Discussions By Condition: I cannot get a diagnosis.

Sporadic dizziness/disorientation/nausea

Posted In: I cannot get a diagnosis. 55 Replies
  • Posted By: Anonymous
  • March 31, 2007
  • 05:11 PM

Hoping to find some explanation for a weird constellation of symptoms that I've been having for the past 6-8 weeks.

It's very hard to describe. For a few minutes at a time, I feel totally confused/disoriented from reality. This is followed by waves of nausea that sometimes force me to sit or lie down quickly, because I'm afraid I'll faint.

The disconnection from reality is very hard to describe--I feel like I "flash" into a dream state. The best I can say is, imagine that suddenly you find yourself on Sesame Street or some other totally surreal setting, and yet it not only seems normal, but you feel like you've been there your whole life. It's as though I'm suddenly "living in" a memory of a dream.

I know that makes no sense, but that's the best I can do.

I've seen my face in a mirror during these episodes and I get very, very pale.

Anybody? Anybody?

I wouldn't even know what to tell a doctor. It's not like I can predict the episodes. It's only happened once while I'm driving, and I'm able to keep the car on the road (thank heavens), but it's really freaking me out.

40, F, drinker, light smoker, no regular meds

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55 Replies:

  • Denise go to www.ahummingbirdsguide.com see how many sx you have take info to dr...good luck
    mommy cat 1,654 Replies Flag this Response
  • Found this post as I'm currently having the same symptoms. Anybody have any info on this or does the original poster have any insight?
    TheOtherSide 1 Replies
    • August 19, 2008
    • 00:16 AM
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  • I am so sorry for your symptoms but am relieved that someone else is having these same symptoms. I faint into dreaming as you described. Dizziness, disorientation, nausea. Any luck with an answer? I am always sitting, never standing or walking.
    Anonymous 42,789 Replies
    • October 26, 2008
    • 00:38 AM
    • 0
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  • i doubt very much if you have what the illness at the hummingbirdsguide... as one for that has a far wider range of symtoms in various different areas.. not just where you have. -I feel like I "flash" into a dream state. The best I can say is, imagine that suddenly you find yourself on Sesame Street or some other totally surreal setting, and yet it not only seems normal, but you feel like you've been there your whole life. It's as though I'm suddenly "living in" a memory of a dream. that symptom either isnt normal for the illness that was suggested there. (im commenting here as i have that illness.. and I really dont think this is your issue).
    taniaaust1 2,267 Replies
    • October 26, 2008
    • 08:27 AM
    • 0
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  • Maybe you mean "deja vu?" If so, ths is a good article, and a researcher responded below the text with a neurological explanation. At: http://serendip.brynmawr.edu/exchange/node/1682
    aquila 1,263 Replies
    • October 27, 2008
    • 04:36 PM
    • 0
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  • I know it's over a year later - I just saw your post. I went through the very same set of experiences you are going through a few years ago. The "out of body" experience and the sudden onset of nausea could not pinpoint a cause until one day - at my insistence - the doctor had me signed up for a "hydascan" to check gall bladder function. As it turned out, my gall bladder was dysfunctional, and filled with "sludge". There were no gall stones, so I had no classic symptons of pain, vomiting, etc. I had gall bladder surgery - outpatient - and the symptons cleared immediately. I can't explain why it happend - I choose to believe my system was being poisoned by the "sludge bile" from the gall bladder, thus causing the light headed issues, "foggy experiences", and nausea. Hope it helps.
    Anonymous 42,789 Replies
    • November 17, 2008
    • 09:09 PM
    • 0
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  • I, too, have symptoms of nausea and disorientation when I experience a feeling of deja vu. However, I also get extreme tunnel vision (to the point where my vision is completely blacked out), and my nausea gets worse and worse to the point where I begin dry heaving. I get dizzy as well.Typically it happens when something I am doing, something I hear, or something I see reflects something I dreamed about. The harder I try to remember what it is, the more extreme the symptoms get. The best solution I've found is to tell yourself that it's not what you think it is. Put it out of your mind and I begin feeling instantly better.However, the feeling isn't quite the same as deja vu, because I know where I've seen it (in a dream), it's typically just remembering the specifics of the dream that trigger the more extreme symptoms. It's probably because I have a very good ability to remember major aspects of nearly every dream I have. However, none of my friends experience this, and so sometimes I worry about it. Any help would be appreciated.
    Anonymous 42,789 Replies
    • December 5, 2008
    • 04:53 AM
    • 0
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  • I, too, have symptoms of nausea and disorientation when I experience a feeling of deja vu. However, I also get extreme tunnel vision (to the point where my vision is completely blacked out), and my nausea gets worse and worse to the point where I begin dry heaving. I get dizzy as well.Typically it happens when something I am doing, something I hear, or something I see reflects something I dreamed about. The harder I try to remember what it is, the more extreme the symptoms get. The best solution I've found is to tell yourself that it's not what you think it is. Put it out of your mind and I begin feeling instantly better.However, the feeling isn't quite the same as deja vu, because I know where I've seen it (in a dream), it's typically just remembering the specifics of the dream that trigger the more extreme symptoms. It's probably because I have a very good ability to remember major aspects of nearly every dream I have. However, none of my friends experience this, and so sometimes I worry about it. Any help would be appreciated.this is me exactly. i too try and talk myself out of it, but its so trippy and surreal i go with it sometimes but end up dry heaving. its like your have deja vu from a dream and it's so intense you get sick feeling from your thoughts. I personally don't think its gall bladder related(my opinion). i've been having these 'episodes' since i was early teens i'm 30 now, no GB issues. i wouldn't worry about it. there was a point I didn't have on for a few years then all the sudden every couple of weeks. wierd crap
    Anonymous 42,789 Replies
    • December 18, 2008
    • 02:01 AM
    • 0
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  • Thank you for starting this thread, I truly thought I was the only one who experienced this and was begining to think I was crazy or something. I have tried to explain them to friends, but was not even close to being as descriptive as I have read on this post. This has been happening to me my whole life. I have noticed that it tends to occur more when I dont get enough sleep or feel like I slept well.Today, I had about three of them, which is the most I have felt in some time. The first one was triggered after someone said something that made me flash back to a dream, but I was seeing it in my minds eye, like a memory. I was still seeing what was in front of me, but at the same time remembering some odd dream and I agree, the more I tried to "go with it" and remember more, the more light headed I got and slight nausia, but I felt like I went white flush in the face and disoriented.It happened again that day twice while sitting, someone came into my office and just her walking in began to trigger the above feeling, hands felt light, nausia and like a stary feeling. It only lasted maybe 20 seconds, but each time felt worse, then it would go away.If anyone has any more information on this, I would be VERY interested in knowing what the heck this is. I related best to the seperate posts that described the symptoms that I did above. It is nice to at least know I am not alone and the internet is a wonderful thing.Thanks!
    Anonymous 42,789 Replies
    • January 1, 2009
    • 04:35 AM
    • 0
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  • I've done a bit of research since my last post and it seems many others have similar (if not the same) symptoms of deja vu. It is apparently attributed to seizures in a specific part of the brain (in control of memory). If it interferes with your daily life it is suggested to see a doctor.I don't think that this is the cause of my case, though, because my deja vu is not a waking memory like the average person. Like I said before, it's when something in my waking life triggers a memory of a dream I had, not because it's exactly alike but mainly because it reminds me of something specific in the dream; a face, a place, a line of speech, etc. Because my brain isn't confusing the present with a memory, I don't believe I am experiencing temporal lobe seizures.Any help is still appreciated.
    Anonymous 42,789 Replies
    • January 14, 2009
    • 04:39 AM
    • 0
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  • I saw a sticker on the inside of my garage door last night and it was something I had seen in a dream 2 nights before. It triggered a series of physical responses (nausea, dizziness and disorientation). I thought I was tripping. I soon remembered that I had actually had that same dream numerous times that week. Nothing scary. Nothing kinky. Just a dream. The scary thing is that right before I got really sick to my stomach I smelled a horribly acrid odor out of nowhere. It wasn't in the air a second prior so I'm led to believe my mind created the scent. Instant and sickeningly sweet.Then no more than an hour later a different dream recollection. Same reaction. Scared that I might have a brain tumor restricting the mechanics of the neurotransmitters in my brain I went on line to see if anyone had any insight.So far no one has mentioned a phantom odor preceding the physical symptoms. Other than that it's good to know I'm not alone in the weird fog.GOOD LUCK
    Anonymous 42,789 Replies
    • February 8, 2009
    • 10:07 PM
    • 0
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  • hi,today was the first day ive ever had these weird episodes. it was just like you guys have said. someone would do something even just open a door that would make me have a flash back of my dream not even a bad dream just weird and it make you feel horrible although its not a bad dream then my heart sort of sinks and my head goes funny then i feel a bit sick then its gone like a flash. it happened about 8 times im really scared.
    Anonymous 42,789 Replies Flag this Response
  • OK. This is interesting and I know what is going on.Deja vu, unusual visual disturbances, strange smells and a feeling of disembodiment are all associated with TEMPORAL LOBE EPILEPSY. I am almost certain that this is what you are experiencing. It may also be migraine, which can be very similar, and does not necessarily have to involve a headache. Since you are not losing consciousness, you are suffering from simple partial seizures. Here's what Wikipedia has to say about them:"Simple Partial Seizures (SPS) involve small areas of the temporal lobe and do not affect consciousness. These are seizures which primarily cause sensations. These sensations may be mnestic such as déjà vu (a feeling of familiarity), jamais vu (a feeling of unfamiliarity), a specific single or set of memories, or amnesia. The sensations may be auditory such as a sound or tune, or gustatory such as a taste, or olfactory such as a smell that is not truly present. Sensations can also be visual or involve feelings on the skin or in the internal organs. The latter feelings may seem to move over the body. Dysphoric or euphoric feelings, fear, anger, and other sensations can also occur during SPS. Often, it is hard for persons with SPS of TLE to describe the feeling. SPS are often called "auras," and are sometimes thought to be preludes to more severe seizures."You can find out more here:http://en.wikipedia.org/wiki/Temporal_lobe_epilepsyand here:http://www.patient.co.uk/showdoc/40024895/I hope this helps,With best wishes.
    happyprince123 33 Replies Flag this Response
  • I have been experiencing these episodes for close to 10 years now, and have never told anyone. I think it started around when I was 15 or 16 or so. I honestly thought I was just weird and didn't want people to think I was crazy. I googled Temporal Lobe Epilepsy and it seems to fit the symptoms. I also came across "Medial (I've also seen it spelled "Mesial") Temporal Lobe Epilepsy which seemed to be exactly what I'm experiencing. The symptoms are: " a sensation of warmth or discomfort ascending from the stomach into the neck (I had completely forgotten about this part of the experience until I read this. That feeling of warmth would usually be the first clue for me to stop what I'm doing and stay still if I could), nausea, or olfactory. The person may have hallucinations, a dream-like state, anxiety, a feeling of familiarity deja-vu, or unfamiliarity (jamais-vu)." I'm going to do a lot more research on this now that I know this is not just something weird about me. http://books.google.com/books?id=ZVehNRFBEZgC&pg=PA76&lpg=PA76&dq=dream+like+state/nausea&source=bl&ots=JXpXz0zFwM&sig=GYZhKKF9PMAkmLlOblkBGGJqmGk&hl=en&ei=p3C0SfPOFJSgMujbgeME&sa=X&oi=book_result&resnum=10&ct=result
    vbgirl 1 Replies Flag this Response
  • HappyPrince,Thanks for your reply, I sincerely appreciate the help. I'm still not certain that I am experiencing a temporal lobe seizure. The symptoms are simimilar that I am tempted to agree with it, but I am not experiencing deja vu in the traditional sense that I think I am reliving a memory. Like I said previously, something will remind me of something I dreamt about (ONLY dreams, never past experiences). And the symptoms are only triggered once I try to remember the specifics of the dream.Earlier tonight (less than half an hour ago) I had an episode caused by a song I was listening to. This is the first time I can recall a song triggering it.I am not worried about putting my finger on a label for it at this point. It is what it is and in all likelihood it probably is just a somewhat different form of temporal lobe problems. I am more worried if this should be cause for medical concern, and if I should schedule an appointment with a doctor? I don't get them terribly often, around once a week or so. When I was more active, I would get them almost daily. I don't think it's an iron deficiency, either. I have a very well-rounded diet and the cause of the symptoms is so specific that I personally rule iron deficiency out of the equation.Help is always appreciated (and returned, if at all possible),Aaron
    Anonymous 42,789 Replies Flag this Response
  • I am reading these posts and I am amazed that I'm not totally crazy and that others have experienced the same thing. Aaron, I am experiencing the same EXACT thing. It only started yesterday but it's happened around 15 times so far. I thought that if I just got a good night's sleep, it would go away but in the shower this morning it happened again and then again at work. I am flashing back to the same dream that I only realized I had when I started getting the flashbacks. And when it happens I am getting extremely nauseous and my stomach hurts. I have also had a headache yesterday and today. I am getting worried that there might be something wrong with me...did you find out anything else?? Do you have any sleep disorders?? I do and I'm wondering if this has anything to do with it.
    LINLAGS 1 Replies Flag this Response
  • This is the first time that I thought to research this. I have had it occur once or twice a year since I was a teenager. I practice law and have had it during trial, which was really debilitating. I have the de ja vu about a dream, and when I dwell on the dream it gets worse, with waves of disembodiment and nausea, leaving me pale. It lasts for hours to a half day and comes in rushes. Is there anything that I can do to address it? I have a headache usually after several episodes, or at the end of many. I feel sedated slightly. I have the smell, but it is not a bad smell, just heavy. My limbs tingle and I feel drained. No LOC. Any thoughts about whether it is TLE or migraines?
    Anonymous 42,789 Replies Flag this Response
  • Try googling Catamenial Epilepsy. I've had similar symptoms for 4 years now, and they seem to be cyclacle, which would indicate a connection to hormones. I started getting these episodes when I was 49, and am pre-menopausal. I've been to a neurologist who also thinks it could be catamenial epilepsy, which involves the temporal lobe, and have had numerous brain mri's (all checked out ok) and have had eeg's (one was about 90 minutes long, the other was a 3 night ambulatory EEG at our house), and since both of these were done when I was not experiencing any symptoms (my symptoms only last from 12-18 hours only on certain days) they did not show any significant epileptic activity. They do seem to be diminishing in frequency, only coming now about every 50-60 days, but it is scary, I know. The deja-vu is overwhelming sometimes, and I feel like I'm having a slight stroke when I zone-out. I also am pre-warned with an aura of a very sweet smell. These episodes last about 10 seconds, coming about every hour for about 12-18 hours. Since mine have started coming now about every 60 days or so at this point (when I first had them at age 49, they came about every 20-30 days), I deal with it and have not pursued meds etc. I hope this helps.
    Anonymous 42,789 Replies Flag this Response
  • I have not found any new information, though I am surprised at the new posts that have symptoms shockingly similar to mine (having the same trigger), and this somewhat pushes me to believe that we are only suffering temporal lobe seizure, after all. Brown, your symptoms sound similar, though I do not get headaches during my episodes. Perhaps your seizures are causing migraines, or the other way around. I would seek help the next time it happens, but that would just be me being cautious as I have never experienced a migraine.I'm continuing to look for new information, and if I find anything useful I will be sure to post it. Thanks a tom for all the contributions, everyone.
    Anonymous 42,789 Replies Flag this Response
  • get off the sucralose, splenda and aspartame- found in diet sodaseverything really, even in gum and children's vitamins : \read labels and do not eat this stuff anymore it is poison and it sounds like you have most of the symptomsread about them on the internet check the symptoms for each one- disregard the Industry(company who made the product) advertisements on different sites that tell you they are safe - there are enough testimonials and people who will tell you on facebook groupsyoutubeand google that they were harmed by them and know because they were where you are and stopped eating them and now are better.Trial and error, they learned what was causing them these problems- now you know too!
    founddog 188 Replies Flag this Response
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