Discussions By Condition: I cannot get a diagnosis.

Some one help me, the doctors don't seem to have a clue

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: wilcox334
  • February 6, 2009
  • 06:09 AM

I have been having these symptoms for the past 6 months and now they are getting worse, and i cannot focus or concentrate on my school work. I have painful headaches,joint pain, constant nausea, hair shedding, fatigue, weakness in my fingers and limbs, blurry vision.I have low blood pressure and a low white cell blood count.

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  • Hi, my symptoms started similar to yours, I think I have a hormone imbalance (although I have stopped menstrating as well and have all over body itching, plus a few others).Have you had your hormone levels checked?K x
    Anonymous 42789 Replies
    • February 6, 2009
    • 01:57 PM
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  • Hi, my symptoms started similar to yours, I think I have a hormone imbalance (although I have stopped menstrating as well and have all over body itching, plus a few others).Have you had your hormone levels checked?K xI would bet money on you being gluten intolerant or some other food allergy. I thought I had a hormone imbalance for 20 years, including hair loss, no/infrequent periods w/o birth control, itching skin, bad cystic acne etc. When I turned 30 I tried cutting out all gluten and wheat products and ... voila! all of those symptoms just disappeared. Magic. No doctor ever suggested such a thing to me.. in 20 years. Never. Just prescriptions for symptoms. Try it for 2 weeks and see how you feel. By the way-- the itchy skin was a sensitivity to the gluten they use in scented laundry detergent and dryer sheets. Switch to natural stuff and I bet it goes away. There is also wheat protein in many hair and body products -- check the ingredients.
    Anonymous 42789 Replies
    • November 3, 2010
    • 01:03 AM
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  • According to Wrongdiagnosis symptom checker, searching the symptoms in the order you listed led to 17 possiblities. 16 of them are a type of systemic lupus Erythematosus. See this link, partway down the page under resultshttp://symptoms.wrongdiagnosis.com/cosymptoms/blurred-vision/fatigue/hair-loss/headache/joint-pain/nausea-all.htm Good luck!
    gr8tful 175 Replies
    • November 5, 2010
    • 03:36 AM
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  • Not to be rude, but will people PLEASE stop referring to symptom checkers? They are virtually useless outside of the hands of a medical professional, cause more anxiety than they relieve, and are WRONG 99 percent of the time!SKS was partially correct about the hormones, but she missed which type of hormones your probably deficient in.Upon reviewing your symptoms, it seems your body is currently suffering an adrenal insufficiency.The symptoms of adrenal insufficiency usually begin gradually. Early symptoms may include:Unusual fatigue and muscle weaknessDizziness when standingNausea, vomiting and/or diarrheaLoss of appetiteStomachacheThe ways your physician would test for this would be an ACTH Stimulation test and an Insulin-Induced Hypoglycemia test.If you do have an insufficiency, failure to diagnose it could lead to Addison's Disease, in which you can have an Addisonian Crisis, which is life-threatening.I'll leave you with a list of symptoms of an Addisonian crisis (acute adrenal crisis), just in case. My best advice is to seek out a physician for a workup, before it gets worse. Take care.Abdominal painConfusion or comaDarkening of the skinDehydrationDizziness or light-headednessFatigueFlank painHeadacheHigh feverJoint painLoss of appetiteLoss of consciousnessLow blood pressureNauseaProfound weaknessRapid heart rateRapid respiratory rate (see tachypnea)Shaking chillsSkin rash or lesionsSlow, sluggish movementUnintentional weight lossUnusual and excessive sweating on face or palmsVomiting
    keanhe 86 Replies
    • November 5, 2010
    • 06:46 AM
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  • Not to be rude, but will people PLEASE stop referring to symptom checkers? They are virtually useless outside of the hands of a medical professional, cause more anxiety than they relieve, and are WRONG 99 percent of the time! Dear keanhe, are you a medical professional? Or a person that has taken a long road to be diagnosed with Reiters?Just because it didn't work in your situation does not mean it won't help someone else. Yes, the symptom checkers may be useless in some cases.... But may, in many other cases, lead someone to the proper diagnosis when the medical profession cannot. The symptom checker is simply to give ideas to people who do not have a clue, the time, or the money, to wait for a medical professional to figure out the direction they should turn to. Still, it is up to the sufferer to do their own research and speak with their doctors.
    gr8tful 175 Replies
    • November 5, 2010
    • 07:01 AM
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  • Dear keanhe, are you a medical professional? Or a person that has taken a long road to be diagnosed with Reiters?Yes, the symptom checkers may be useless in some cases.... But may, in many other cases, lead someone to the proper diagnosis when the medical profession cannot. The symptom checker is simply to give ideas to people who do not have a clue, or the time, to figure out the direction they should turn to. It is up to the sufferer to do their own research and speak with their doctors.I'm not a physician, but the person who sits at my side, my step brother, is a board certified internal medicine physician, with a sub-specialty in infectious disease. He's probably the only reason I was diagnosed with Reiter's in the first place, as it was him and my physician who was able to diagnose me, in collaboration with my physicians colleagues at the Mayo.I use this board almost as a real life version of the USMLE. I discuss symptoms with him, theories, and then post them. Why would I be offering advice if I was just some schmuck with a computer and internet access? Everyone has that.I will be resuming classes in January, for my degree in B.A. in Biology with an emphasis on Pre-Med studies. After that, I plan on attending one of the many great medical schools in Florida, where I reside.NOT ONE PERSON WHO DOESN'T HAVE AN M.D. OR D.O. should ever try and self diagnose themselves, as it is dangerous, foolish, and stressful.I do understand where you are coming from though. Sorry for not clarifying.P.S. - There are free clinics, government sponsored programs, and many other alternatives for people who are struggling with their current symptoms. There is no reason why anyone should be questioning whether or not they should be seeking medical care based on their income. They won't have an income if they wait long enough.
    keanhe 86 Replies
    • November 5, 2010
    • 07:20 AM
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  • I'm not a physician, but the person who sits at my side, my step brother, is a board certified internal medicine physician, with a sub-specialty in infectious disease. He's probably the only reason I was diagnosed with Reiter's in the first place, as it was him and my physician who was able to diagnose me, in collaboration with my physicians colleagues at the Mayo.I use this board almost as a real life version of the USMLE. I discuss symptoms with him, theories, and then post them. Why would I be offering advice if I was just some schmuck with a computer and internet access? Everyone has that.I will be resuming classes in January, for my degree in B.A. in Biology with an emphasis on Pre-Med studies. After that, I plan on attending one of the many great medical schools in Florida, where I reside.NOT ONE PERSON WHO DOESN'T HAVE AN M.D. OR D.O. should ever try and self diagnose themselves, as it is dangerous, foolish, and stressful.I do understand where you are coming from though. Sorry for not clarifying.P.S. - There are free clinics, government sponsored programs, and many other alternatives for people who are struggling with their current symptoms. There is no reason why anyone should be questioning whether or not they should be seeking medical care based on their income. They won't have an income if they wait long enough.My symptoms: folliculitis, burning pain in upper back and right arm and pinky, mitral regurgitation and valve prolapse (but being told i should not have symptoms) racing heart flutters, high blood pressure, arthritis pain in alot of joints (arthritis negative) calf pain for three months varying in degree, normal blood test, headaches, muscle twitches, dizziness, vision problems, constipation, frequent urination, insomnia, hair breaking and dry, can not tolerate the heat, anxiety, allergy symptoms but again test negative...the list goes on but all test come out normal and they keep telling me it is my fibromyalgia...ive never agreed with the fibromyalgia diagnosis...any ideas would be appreciated
    Anonymous 42789 Replies
    • November 5, 2010
    • 08:21 AM
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  • My symptoms: folliculitis, burning pain in upper back and right arm and pinky, mitral regurgitation and valve prolapse (but being told i should not have symptoms) racing heart flutters, high blood pressure, arthritis pain in alot of joints (arthritis negative) calf pain for three months varying in degree, normal blood test, headaches, muscle twitches, dizziness, vision problems, constipation, frequent urination, insomnia, hair breaking and dry, can not tolerate the heat, anxiety, allergy symptoms but again test negative...the list goes on but all test come out normal and they keep telling me it is my fibromyalgia...ive never agreed with the fibromyalgia diagnosis...any ideas would be appreciatedThere are seronegative arthritises that cause mitral regurgitation and prolapse, and they usually come back with normal blood tests. Most of the symptoms (except maybe hair?)you are describing fit. If your a male, the chances are even greater. They are greatest if your under 45 as well.
    Anonymous 42789 Replies
    • November 9, 2010
    • 10:13 PM
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  • You should see a rheumatologist and let him or her check for Lupus.
    Anonymous 42789 Replies
    • November 24, 2010
    • 07:38 AM
    • 0
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  • I would bet money on you being gluten intolerant or some other food allergy. I thought I had a hormone imbalance for 20 years, including hair loss, no/infrequent periods w/o birth control, itching skin, bad cystic acne etc. When I turned 30 I tried cutting out all gluten and wheat products and ... voila! all of those symptoms just disappeared. Magic. No doctor ever suggested such a thing to me.. in 20 years. Never. Just prescriptions for symptoms. Try it for 2 weeks and see how you feel. By the way-- the itchy skin was a sensitivity to the gluten they use in scented laundry detergent and dryer sheets. Switch to natural stuff and I bet it goes away. There is also wheat protein in many hair and body products -- check the ingredients. Go see a Rheumatologist & Endocrinologist, might be Fibromyalgia an/or Thyroid, Hypothamlic issues
    JanStar 7 Replies
    • November 25, 2010
    • 04:17 PM
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