Discussions By Condition: I cannot get a diagnosis.

Son is 15, severe nausea & vomiting for mths.

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: bsmiller
  • October 20, 2006
  • 06:11 AM

My son is 15. Approx. 11 months ago he would periodically wake up with nausea and feeling of having to vomit. By 10 or 11 am it would go away. This would happen about 1-2 x week. Three months ago is started daily and with vomiting till 1-2 pm. After a week of this, I took him to the Dr. He put him on anti-nausea pill that he has to take everymorning. It helps with the vomiting, but he still can't function well till the afternoon. This began with an abundance of tests being ordered. All sorts of blood tests, ct scans, ultrasouds, UGI. With no results. Meanwhile he is still very sick, weak, tired, has headaches, constant low back ache. He is currently on home medical schooling till we can't get him better. He doesn't eat very well. He is 6' tall and weighs 116-120 lbs. The doctors are baffled. He has never had any serious illness before and always has been a pretty healthy kid.
He is seeing a GI specialist at Standford. He was suppose to have a Endoscopy yesterday, however, due to insurance authorization not being received in time, it didn't happen. We hope to get that done next month.
Meanwhile, my 15 year old boy's quality of life is merely nul.
It's so frustrating that after 3 months of tests, we can't seem to find out what is wrong with him.
Does anyone have any suggestions or similiar experience?
If he doesn't take his anit-nausea pill, he would vomit every morning.

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10 Replies:

  • I work as a typist for a gastroenterology practice and two things that it sounds like to me would be either gastroparesis where the motility of the stomach is impaired thus the continual nausea and vomiting, or cyclical vomiting syndrome which might also include the headache complex. Just a couple of ideas for you. Both can have quite sudden onsets without apparent trigger such as a bout of gastro or something like that. The endoscopy should help but sometimes for gastroparesis you need to have a gastric emptying study done to see how the stomach deals with food and how quickly it moves it through the system. That is the "gold standard" test for gastroparesis so if the endoscopy still shows nothing then that would be the next thing to look at provided that neurological causes have been excluded.
    Anonymous 42789 Replies
    • October 20, 2006
    • 09:40 PM
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  • any headache or visual problems?
    Anonymous 42789 Replies
    • October 20, 2006
    • 10:33 PM
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  • any headache or visual problems? Yes, headaches pretty much on a daily basis. But no visual problems.
    bsmiller 4 Replies
    • October 20, 2006
    • 10:34 PM
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  • CT scans are not very helpfull in evaluating posterior fossa of the brain where the "vomiting" center is. I would order MRI with contrast to rule out tumor of the brain stem. If negative, lumbar puncture in the morning with checking the opening pressure and analisys for chronic meningitis is another option. Projectile vomiting with no relief of symptoms is more characteristic for central-brain related-causes. At this age severe obstuctive sleep apnea is not common but if he loudlysnores and makes pauses in his breathing-consider sleep study. This studies can rule out most of the possible brain causes.
    Anonymous 42789 Replies
    • October 21, 2006
    • 01:59 AM
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  • Have you considered food allergies? While you wait for the endoscopy, try putting him on an anti inflammation diet, which will reduce his exposure to the top eight food allergens. Doing the diet is hard at first cuz most foods contain ingredients that are made from at least one of the top eight allergens, but it’s worth the work. I had a friend who had similar symptoms as your son. It took the doctors 3 years to diagnoses him with a wheat, shellfish, and egg allergy. But now he’s as healthy as a horse. It's worth a try, and just eating simple cooked easily digestible foods at least may lessen the vomiting. Just a thought. Good luck!
    Anonymous 42789 Replies
    • October 21, 2006
    • 07:26 PM
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  • Have you considered anxiety disorder? Our daughter, 9 at the time, suddenly began having big gastric problems, specifically severe nausea and vomiting (almost like clockwork every night, usually after she'd been asleep for an hour or so), almost always in the late evening and often first thing in the morning. One of the worst incidents was her doubling over in pain while walking to school, and crying terribly.After every gastric test known to man, the doctor suggested her tummy pains were pyschosomatic in origin. We were able to get her into an excellent children's psychiatric program that dealt with worry. It took drugs and therapy, but she rapidly stabilized. This problem would recur every fall when school started, but by Grade 11, a light daily dose of antidepressants was completely relieving her symptoms.Nine years later, our third daughter is going through a similar experience. This time, we have had to wait a long time to see the worry group. It is ******n her to go with no treatment. These days, GP's will not prescribe anything at all past tylenol...and yogurt. They are too afraid of the link between anti-depressants and increased suicide rates in some drugs. So they leave the kids untreated pending a psychiatric evaluation, which can take weeks and weeks.Best of luck pursuing your diagnosis.
    Anonymous 42789 Replies
    • September 6, 2007
    • 09:50 PM
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  • I had similar vomiting with a headache over one eye. It turned out to be Narrow-Angle Glaucoma Attacks. I nearly lost my eyesight because no one knew what it was. The vomiting went on for 2 months straight before I got a diagnosis.
    Anonymous 42789 Replies
    • September 7, 2007
    • 08:19 AM
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  • Check for brain tumors,have an MRI done or an EEG.
    Anonymous 42789 Replies
    • September 7, 2007
    • 11:42 AM
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  • poisening?
    Anonymous 42789 Replies
    • September 8, 2007
    • 11:15 PM
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  • I understand what your going through my son is 15 also. The GI doctor diagnosed him with Gastroparesis. Ever since he was little I've had him at the ER for vomiting sometimes I was told that he had the flu, but most of the time he had double ear infections,and sinus infections. the last few years has gotten worse and of course we went to the ER, last April he was admitted in the hospital. Since 2007 he has had problems with his stomach, they ran all the usual tests and ct scans. On everyone of his scans(he has had about 4) has shown that he has a partial obstruction, when the ER doctor admitted him his blood pressure was high, and his heart was racing. So we had to get a referral to see the GI specialist. This doctor ran all sorts of tests on my son. He had a colonoscopy done but the doctor couldn't get past in the small intestine, then he went through an endoscopy where they found that his stomach was very full, so we ended up doing a Gastric Emptying Study and that was confirmed. They put him on Erythrocin it helped for awhile but he ended up having an attack last week, so the doctor put him on Reglan and set us up for a surgeon for him to have surgery. I will keep you and your son in my prayers, our kids shouldn't have to go through this they are so young. Don't give up
    Anonymous 42789 Replies Flag this Response
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