Discussions By Condition: I cannot get a diagnosis.

Someone please help me........

Posted In: I cannot get a diagnosis. 19 Replies
  • Posted By: unwell person
  • September 7, 2009
  • 09:29 AM

........Diagnose myself, I'm Female 18 and have been suffering from ill health for ages my symptoms include;

*Insomnia, (fatigue)
*Poly Cystic Overies Syndrome,
Un explainable weight gain,
*weak muscles,
pale skin,
*lump on back of neck,
Irritable Bowel Syndrome,
feelings of pressure inside the head (like my brain in too big and is being crushed by my skull)
swollen feet, ancles,
*night sweats,
*bacterial infections,
*coughing up blood,
*breast pain (really bad!)
*kidney pain,
*frequent urination,
headaches,
stomach pain.
*stretch marks

I could go on and on, my doctors just think I'm making it all up or that I'm severly depressed, which I'm not, except feeling sad about feeling ill all the time, originally I thought it was Hypothyroidism and was able to get it prescribed but now even on the medication (I've been on it for 2 years) I feel unwell again, developing new symptoms that my doctor doesn't care about (the ones with a star)
Then I came across 'cushings syndrome' I'm roughly the right age and range and it explains so much, so I went to my doctor to ask for a test and my level came back 510 the range being between 138-690 I know its within normal range but could it still be cushings? Does anyone know?

If you think its anything else could you please let me know by posting.

Thanks Susanxxx :)

Reply Flag this Discussion

19 Replies:

  • ........Diagnose myself, I'm Female 18 and have been suffering from ill health for ages my symptoms include;*Insomnia, (fatigue)*Poly Cystic Overies Syndrome,Un explainable weight gain,*weak muscles,pale skin,*lump on back of neck,Irritable Bowel Syndrome,feelings of pressure inside the head (like my brain in too big and is being crushed by my skull)swollen feet, ancles,*night sweats, *bacterial infections,*coughing up blood,*breast pain (really bad!)*kidney pain,*frequent urination,headaches,stomach pain.*stretch marksI could go on and on, my doctors just think I'm making it all up or that I'm severly depressed, which I'm not, except feeling sad about feeling ill all the time, originally I thought it was Hypothyroidism and was able to get it prescribed but now even on the medication (I've been on it for 2 years) I feel unwell again, developing new symptoms that my doctor doesn't care about (the ones with a star) Then I came across 'cushings syndrome' I'm roughly the right age and range and it explains so much, so I went to my doctor to ask for a test and my level came back 510 the range being between 138-690 I know its within normal range but could it still be cushings? Does anyone know?If you think its anything else could you please let me know by posting.Thanks Susanxxx :)78 views and still no replies can no one help me? :(
    unwell person 9 Replies
    • September 8, 2009
    • 00:13 PM
    • 0
    Flag this Response
  • 78 views and still no replies can no one help me? :(Hi Sorry to hear of your problems, i can't be much help but wanted to wish you all the best.i am in the UK and am also very sick, I have not eaten in 3 months I vomit every time I eat, I am so weak and light headed I don't think from not eating, I have lost 10KG in a couple of months I look like carp I am waiting to see a specialist on the NHS next week but to be honest I cant see me being alive this time next week,Ian
    Anonymous 42789 Replies
    • September 8, 2009
    • 00:32 PM
    • 0
    Flag this Response
  • You may want to see my comment (i.e. Curly Stooge) at http://forums.wrongdiagnosis.com/showthread.php?t=63429 - I explained there how a Chinese Traditional Medicine (TCM) doctor helped my mom. Your whole body is in trouble. Do "go on and on", make a list of everything you can think of, and take that to a TCM doctor. They want to know, and may cure you in a very short time, as you are young.
    Curly Stooge 319 Replies
    • September 8, 2009
    • 09:07 PM
    • 0
    Flag this Response
  • You may want to see my comment (i.e. Curly Stooge) at http://forums.wrongdiagnosis.com/showthread.php?t=63429 - I explained there how a Chinese Traditional Medicine (TCM) doctor helped my mom. Your whole body is in trouble. Do "go on and on", make a list of everything you can think of, and take that to a TCM doctor. They want to know, and may cure you in a very short time, as you are young.As much as I want to shoot myself for saying this, but have you been checked out for psychosomatic disorder. That doesn't mean you are at all psychotic or to blame for all of this, but it is just a suggestion. And if that is the case, CBT is an extremely good treatment for it as well as therapy to help you deal with anxiety and such.Hope this helps.
    Anonymous 42789 Replies
    • September 9, 2009
    • 07:46 PM
    • 0
    Flag this Response
  • ........Diagnose myself, I'm Female 18 and have been suffering from ill health for ages my symptoms include;*Insomnia, (fatigue)*Poly Cystic Overies Syndrome,Un explainable weight gain,*weak muscles,pale skin,*lump on back of neck,Irritable Bowel Syndrome,feelings of pressure inside the head (like my brain in too big and is being crushed by my skull)swollen feet, ancles,*night sweats, *bacterial infections,*coughing up blood,*breast pain (really bad!)*kidney pain,*frequent urination,headaches,stomach pain.*stretch marksI could go on and on, my doctors just think I'm making it all up or that I'm severly depressed, which I'm not, except feeling sad about feeling ill all the time, originally I thought it was Hypothyroidism and was able to get it prescribed but now even on the medication (I've been on it for 2 years) I feel unwell again, developing new symptoms that my doctor doesn't care about (the ones with a star) Then I came across 'cushings syndrome' I'm roughly the right age and range and it explains so much, so I went to my doctor to ask for a test and my level came back 510 the range being between 138-690 I know its within normal range but could it still be cushings? Does anyone know?If you think its anything else could you please let me know by posting.Thanks Susanxxx :)I have been going through this for years with no help from the medical community. It's almost like they just don't want to be bothered with us because we are not a quick fix. I have lost faith in the medical industry while suffering this invisible illness. I have been told that I have everything from Fibromyalgia, PCOS, GAD, IBS, Endometriosis, Arthritis to Bipolar Disorder... they still haven't fixed anything and 15 years of my life have been stolen away with my suffering. I have no hope left.. I hope that you can have better outcome.
    Anonymous 42789 Replies
    • September 10, 2009
    • 05:33 AM
    • 0
    Flag this Response
  • As much as I want to shoot myself for saying this, but have you been checked out for psychosomatic disorder. That doesn't mean you are at all psychotic or to blame for all of this, but it is just a suggestion. And if that is the case, CBT is an extremely good treatment for it as well as therapy to help you deal with anxiety and such.Hope this helps.I do not have a mental disorder, I don't want to be ill and I don't try to be either, this is half the reason I never see the doctor, is because instead of trying to help me they'll just label me crazy.Look a mental disorder wouldn't cause you to cough up blood now would it, and thought I'm not particulally bothered by it I'd still like to know why I'm doing it. Why does that make me crazy?Of course I'm stressed, I have been feeling unwell for years, and all people tell me is that it must all be in my head, nobody actually tries to test me for a physical problem. Having said that I do feel like a very laid back person, and I've had a good eventful life nothing to get upset about.So any other suggestions would be welcome.
    unwell person 9 Replies
    • September 10, 2009
    • 09:53 AM
    • 0
    Flag this Response
  • Get tested for Celiac disease NOW. You have a lot of symptoms that fit the diagnosis: fatigue, PCOS, IBS, weight gain.
    Anonymous 42789 Replies
    • September 10, 2009
    • 07:45 PM
    • 0
    Flag this Response
  • Get tested for Celiac disease NOW. You have a lot of symptoms that fit the diagnosis: fatigue, PCOS, IBS, weight gain.Thanks, this is exactly the sort of help I'm looking for :)
    unwell person 9 Replies
    • September 11, 2009
    • 10:09 AM
    • 0
    Flag this Response
  • you mentioned Bacterial Infections.. which ones?where did you grow up and do/did you have an outdoor lifestyle?have you considered Lyme and other related Tick-Borne diseases?--sonicbmx
    sonicbmx 44 Replies
    • September 12, 2009
    • 02:25 AM
    • 0
    Flag this Response
  • ........Diagnose myself, I'm Female 18 and have been suffering from ill health for ages my symptoms include;*Insomnia, (fatigue)*Poly Cystic Overies Syndrome,Un explainable weight gain,*weak muscles,pale skin,*lump on back of neck,Irritable Bowel Syndrome,feelings of pressure inside the head (like my brain in too big and is being crushed by my skull)swollen feet, ancles,*night sweats, *bacterial infections,*coughing up blood,*breast pain (really bad!)*kidney pain,*frequent urination,headaches,stomach pain.*stretch marksI could go on and on, my doctors just think I'm making it all up or that I'm severly depressed, which I'm not, except feeling sad about feeling ill all the time, originally I thought it was Hypothyroidism and was able to get it prescribed but now even on the medication (I've been on it for 2 years) I feel unwell again, developing new symptoms that my doctor doesn't care about (the ones with a star) Then I came across 'cushings syndrome' I'm roughly the right age and range and it explains so much, so I went to my doctor to ask for a test and my level came back 510 the range being between 138-690 I know its within normal range but could it still be cushings? Does anyone know?If you think its anything else could you please let me know by posting.Thanks Susanxxx :)Don't let the doctors make you think like you are crazy or making this up. Those types of doctors simply don't know what to do and it makes them feel better about their lack of diagnostic skills by just saying that it is all in your mind. Don't believe it. Perhaps you should try seeing a D.O. instead of an MD. They are supposed to be more involved with mind / body than their MD counterparts. And I have to agree about getting checked out for celiac disease. That might be your answer. You have a long life ahead of you. Get this issue resolved so you can get on with your life. Peace.
    Anonymous 42789 Replies
    • September 12, 2009
    • 02:51 AM
    • 0
    Flag this Response
  • Hi Susan: I have many of the same symptons you have, and recently found out what the issues are. Most of the symptons come from a lack of nurishment. Your body isn't obsorbing what you are eating. The lumps that have shown up may be that your body is not able to move mucus or toxins from your body (according to my accupuncturist). Some of your other symptons may be a sign that your blood sugars are out of balance and you are on the verge or have already become a diabetic. The ovarian cysts, according to my doctor and research out of the University of Michigan, are from a lack of Iodine. My doc said the research showed that when women with fibroid tumors and ovarian cysts added iodine to their diet in over 90% of the cases, the cysts went away. I've been adding Iodine by "painting" it on my arm. You can buy a small tube of it from the pharmacy at walmart. When the "yellow" goes away that means the body has absorbed it. Some of my previous doctors accused me of being crazy also, because of my laundry list of symptons like yours. Included in that list was the weight gain, goiter, thyroid issues, vision loss, hearing loss, etc. etc. etc.... Based on my personal experience I have a way different suggestion and course of treatment to suggest (than most people). I am not a doctor or medical professional. This is just my own line of thinking...Western Medicine isn't working. So it's time to explore alternative medicine (which is typically Eastern). Thought #1 - your body is starved for nutrition. It needs to be able to use what you are eating. To this end I would suggest entering a raw food diet program that has helped many "uncurable" health cases. There are centers all across the US, the one I remember is in Union City, Michigan (I think they call the town Hodunk). It is called the creative health institute and can be found online (I do not work for or own this organization). I attended there in the past and made great progress. The raw food program, in the 1st week, put you into a detox and high nutrion program where you drink a ton of greens and nutritious liquids. Tastes terrible, but has been known to work miracles. It is possible to change your lifestyle and solve many of these illnesses. Let me just say though, that it is difficult to go 100% raw and can often take a number of starts and stops before it takes. That's okay. The idea is to make a significant change to your lifestyle. Thought #2 - in Eastern medicine, they don't look for a cure to the symptons, they look at the symptons and try to trace them to the root of the cause and treat the root. This is the opposite of Western medicine. I have found an accupuncturist here in Michigan who is amazing, in the last month she has gotten my vision so I can see again (and this is after spending 6 weeks with an eye doctor who couldn't get me a prescription that would work, as it turns it, it wasn't the prescription). The vision issue, according to her was a result of stress and a liver issue. (I had been in a major car accident.) Thought #3 - I am not saying that aren't facing major health issues, but while you are waiting to get into your next "specialist," why not spend a couple of weeks in a high nutrition program and see if some of these problems start going away. I'll be curious to see what you think.
    Salmey 3 Replies
    • September 12, 2009
    • 05:30 AM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • you mentioned Bacterial Infections.. which ones?where did you grow up and do/did you have an outdoor lifestyle?have you considered Lyme and other related Tick-Borne diseases?--sonicbmxi had a bacterial lung infection, along with one in my breast.
    unwell person 9 Replies
    • September 12, 2009
    • 09:57 AM
    • 0
    Flag this Response
  • Hi Susan: I have many of the same symptons you have, and recently found out what the issues are. Most of the symptons come from a lack of nurishment. Your body isn't obsorbing what you are eating. The lumps that have shown up may be that your body is not able to move mucus or toxins from your body (according to my accupuncturist). Some of your other symptons may be a sign that your blood sugars are out of balance and you are on the verge or have already become a diabetic. The ovarian cysts, according to my doctor and research out of the University of Michigan, are from a lack of Iodine. My doc said the research showed that when women with fibroid tumors and ovarian cysts added iodine to their diet in over 90% of the cases, the cysts went away. I've been adding Iodine by "painting" it on my arm. You can buy a small tube of it from the pharmacy at walmart. When the "yellow" goes away that means the body has absorbed it. Some of my previous doctors accused me of being crazy also, because of my laundry list of symptons like yours. Included in that list was the weight gain, goiter, thyroid issues, vision loss, hearing loss, etc. etc. etc.... Based on my personal experience I have a way different suggestion and course of treatment to suggest (than most people). I am not a doctor or medical professional. This is just my own line of thinking...Western Medicine isn't working. So it's time to explore alternative medicine (which is typically Eastern). Thought #1 - your body is starved for nutrition. It needs to be able to use what you are eating. To this end I would suggest entering a raw food diet program that has helped many "uncurable" health cases. There are centers all across the US, the one I remember is in Union City, Michigan (I think they call the town Hodunk). It is called the creative health institute and can be found online (I do not work for or own this organization). I attended there in the past and made great progress. The raw food program, in the 1st week, put you into a detox and high nutrion program where you drink a ton of greens and nutritious liquids. Tastes terrible, but has been known to work miracles. It is possible to change your lifestyle and solve many of these illnesses. Let me just say though, that it is difficult to go 100% raw and can often take a number of starts and stops before it takes. That's okay. The idea is to make a significant change to your lifestyle. Thought #2 - in Eastern medicine, they don't look for a cure to the symptons, they look at the symptons and try to trace them to the root of the cause and treat the root. This is the opposite of Western medicine. I have found an accupuncturist here in Michigan who is amazing, in the last month she has gotten my vision so I can see again (and this is after spending 6 weeks with an eye doctor who couldn't get me a prescription that would work, as it turns it, it wasn't the prescription). The vision issue, according to her was a result of stress and a liver issue. (I had been in a major car accident.) Thought #3 - I am not saying that aren't facing major health issues, but while you are waiting to get into your next "specialist," why not spend a couple of weeks in a high nutrition program and see if some of these problems start going away. I'll be curious to see what you think.I naturally have a disposition to be suspicious of alternative health therapies, but I have been seeing a reflexologist, she has said that my 'toxins' are in clumps and she does her best to remove them, but after numerous sessions I feel no better.Your diet theory is interesting, unfortunately I am a fussy eater, and I also have a sensitive stomach, I am practically a vegetarian and I have IBS which means raw food wouldn't sit right in my stomach!I can see how my diet could effect my weight and my energy levels but can't see it being able to cause this much damage to my entire body, but i don't know.
    unwell person 9 Replies
    • September 13, 2009
    • 02:15 PM
    • 0
    Flag this Response
  • Have you checked into tick borne diseases? I have 2 and have a lot of odd symptoms, there are so many symptoms for so many different tick diseases. It took me 2 1/2 years to find a doctor in Missouri that believed there was something wrong AND who knew how to help me. I was diagnosed with CFS, Fibro, irritable bowel, depression, and anxiety before figuring out what was causing my problems. My family even questioned my sanity, lol. Hang in there and good luck.
    JulieR 6 Replies
    • September 14, 2009
    • 10:49 PM
    • 0
    Flag this Response
  • I agree with the others that you should work on your nutrition and get tested for celiac. I might do the same, because I seem to have some similar symptoms. I think we also have something else in common - we worry too much about what's wrong.I'm NOT going to say these symtoms are all in your head, but what I will say is that you have the mental ability to make it better. You'd be surprised at how much your attitude can have to do with your health.Here's some advice that I hope really helps; I'm also trying to apply it myself, and I think it's having a positive effect on my overall wellbeing:- BE POSITIVE. If you're constantly worried and stressed, you can make yourself more sick. seriously. Be calm, try to stay positive, and dont sweat the small stuff. - DONT STRESS OUT. If you're worried about something, try and do something relaxing for yourself to get your mind off it for a while (I like hot bubble baths for example, while playing Enya. very relaxing). Dont avoid solving your problems altogether, but try to get away from obsessing about them; it can only make you more upset and stressing about a problem doesnt make it go away.- EAT HEALTHY. Try eating a diet of lean meats and vegetables, cut out some of the fat and carbs. Eat whole grain bread instead of the white stuff. When you eat more healthy, you'll notice a drastic change on your attitude and the way your body feels. Also, if you smoke - QUIT. If you drink in excess - QUIT. one glass of red wine per day is ok.- EXERCISE. Exercise is a great way to stay in shape. But it's also a great way for your body to energize for the day, allowing you the energy you need. It also relieves stress too. I hear people complain that they dont have time to go to the gym, but have you ever heard someone complain "man, i went to the gym today, and i feel awful". no, cause when you complete a workout you'll feel great. Work up to it - start with brisk daily walks, or go swimming. Just get in a habit of some form of daily activity.- SWITCH DOCTORS. The last doctor I saw made me feel much more confident that my problems could be solved, and gave real-life helpful advice; whereas the others before him made me feel stupid and out of place, offering no help whatsoever. If your doctor makes you feel hopeless every time you see them, see someone else! It can be tough, but try to find a doctor that specializes in holistic health - one that understands that your health is a balance of all of your lifestlye habits, and they are all interlinked.Good luck, and good health.
    Anonymous 42789 Replies
    • September 15, 2009
    • 07:32 AM
    • 0
    Flag this Response
  • Hi Susan, I am similar to you and have been suffering many general symptoms, you mentioned you had a bacterial infection, have you ever thought to look at candida? Go to www.candidafree.net and read the symptoms and take the questionaire. By the looks of things you may well be suffering from this. For years now I had been driving a car with high levels of mold in it as it was leaking water, I started to get various symptoms and just felt generally sick, many of the symptoms are both physical and phycological. At the moment I am on a candida diet, taking anti fungal supplements and probiotics.
    freeryd3r 11 Replies
    • September 16, 2009
    • 00:22 AM
    • 0
    Flag this Response
  • susan-find a new dr and keep looking into the cushings/adrenal route. you could have fatigue not full blown, and need treatment. has anyone done the autoimmune thyroid panels?........Diagnose myself, I'm Female 18 and have been suffering from ill health for ages my symptoms include;*Insomnia, (fatigue)*Poly Cystic Overies Syndrome,Un explainable weight gain,*weak muscles,pale skin,*lump on back of neck,Irritable Bowel Syndrome,feelings of pressure inside the head (like my brain in too big and is being crushed by my skull)swollen feet, ancles,*night sweats, *bacterial infections,*coughing up blood,*breast pain (really bad!)*kidney pain,*frequent urination,headaches,stomach pain.*stretch marksI could go on and on, my doctors just think I'm making it all up or that I'm severly depressed, which I'm not, except feeling sad about feeling ill all the time, originally I thought it was Hypothyroidism and was able to get it prescribed but now even on the medication (I've been on it for 2 years) I feel unwell again, developing new symptoms that my doctor doesn't care about (the ones with a star) Then I came across 'cushings syndrome' I'm roughly the right age and range and it explains so much, so I went to my doctor to ask for a test and my level came back 510 the range being between 138-690 I know its within normal range but could it still be cushings? Does anyone know?If you think its anything else could you please let me know by posting.Thanks Susanxxx :)
    yearsandcounting 2 Replies
    • October 18, 2009
    • 11:54 AM
    • 0
    Flag this Response
  • susan-find a new dr and keep looking into the cushings/adrenal route. you could have fatigue not full blown, and need treatment. has anyone done the autoimmune thyroid panels?Thankyou so much for your advice, I will try and find a new dr, can you tell me what an autoimmune thyroid panel is?
    unwell person 9 Replies
    • October 18, 2009
    • 06:07 PM
    • 0
    Flag this Response
  • Thankyou so much for your advice, I will try and find a new dr, can you tell me what an autoimmune thyroid panel is?The blood tests recommended for thyroid (including people who are commonly misdiagnosed should retake when you find a new/different/same dr). I have been struggling with an under treated thyroid problem with adrenal fatigue, PCOS for the last 10 years, and in the last 2 years have been diganosed or I have the same complaints you have listed. In the last year, although I am not 100% better, I am slowly getting better! Still trying to figure out the IBS/Celiacs/weight and hairless issue, but I am much improved. http://www.stopthethyroidmadness.com has helped me - at least not feel like I am losing my mind or that I am alone. * TSH But this lab is only for diag*no*sis of hypo*pi*tui*tary, NOT to diag*nose or dose your hypo by.* Free T4 and Free T3 (note the word “free” – important.)* Thy*roid Anti*bo*dies (anti-TPO and TgAb. YOU NEED BOTH.)* Ferri*tin (and do stress FERRITIN, not just RBC)* Adre*nal Cor*ti*sol levels (but we strongly recom*mend saliva tests, not the one time blood test your doc*tor will do. See below, because you don’t need a presc*rip*tion)* B-12 and Folate, estro*gen, pro*ges*te*rone, tes*tos*te*rone, DHEA, Vita*min D (25-hydroxyvitamin Dlab test)…plus others your doc*tor may recom*mend.* Reverse T3 (to be tes*ted when your Free T4 is in the upper part of the range with con*ti*nuing symp*toms. You need to do it at the same time you do free T3 to mea*sure the ratio)(list taken from http://www.stopthethyroidmadness.com/recommended-labwork/)Feel better, and find a dr who listens. There aren't many, but they do exist! :D-shay
    yearsandcounting 2 Replies
    • October 18, 2009
    • 06:27 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.