Discussions By Condition: I cannot get a diagnosis.

Started with weak legs, now paralyzed

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Anonymous
  • May 21, 2009
  • 04:19 AM

My stepdad...77 years old. 2008 around February was complaining about his legs getting weak. He went to the doctor - nothing. Than he started to have balance problems and falling...the legs were getting weaker. He went to the doctor...he wasn't having small strokes and the couldn't find anything wrong. On Dec 23, 2008...he walked outside and fell. He was rushed to the hospital and admintted. HE was kept there for 3 weeks. They didn't know what was going on however he was paralysed from the waist down and he had dislocated his left shoulder. They sent him home. Said he was lacking vitamin B-12 and he need shots. And of course physical therapy.

It is now May...the paralysis is continuing to take over his body. It is no longer just the legs. He has lost the use of his left arm and the right is getting weaker. The doctor says that he needs to continue the B12 and the working with a physical therapist. That's fine...however he isn't getting any better. And I suspect that it maybe a virus spread by wildlife. He has spent the last few years rescuing wildlife and taking it to a reserve. Does anyone have any idea as to what could causing the paralysis? How about what type of doctor or better yet a doctor I can take him too that will do a more thorough investigation. He lives in San Antonio Texas and is a vet (retired col who provided many years of service to this country in very dangerous places.) IF we have to take him out of Texas...that could be done. Of if there is someone in San Antonio, Austin or Houston that could take a good look at him and provide a diagnosis.

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9 Replies:

  • I am not a doctor but the diagnosis Guillain Barre comes to mind. It can start with ascending paralysis. Has be been checked for this?
    Vikefantam 30 Replies Flag this Response
  • Thank you for your reply. My sister had Guillain Barre and I'm very familar with the symptoms. However with my sister it was rapid moving...weakness in legs 1 day, 4 days later she was in the hospital completely pararlyzed. My stepdad's paralysis was aggravated/caused by the fall. The legs kept getting weaker and weaker...however it took months (about 8 before that fall ended with him being partially paralyse. Now the paralysis is spreading). I'm pretty sure the Guillain Barre has already been checked for, hower I'll double check it. Thank you for the post.
    Anonymous 42789 Replies Flag this Response
  • I would take him to a competent neurologist as soon as possible. If the paralysis spreads upwards to far......well, his ability to breath might be affected. With the fall and a dislocated shoulder.....did they do an MRI of his spinal column? Maybe something is impinged, causing the loss of sensation? Is it total paralysis (as in, he can't feel it when you poke his legs) or is it just that he can't move them?
    Harmonium 322 Replies Flag this Response
  • I would recommend a lyme disease test. I recently had a rare neuro disease, but was tested for lyme. I know it can cause weakness and nuero symptoms after having it for some time. The tests are not very accurate, so you would have to inquire with the doctor about the best testing. The only other nuero options I can think of would be transverse myelitis or devic's disease. These would show up on a spinal MRI. They are all rare though, so doctors don't look for them much. I only know this from recearching what I had. Good luck and God bless!
    Anonymous 42789 Replies Flag this Response
  • I would take him to a competent neurologist as soon as possible. If the paralysis spreads upwards to far......well, his ability to breath might be affected. With the fall and a dislocated shoulder.....did they do an MRI of his spinal column? Maybe something is impinged, causing the loss of sensation? Is it total paralysis (as in, he can't feel it when you poke his legs) or is it just that he can't move them? They did an MRI on the spinal column (the second one was done on Friday). Funny thing is the back of his neck they can't get a picture of. They keep thinking there is metal in there however he has never had metal put into any part of his body. His legs get sore from sitting all the time. So I think he can feel something in them. Not sure though. On Friday, mom had enough of "civilian doctors" and she took him to Wolford Hall (Airforce run medical center and hospital in San Antonio.) They are taking her concerns and him very seriously. They've looked over the past results, ordered up the second MRI. They are monitoring his urine for heavy metals. And they are also checking his muscles...to see if it's something that is attacking the muscles. They don't have a diagnosis, however they have a check list that they are going through and they are doing things that past doctors and hospitals haven't done. Hopefully, they find the problem and it can be reversed.
    Anonymous 42789 Replies Flag this Response
  • I would recommend a lyme disease test. I recently had a rare neuro disease, but was tested for lyme. I know it can cause weakness and nuero symptoms after having it for some time. The tests are not very accurate, so you would have to inquire with the doctor about the best testing. The only other nuero options I can think of would be transverse myelitis or devic's disease. These would show up on a spinal MRI. They are all rare though, so doctors don't look for them much. I only know this from recearching what I had. Good luck and God bless! My stepdad was a volunteer rescuing injured wildlife and taking them to a local preserve. Lyme disease is a fear along with a couple of other things. They've checked him for Lyme disease...
    Anonymous 42789 Replies Flag this Response
  • Has your stepdad been checked for any of the following?Lyme diseaseNormal pressure hydrocephalusMy stepdad...77 years old. 2008 around February was complaining about his legs getting weak. He went to the doctor - nothing. Than he started to have balance problems and falling...the legs were getting weaker. He went to the doctor...he wasn't having small strokes and the couldn't find anything wrong. On Dec 23, 2008...he walked outside and fell. He was rushed to the hospital and admintted. HE was kept there for 3 weeks. They didn't know what was going on however he was paralysed from the waist down and he had dislocated his left shoulder. They sent him home. Said he was lacking vitamin B-12 and he need shots. And of course physical therapy. It is now May...the paralysis is continuing to take over his body. It is no longer just the legs. He has lost the use of his left arm and the right is getting weaker. The doctor says that he needs to continue the B12 and the working with a physical therapist. That's fine...however he isn't getting any better. And I suspect that it maybe a virus spread by wildlife. He has spent the last few years rescuing wildlife and taking it to a reserve. Does anyone have any idea as to what could causing the paralysis? How about what type of doctor or better yet a doctor I can take him too that will do a more thorough investigation. He lives in San Antonio Texas and is a vet (retired col who provided many years of service to this country in very dangerous places.) IF we have to take him out of Texas...that could be done. Of if there is someone in San Antonio, Austin or Houston that could take a good look at him and provide a diagnosis.
    Anonymous 42789 Replies Flag this Response
  • Have you read the entire bioinitiative report blaze? What evidence do you have that weak microwave radiation is the probable cause of any of the posts you respond to? Imagine that you're me and you believe that anyone giving clear diagnoses of microwave-induced mysterious illnesses has likely been affected by some pseudoscientific rationality - what would you do to convince them otherwise (or at least entertain other theories)?Lynnc, it sounds like one of the many neuro-muscular degenerative diseases characteristic of people of old age. If you haven't seen a neurologists already, then you probably should. Your step-dad's case isn't all to unheard of - this kind of thing happens a lot to the very old.
    Anonymous 42789 Replies Flag this Response
  • My stepdad...77 years old. 2008 around February was complaining about his legs getting weak. He went to the doctor - nothing. Than he started to have balance problems and falling...the legs were getting weaker. He went to the doctor...he wasn't having small strokes and the couldn't find anything wrong. On Dec 23, 2008...he walked outside and fell. He was rushed to the hospital and admintted. HE was kept there for 3 weeks. They didn't know what was going on however he was paralysed from the waist down and he had dislocated his left shoulder. They sent him home. Said he was lacking vitamin B-12 and he need shots. And of course physical therapy. It is now May...the paralysis is continuing to take over his body. It is no longer just the legs. He has lost the use of his left arm and the right is getting weaker. The doctor says that he needs to continue the B12 and the working with a physical therapist. That's fine...however he isn't getting any better. And I suspect that it maybe a virus spread by wildlife. He has spent the last few years rescuing wildlife and taking it to a reserve. Does anyone have any idea as to what could causing the paralysis? How about what type of doctor or better yet a doctor I can take him too that will do a more thorough investigation. He lives in San Antonio Texas and is a vet (retired col who provided many years of service to this country in very dangerous places.) IF we have to take him out of Texas...that could be done. Of if there is someone in San Antonio, Austin or Houston that could take a good look at him and provide a diagnosis.I know this post is from 2009, but when I started reading remembered me my grandmother. She was complaining about her legs weak for long time, also we noticed how hard was to her walk, seat or lay dow. One day my sister found her on the floor unable to move. The paramedics came, and was hard to move her because she was in severe pain. Of course she become inpatient in the hospital for 74 days until they found out the reason of her sympthoms. I never heard before when the doctors explain to us, she had Multiple Myeloma. This is a type of cancer in the blood, and attack the bones. I know every case is different but we never know. Good luck.
    Anonymous 42789 Replies
    • October 18, 2010
    • 00:51 AM
    • 0
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