Discussions By Condition: I cannot get a diagnosis.

So tired of being sick and tired

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Candygram
  • August 27, 2010
  • 11:54 PM

I'm new to this forum so please be patient and like some others that I've read, this may take a while. The worst of my symptoms began over the past 8years or so, but I have others that I've been dealing with about 17 years. A brief summary of my history may be helpful. I am now 43. When I was young, around 8 yrs old I had what my doctors think must have been scarlet fever. I know it is possible that may be an underlying cause for my problems as well. I have had 4 surgical procedures. Have had one ovary removed due to a very large cyst, my gallbladder removed, varicose vein removed, and a uterine ablation to treat fibroids. I have taken herbs and things to attempt to correct my periods, if anything worked, it would only last for a month or so and I was back to square one. I also pretty much lost all but about 5% of my libido following the ovarian surgery. To fast forward about ten years, I forgot what energy felt like. I deal with things that are essential and no more than that. This has resulted in even poorer health, unhappy relationships, deeper debt. All because I actually started getting stupid. I couldn't even deal with everyday issues. About 7 yrs ago, maybe more, I started having problems with my throat. I get what feels like a blockage when I try to swallow liquids, usually water, any temperature. About 5 yrs ago, this resulted in my passing out. My husband didn't know what happened, so I was taken to the hospital, they found nothing, told me it was a vagus nerve reflex. I was also anemic due to my periods. I was really cold and tired all of the time. And I mean cold, I sat in a 103 degree hot tub and was cold the whole time. They put me on iron, which somewhat helped the heaviness of my periods and some of the tiredness. It happened again about a year later and I hit my head on the floor. They ran more tests. My EEG came back with abnormal in both temporal lobes so the doctor automatically passed it off as epilepsy and put me on Kepra. I was taking that for at least 2 years and was only getting worse with everything else. I ended up asking for antidepressants. Again, I felt good for a
month or two, and just continued to feel worse. I couldn't watch my grand
baby move on someones knee let alone bounce him myself. I would lose my
balance walking next to my husband. I didn't feel like doing anything. I was
really tired and now besides the coldness for however many years, I also get a feeling of a lump in my throat which the doctor instantly passes off as my sinus'. Keep in mind that this "lump", when it's there, it's there. Food passes, liquid passes, I swallow as much as I possibly can because it doesn't go anywhere. This in turns also causes me to eat more than I should. I can't pin point anything for a cause because it doesn't seem to be triggered by any particular food or vitamin or anything like that. Needless to say, this past spring, my doctor sent me to a rheumatologist because my blood work showed lupus. The rheumatologist ruled that out. He couldn't figure it out, just said that something is compromising my immune system. Oh, I almost forgot, I also get these funky little spots on my fingers and toes, not warts, more like an itchy nerve bumb kind thing. Funny thing is, my rheumatologist's wife gets the same thing and he can't figure it out. If I take garlic or a detox, they tend to come out. They itch and then get sore and firm up and go away but they have a reddish center, sore looking, nothing more. They're not warts or pimples. They only come on my fingers and sometimes my toes. So, this past spring, I decided, after reading more things, I got an adrenal support formula to try and my god it was overnight results! I stopped my prescriptions and felt better than I did in twenty years!! Too bad it only lasted about two or three months this time. Now I'm not near as bad as I was, but now I think if I could find a doctor to thoroughly test my thyroid I'd be good. I have all the symptoms of the low thyroid, even a few of low parathyroid. But I've taken kelp which helped a lot, but now instead of being cold, I'm hot and cold. If I can just find a balance. Good doctors are so hard to find, then they ****h because people don't go to them when they're sick! Please help!

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6 Replies:

  • I'm kind of going through the same stuff. I don't know if what you have can all be linked together or not. I know GERD couldn't cause all of your symptoms, but that lump in your throat feeling could be due to that. Do you have any other gastro symptoms? Heartburn, nausea, burping? Have you had your hormone levels checked? If it's possible, you should speak with an endocrinologist. Hope you can get some answers and feel better soon.
    Anonymous 42789 Replies
    • August 28, 2010
    • 00:32 AM
    • 0
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  • Look into Gilbert's Syndrome http://www.gilbertssyndrome.com/index.php It didn't help me with my chronic hiccups and stomach pain but I think it sounds more like your case. Please try not to live "in" sickness learn to live life "with" sickness. I've had these hiccups since I contracted a serious stomach infection. I have never returned to normal. I have chronic fevers and a weird throbbing/fullness sensation in my left ear. The ear seems to get worse when I lay down or lower my head. My memory is horrible and I suffer from anxiety attacks. I'm underweight and have a hard time eating several foods. My whole body feels septic, in my joints, in my kidneys, in my back and I continue to swell and have pain in my stomach. In fact during my stomach infection that brought me to this 3 year journey was so extreme, I dislocated my floating rib. It is now detached and I feel it when I laugh or cough. I feel like I'm choking all the time. I'm having a bad day today and is why I'm on this site but I feel for you. I have no known diagnosis and I sometimes think that puts a lot of fear in us and frusteration. Try not to get depressed and remember to live your life as well.I'm new to this forum so please be patient and like some others that I've read, this may take a while. The worst of my symptoms began over the past 8years or so, but I have others that I've been dealing with about 17 years. A brief summary of my history may be helpful. I am now 43. When I was young, around 8 yrs old I had what my doctors think must have been scarlet fever. I know it is possible that may be an underlying cause for my problems as well. I have had 4 surgical procedures. Have had one ovary removed due to a very large cyst, my gallbladder removed, varicose vein removed, and a uterine ablation to treat fibroids. I have taken herbs and things to attempt to correct my periods, if anything worked, it would only last for a month or so and I was back to square one. I also pretty much lost all but about 5% of my libido following the ovarian surgery. To fast forward about ten years, I forgot what energy felt like. I deal with things that are essential and no more than that. This has resulted in even poorer health, unhappy relationships, deeper debt. All because I actually started getting stupid. I couldn't even deal with everyday issues. About 7 yrs ago, maybe more, I started having problems with my throat. I get what feels like a blockage when I try to swallow liquids, usually water, any temperature. About 5 yrs ago, this resulted in my passing out. My husband didn't know what happened, so I was taken to the hospital, they found nothing, told me it was a vagus nerve reflex. I was also anemic due to my periods. I was really cold and tired all of the time. And I mean cold, I sat in a 103 degree hot tub and was cold the whole time. They put me on iron, which somewhat helped the heaviness of my periods and some of the tiredness. It happened again about a year later and I hit my head on the floor. They ran more tests. My EEG came back with abnormal in both temporal lobes so the doctor automatically passed it off as epilepsy and put me on Kepra. I was taking that for at least 2 years and was only getting worse with everything else. I ended up asking for antidepressants. Again, I felt good for a month or two, and just continued to feel worse. I couldn't watch my grand baby move on someones knee let alone bounce him myself. I would lose my balance walking next to my husband. I didn't feel like doing anything. I was really tired and now besides the coldness for however many years, I also get a feeling of a lump in my throat which the doctor instantly passes off as my sinus'. Keep in mind that this "lump", when it's there, it's there. Food passes, liquid passes, I swallow as much as I possibly can because it doesn't go anywhere. This in turns also causes me to eat more than I should. I can't pin point anything for a cause because it doesn't seem to be triggered by any particular food or vitamin or anything like that. Needless to say, this past spring, my doctor sent me to a rheumatologist because my blood work showed lupus. The rheumatologist ruled that out. He couldn't figure it out, just said that something is compromising my immune system. Oh, I almost forgot, I also get these funky little spots on my fingers and toes, not warts, more like an itchy nerve bumb kind thing. Funny thing is, my rheumatologist's wife gets the same thing and he can't figure it out. If I take garlic or a detox, they tend to come out. They itch and then get sore and firm up and go away but they have a reddish center, sore looking, nothing more. They're not warts or pimples. They only come on my fingers and sometimes my toes. So, this past spring, I decided, after reading more things, I got an adrenal support formula to try and my god it was overnight results! I stopped my prescriptions and felt better than I did in twenty years!! Too bad it only lasted about two or three months this time. Now I'm not near as bad as I was, but now I think if I could find a doctor to thoroughly test my thyroid I'd be good. I have all the symptoms of the low thyroid, even a few of low parathyroid. But I've taken kelp which helped a lot, but now instead of being cold, I'm hot and cold. If I can just find a balance. Good doctors are so hard to find, then they ****h because people don't go to them when they're sick! Please help!
    Anonymous 42789 Replies
    • August 28, 2010
    • 01:20 AM
    • 0
    Flag this Response
  • I'm kind of going through the same stuff. I don't know if what you have can all be linked together or not. I know GERD couldn't cause all of your symptoms, but that lump in your throat feeling could be due to that. Do you have any other gastro symptoms? Heartburn, nausea, burping? Have you had your hormone levels checked? If it's possible, you should speak with an endocrinologist. Hope you can get some answers and feel better soon.See that's another thing, I can probably count on one hand how many times I may have had gerd. And that didn't happen until I had a gastroscopy and I blame that on the use of the instrument down my throat because I had a lot of my others symptoms before that and never had any gerd until after that. Now I did have that procedure when i was sent for a colonoscopy. I was having pains in my stomach that seemed to be associated with certain things that I ate, like corn products for some reason, and I thought a food allergy. But when the doctor went in, he found a node if you want to call it that, it wasn't an ulcer but kind of resembled a round shape with a lower center. It's hard to describe. But it was sent out toe tested and I was told that it would've become pre-cancerous if it had been left go.I also have sinus problems. I have a deviated septum, and yes I get what I have learned are called "tonsil stones" so I have even thought it may be due to something with my adenoids, but I haven't found a correlation with the lump in my throat to my sinus and such. The lump in my throat is very unpredictable. Sometimes it's only there for a day or so and other times much longer. When I first started feeling it, it was non-stop 24/7 for months on end. All I did was eat because I needed to feel like it was clearing my throat.
    Candygram 4 Replies
    • August 28, 2010
    • 01:53 PM
    • 0
    Flag this Response
  • Hi, i was going to suggest that that feeling a lump in your throat could in fact be a tonsil stone, then after that thought, saw by your second post that you do get them. For some these can feel like as if there is a lump in ones throat or feel like a blockage is there!! Keep trying to push a doctor into getting your thyriod properly tested!! It also could be CFS/ME, with CFS/ME, one third of women have been found to have low cortisol. (you need thryiod issues ruled out thou before thinking it could be ME). Ones with CFS/ME just like low thyriod issues, often tend to have a lower body temp and feel cold. best luck
    taniaaust1 2267 Replies
    • August 28, 2010
    • 04:46 PM
    • 0
    Flag this Response
  • Hi, i was going to suggest that that feeling a lump in your throat could in fact be a tonsil stone, then after that thought, saw by your second post that you do get them. For some these can feel like as if there is a lump in ones throat or feel like a blockage is there!! Keep trying to push a doctor into getting your thyriod properly tested!! It also could be CFS/ME, with CFS/ME, one third of women have been found to have low cortisol. (you need thryiod issues ruled out thou before thinking it could be ME). Ones with CFS/ME just like low thyriod issues, often tend to have a lower body temp and feel cold. best luckAs for the lump in my throat, it's about an inch and a half above the lowest part of my collar bone, and tends to be towards the left.Although I don't technically have food allergies, I do tend to have minor sensitivities to refined sugar, flour and grains. Most of the time, these things cause me to be even more tired, if I over do it on them, I end up with more problems with my bowels and my head. One thing I've never had a problem with is diarrhea. I do have a lot of scar tissue I'm sure because of the surgeries that I've had. The adrenal support believe it or not did pretty much fix my problem with my periods. They only come once a month now, except that now, I have lingering discharge that lasts for a couple of weeks.
    Candygram 4 Replies
    • August 28, 2010
    • 11:46 PM
    • 0
    Flag this Response
  • I'm new to this forum so please be patient and like some others that I've read, this may take a while. The worst of my symptoms began over the past 8years or so, but I have others that I've been dealing with about 17 years. A brief summary of my history may be helpful. I am now 43. When I was young, around 8 yrs old I had what my doctors think must have been scarlet fever. I know it is possible that may be an underlying cause for my problems as well. I have had 4 surgical procedures. Have had one ovary removed due to a very large cyst, my gallbladder removed, varicose vein removed, and a uterine ablation to treat fibroids. I have taken herbs and things to attempt to correct my periods, if anything worked, it would only last for a month or so and I was back to square one. I also pretty much lost all but about 5% of my libido following the ovarian surgery. To fast forward about ten years, I forgot what energy felt like. I deal with things that are essential and no more than that. This has resulted in even poorer health, unhappy relationships, deeper debt. All because I actually started getting stupid. I couldn't even deal with everyday issues. About 7 yrs ago, maybe more, I started having problems with my throat. I get what feels like a blockage when I try to swallow liquids, usually water, any temperature. About 5 yrs ago, this resulted in my passing out. My husband didn't know what happened, so I was taken to the hospital, they found nothing, told me it was a vagus nerve reflex. I was also anemic due to my periods. I was really cold and tired all of the time. And I mean cold, I sat in a 103 degree hot tub and was cold the whole time. They put me on iron, which somewhat helped the heaviness of my periods and some of the tiredness. It happened again about a year later and I hit my head on the floor. They ran more tests. My EEG came back with abnormal in both temporal lobes so the doctor automatically passed it off as epilepsy and put me on Kepra. I was taking that for at least 2 years and was only getting worse with everything else. I ended up asking for antidepressants. Again, I felt good for a month or two, and just continued to feel worse. I couldn't watch my grand baby move on someones knee let alone bounce him myself. I would lose my balance walking next to my husband. I didn't feel like doing anything. I was really tired and now besides the coldness for however many years, I also get a feeling of a lump in my throat which the doctor instantly passes off as my sinus'. Keep in mind that this "lump", when it's there, it's there. Food passes, liquid passes, I swallow as much as I possibly can because it doesn't go anywhere. This in turns also causes me to eat more than I should. I can't pin point anything for a cause because it doesn't seem to be triggered by any particular food or vitamin or anything like that. Needless to say, this past spring, my doctor sent me to a rheumatologist because my blood work showed lupus. The rheumatologist ruled that out. He couldn't figure it out, just said that something is compromising my immune system. Oh, I almost forgot, I also get these funky little spots on my fingers and toes, not warts, more like an itchy nerve bumb kind thing. Funny thing is, my rheumatologist's wife gets the same thing and he can't figure it out. If I take garlic or a detox, they tend to come out. They itch and then get sore and firm up and go away but they have a reddish center, sore looking, nothing more. They're not warts or pimples. They only come on my fingers and sometimes my toes. So, this past spring, I decided, after reading more things, I got an adrenal support formula to try and my god it was overnight results! I stopped my prescriptions and felt better than I did in twenty years!! Too bad it only lasted about two or three months this time. Now I'm not near as bad as I was, but now I think if I could find a doctor to thoroughly test my thyroid I'd be good. I have all the symptoms of the low thyroid, even a few of low parathyroid. But I've taken kelp which helped a lot, but now instead of being cold, I'm hot and cold. If I can just find a balance. Good doctors are so hard to find, then they ****h because people don't go to them when they're sick! Please help!**Well after doing more research I've come to the conclusion that all of my problems for the past twenty years or so are Endocrine related, not just thyroid but everything. I just wish it wasn't so ***n hard to find an endocrinologist! My PC can suck rocks! I called about having just my thyroid checked, he'll see me at the end of september.
    Candygram 4 Replies
    • September 13, 2010
    • 02:24 AM
    • 0
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