My son was born in August 05. He was 7 weeks premature and at 6 months he stopped gaining weight.
symptoms are as follows
failure to thrive
wormian bones in skull
sclerodermoid skin changes
accrostolyosis of distal phalanges
clubbing of fingers
anyone have any suggestions? Drs at CHOP are baffled.
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Is it sensitive skin or something else?