Discussions By Condition: I cannot get a diagnosis.

spinal menegitis after effects

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: afiddelke
  • December 15, 2006
  • 06:04 AM

In 1994 I went to the hospital because I was in severe pain from not being able to go to the bathroom all day. I dont remember much after getting to the hospital, but I was told that it took 3 hours to empty my bladder. I woke up in a hospital bed and after a little bit my mom told me to uncross my feet. Then a couple minutes later she said something about it again and I said I did. I was paralyzed from my arms down. Luckily it did not effect my lungs. After about a week or so my arms were better, but it was about 6 months before I was able to walk. They said I would never walk again. They were wrong. Now 12 years later I still have many problems and nobody can tell me why. My bladder does not work right, my legs and back have a bit of lose of sensation, if I step on cold my legs lock up and I instantly have to go to the bathroom, I get headaches alot, etc... I have been wetting the bed since I was 17 years old. I have felt old since I was 17 years old. I have not been able to run since I was 17 years old. I have been told I dont know since I was... its really upsetting when you cant go somewhere because you are afraid that you might wet your pants. Or go to the bathroom while being with your husband. Doctor tell you that you should not have kids right now not with all your problems. So in other words never because nobody knows how to fix my problems. Cant get disability because it dont look like there is anything wrong with me. The tests, like x-rays, bladder stuff, mri's, etc... all look okay. I had a device put in my back that is attached to the nerves that stimulate my bladder because the doctor said I dont know what is wrong with your bladder but this should help... and 2 years later it still does not work. They keep adjusting it, I've tried every medication, and nothing. I cant seem to find a doctor that knows anything at all about menegitis. Sometimes I just wish .... my parents told me that I almost died from it.

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3 Replies:

  • Sorry so late. Read about ARACHNOIDITIS. You fit the symptoms & the method of getting it. Also articles on net by Dr Sarah Smith who also has this condition. A good support group is COFWA.
    Anonymous 42,789 Replies Flag this Response
  • Almost sounds like a type of polio or guillain-barre.
    rad-skw 1,605 Replies Flag this Response
  • Cauda Equina Syndrome &/or Arachnoiditis. It is a recognized condition for disability approval & can be acquired by having menengitis. Sometimes takes years to rear its ugly head. Everything you say fits. Many Drs. will not recognize this condition as it is supposedly rare. Not as rare as they think. You will need an MRI with contrast to see it. It can also be given to you by Drs administering epidurals, steroid injections in spine,myleograms, etc. It can be their dirty little secret. If they hit the wrong spot they may disable you for life & you cannot sue because you signed a release. As far as I know it is only diagnosed by the contrast Mri & how many of the symptoms you have. Sounds like you have several. Many people are incoreectly diagnosed with MS.
    Anonymous 42,789 Replies Flag this Response
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