Discussions By Condition: I cannot get a diagnosis.

son is sensitive to heat, any ideas?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: junesays
  • May 14, 2013
  • 03:00 AM

Hi there. Thank you for taking the time to read this. I'm at a loss and I'm hoping someone could suggest something to research that might lead me in the direction of what's happening. My son is 8. He's a very active kid, normal weight and height. In the summer, if he's running around outside, he suffers from what I thought was heat exhaustion. First, he gets red faced, then he starts sweating profusely, and within minutes, he's crying because of a sudden, horrible headache, he feels sick to his stomach, his eyes are glasses, it's almost like he's spaced out for a second. His body temperature is normal during this time. If he sits and rests, he recovers in 10-20 minutes. He's crabby and tired afterwards but he's able to keep playing, etc. He has had more than one in a row. When it's hot out, he can only run a few bases during base ball practice before he "overheats". I just don't understand. I feel there has to be something more to it than just heat sensitivity. His bloodwork came back normal. They did find that his heart is about 22% smaller than it should be. They started him on Sodium Chloride tablets, which didn't make a bit of difference. He took those for about 8 months before discontinuing them. His heart functions, wall thickness and proportions were all normal. They ruled out thyroid issues through bloodwork. I just don't understand. We went back to the doctor today, because it's still happening and he basically said it could be some rare genetic disease, or some form of diabetes but that he really wasn't worried at this time. I think part of the problem is that in the doctor's office, he looks perfectly fine. But they don't see him playing tag when it's 65 and sunny out. If they were to see him in that environment, they'd see the problem. They did have him do a stress test last summer, which I figured would have solved everything, but 6 minutes in, he said he was tired (he was more bored, I think, his face wasn't red or anything) and so they ended the test and said everything tested just fine.I wish everything was just fine. Has anyone heard of this? Anything I can look into or recommend to the doctors to check out? Any ideas would be great. Thanks so much. June

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