Discussions By Condition: I cannot get a diagnosis.

Someone Please Help Me!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • January 29, 2008
  • 07:23 AM

At this point I don't know what to do....I am 25 years old and for the past 8 months my life has been completely turned upside down. It all started back in August, I started episodes of extreme abdominal pain, It would be so bad that I couldn't move, I went to the ER multiple times, I had CT scans, ultrasounds and x-rays, they ruled out everything from appendictis to cancer, I was diagnosed with Stage 4 Endometrosis two years ago so the ER doctors just told me that it was probably my endometrosis acting up and the pain was most likely radiating from my pelvis to my abdomen, they would give me morphine injections for the pain and then discharge me with a prescription for pain meds, then in September I got exceptionally ill for several days, I had a fever, vomiting, diarrhea, and the strange abdominal pain, my blood pressure was also dangerously low (60/40, 50/20 and so on) my physican hospitalized me for a week and a half and I was seen by everyone (cardiologist,internist,gastro,even pysch) and the only diagnosis I ever got was that I had a "bout of ecoli bacteria in my urine" and that I "may possibly have Crohn's disease but they weren't sure" I was discharged with the same pain meds even though my symptoms hadn't improved. then about two weeks after I was discharged I began having dizzy spells where my head would begin to throb, I would get dizzy and within seconds I would blackout, the strangest thing is that when I would come out of the blackout I would have what seemed to be transient amnesia ( i would have no memory of anything that had taken place in the past few years), I would also seem to be in what my boyfriend called a "confused state" where I would say strange things and cry and ramble in a almost incoherent state; however within hours I would be fine (no pain, no dizziness and the amnesia would be gone) the worst part was that I also began to have mild seizures prior to blacking out. My fiancee' told me this one night in the ER when I woke up after an extremely difficult night where i had three of these "episodes" within two hours. I am a nurse and I was forced to quit my job because I had no idea when these episodes would occur and I couldn't put my patients at risk. I was sent to a neurologist who did multiple tests to rule out seizure disorders,tumors and other neuro disorders, so far they have yet to find anything. This has absolutely taken over my life and they seem to not know anything more then they did 8 months ago. I don't understand what is going on, other than the endometriosis I have been very healthy my entire life, I haven't been in any accidents or had any trauma that could have caused this, what is going on? What do I do now? Someone please help......

Reply Flag this Discussion

3 Replies:

  • Check into heavy metal poisoning. Arsenic etc.
    rad-skw 1,605 Replies
    • January 30, 2008
    • 00:10 PM
    • 0
    Flag this Response
  • Suggest an MRI of pelvis, abdomen, and spinal cord. If negative, see an ob/gyn specializing in pelvic pain. KH, MD
    Anonymous 42,789 Replies
    • January 30, 2008
    • 09:09 PM
    • 0
    Flag this Response
  • For the person who posted about Arsenic poisioning, I looked it up on the internet and it does sound alot like the symptoms i am having, however i do not where I could have been exposed to this. We only drink bottled water and we do not believe in using pesticides in our home. All of our vegetables are organic and I was a pediatric nurse so I didnt work in an enviroment where i could have been exposed, has far as the MRI goes, I have had an abdominal MRI, a pelvic MRI, i've also had a small bowel follow-through and a Upper/Lower GI series. I haven't had a spinal cord MRI yet, I have also been seeing a reproductive endocringologist for 3 years at the Jones Insititute in Virginia which has world-reknowned OB-GYN's.I still don't know what to do, at this point I am so fed-up with doctors,medicine and the entire mess....I just want my old life back! :(
    Anonymous 42,789 Replies
    • February 2, 2008
    • 03:41 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.

Signs of a Psoriasis Flare

Know the five types of psoriasis and how to spot flares.

How Diabetes Medications Affect Your Appetite

Newer diabetes treatments can suppress appetite and aid weight loss.

What to Do For Dry Mouth

Try these tips to get your salivary glands back into action.

The Painkiller – Constipation Connection

Constipation is a common side effect of opioid and narcotic pain medicines.

9 Signs of Sensitive Skin

Is it sensitive skin or something else?