Discussions By Condition: I cannot get a diagnosis.

someone else who can't get a diagnosis

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: greyladymae
  • June 3, 2007
  • 01:30 AM

here goes. I was born with what my parents were told was juvinile rhematoid arthritis and would be a cripple by my teen years. I'm 47 and I'm still not cripples. I was diagnosed with seronegativespondlarthropothy (whew!) of my spine a few years back as well. I have had a diagnosis of lupis twice, ms once and fibromyalgia with acute chronic fatique at least twice, however it keeps getting thrown out as I don't pass the point test. I have the symptoms of Ménière's disease, though my bouts of vetigo tend to last for weeks at a time. I also have a problem with my brain, in that it 'buzzes'. I don't know how else to discribe it. You know when you stand up to fast and everything goes bright and electric? that's how my brain feels- it feels like what you see then. I have chronic headaches, hypothyroidism, my body hords water, and I have occasions where parts of me don't work- my hands wont hold anything, or my ankle won't work, etc. I have tingling extremities on a regular basis, and sometimes it 'hurts' it is so intense, and will wake me from sleep. I suffer from insomnia, neuralgia, memory loss, hearing loss, inability to control my movements during a brain buzzing episode (they put me on nerontin for that- yuk!!) and bouts where I don't wake up for days. I have tested ANA positive a few times, but then I don't. I have had one MRI a few years back, but no mylin sheath damage. when I go for a walk, my ankles will stop working- my foot just kinda hangs there and hurts like a #*@&$"]#*@&$. My hands hurt, I get weird stuff like lymes disease, bells palsy, menegitis. There is more, but there is only so much room here! (lol) please, someone help!!!!!!

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2 Replies:

  • greyladymae...get a new doc or set of docs. The point test? what the ***l is that? I just responded to your post on the other thread that you had written. Print the article from the site where you read the information. Take it to doc with you. I have trouble with memory also...good luck
    Anonymous 42789 Replies Flag this Response
  • Look up BPV for head buzzing.Look up hyperparathyroidism for fatigue. Hope this helps.
    rad-skw 1605 Replies Flag this Response
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