30th. The doctor (ENT) did another culture of an apparent active infection yesterday and prescribed 10 more days of antibiotics for a total of 40-days. He said he has never heard of the Steno. bacteria.

I'm concerned about her because these infections just don't seem to be going away and she will be on antibiotics 75-days her first year of life, all in the past 4-months. Before that she was fine.

I believe will everything going on with her they are missing a key diagnosis - any ideas, thoughts, questions I should ask the docs.?

Thank you for your time,
Kathy

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3 Replies:

  • Wow - poor thing! That is an insane amount of antibiotics. Are you breastfeeding or is she formula fed? When did you introduce solids and what solids is she eating? Has she been tested for allergies, in rare cases this can cause seizures. Was she on antibiotics prior to her getting her first seizure at 7 months? How are her stools - does she have loose stools or constipation? How is her appetite? PLEASE find a good liquid children's PROBIOTIC to give to her. She needs the probiotic to help rebuild her thoroughly ravaged intestinal flora. The massive antibiotics has further compromised her immune system...a probiotic will help rebuild her immunity. Best wishesDOM
    acuann 3080 Replies
    • February 28, 2009
    • 03:51 AM
    • 0
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  • Wow - poor thing! That is an insane amount of antibiotics. Are you breastfeeding or is she formula fed? When did you introduce solids and what solids is she eating? Has she been tested for allergies, in rare cases this can cause seizures. Was she on antibiotics prior to her getting her first seizure at 7 months? How are her stools - does she have loose stools or constipation? How is her appetite? PLEASE find a good liquid children's PROBIOTIC to give to her. She needs the probiotic to help rebuild her thoroughly ravaged intestinal flora. The massive antibiotics has further compromised her immune system...a probiotic will help rebuild her immunity. Best wishesDOM She started solids at 4 months and she was breastfed up until 4-months when we started suplementing with increasing amounts of formula until 10-months. The infection in her head was causing her to refuse all intake and because of this my milk production started decreasing too much for her. When she was in the hospital she refused to eat or dring anything but she did nurse a little. Can they do allergy testing in someone that young and were do I start? Her stools seem more like constipation, they are very solid things. Do you know where I can find a children's liquid probiotic? I bought a bottle of tablets and have been crushing one and mixing it in with her breakfast but I'd rather have her taking something meant for children. Thank you for your time. The doctors have to be missing something and I'm afraid my poor little girl is suffering because of it. Kathy
    Scully0007 13 Replies
    • February 28, 2009
    • 02:53 PM
    • 0
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  • That is unfortunate that she started on solids so young...some pediatric docs push solids, and this can lead to an increase in allergies and intolerances. Allergy testing is not very accurate, but a blood elisa test may show some problems she may be having. Here is a link to powder and liquid probiotics from vitacost.com, which is a great website for vitamins: http://www.vitacost.com/productResults.aspx?Ne=3&Ntt=probiotic&Ns=P_SoldQuantity%7c1&N=32+4293118320&Ntk=products&previousText=probiotic Hope your little one feels better soon. I am sorry I cannot offer more advice, other than to try to see a pediatric naturopathic doctor or pediatric chiropractor or other holistic practitioner. They may shed a different life on your little ones illness. I am a Doctor of Oriental medicine and have two small children. I have used homeopathics, and other natural medicine for my little ones, and really believe in the benefits. Best wishesDOM
    acuann 3080 Replies
    • February 28, 2009
    • 03:26 PM
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