Discussions By Condition: I cannot get a diagnosis.

Spontaneous Mono-Lateral Lockup?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: theroachyjay
  • February 22, 2009
  • 05:30 AM

I will do my best to describe the symptoms of this thus-far undiagnosed condition. I have seen an ordinary doctor, a neurologist and a chiropractor, all of which could not explain it. I have had several extensive tests (including MRI and blood tests) and all of which have turned out normal. However, none of these tests were performed during an actual spell. This is what happens:

Multiple times throughout any given day, I will loose control over the right side of my body. When such a spell occurs, I can feel my right leg and arm tense up and the most I can do is squeeze my hand into a fist or curl my toes until it goes away. It also affects the right side of my face, thereby making it difficult to communicate if I am mid-speech. Presently, this lasts for approximately ten seconds at a time (in the past, they only lasted from five to seven seconds).

I have come to recognize that the spells seem to be triggered by a sudden movement. Most commonly, they occur when I move from a sitting position to a standing position. They have also occurred at times when I would get out of bed or go from a walk into a run. More recently, even merely walking down stairs has been able to trigger a spell.

No one has been able to diagnose this or even suggest a possible condition. The neurologist suggested a series of drugs to take but did not have any real basis behind that. Basically, she wanted me to "try them and see if they worked" -- I decided against that.

I have been afflicted by this condition for approximately two years now. The spells are becoming more frequent and lasting longer.

I am sixteen years of age and physically male (mentally/spiritually female). I am not on any medication. Does anyone have any idea what may be causing this and/or what I should do?

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  • I will do my best to describe the symptoms of this thus-far undiagnosed condition. I have seen an ordinary doctor, a neurologist and a chiropractor, all of which could not explain it. I have had several extensive tests (including MRI and blood tests) and all of which have turned out normal. However, none of these tests were performed during an actual spell. This is what happens:Multiple times throughout any given day, I will loose control over the right side of my body. When such a spell occurs, I can feel my right leg and arm tense up and the most I can do is squeeze my hand into a fist or curl my toes until it goes away. It also affects the right side of my face, thereby making it difficult to communicate if I am mid-speech. Presently, this lasts for approximately ten seconds at a time (in the past, they only lasted from five to seven seconds).I have come to recognize that the spells seem to be triggered by a sudden movement. Most commonly, they occur when I move from a sitting position to a standing position. They have also occurred at times when I would get out of bed or go from a walk into a run. More recently, even merely walking down stairs has been able to trigger a spell.No one has been able to diagnose this or even suggest a possible condition. The neurologist suggested a series of drugs to take but did not have any real basis behind that. Basically, she wanted me to "try them and see if they worked" -- I decided against that.I have been afflicted by this condition for approximately two years now. The spells are becoming more frequent and lasting longer.I am sixteen years of age and physically male (mentally/spiritually female). I am not on any medication. Does anyone have any idea what may be causing this and/or what I should do?I'm pretty sure now that this is Paroxysmal Kinesigenic Dyskinesia.
    Anonymous 42789 Replies
    • January 22, 2010
    • 11:14 PM
    • 0
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