Discussions By Condition: I cannot get a diagnosis.

So overwhelmed...

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • May 2, 2010
  • 09:28 PM

Anyone want to throw out an idea? or a suggestion? or at least some hope?

I'm waiting to get in with a gastro., but am crawling out of my skin while I wait. I don't know how much longer I can tolerate feeling so sick all.the.time.

Symptoms (all come and go--food journaling hasn't shown anything obvious yet):

nausea
diarrhea (but really no abdominal pain)
headaches
dizziness
feelings of low blood sugar
feelings of low blood pressure
canker sores
numbness/tingling lips
cold fingers and feet
muscle and joint aches
fatigue
trouble concentrating/'foggy' feeling
constant/easy bruising
racing heart (very infrequent)

...and I think that's all. I've got a list, but am having a really bad day (and feeling pretty darned sorry for myself) and don't want to move myself to get it.

My GP ran 'all the tests' and they came back normal with the exception of 'a few' white blood cells in a stool sample. I know--Crohn's. But I don't feel as though I fit the other Crohn's symptoms at all and neither did the GP.

I'm 26, a female, a generally happy/content person, have a toddler--and no, I'm not just tired. This has been going on for a few years now.

Thanks for reading.

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7 Replies:

  • Anyone want to throw out an idea? or a suggestion? or at least some hope? I'm waiting to get in with a gastro., but am crawling out of my skin while I wait. I don't know how much longer I can tolerate feeling so sick all.the.time. Symptoms (all come and go--food journaling hasn't shown anything obvious yet): nauseadiarrhea (but really no abdominal pain)headachesdizzinessfeelings of low blood sugarfeelings of low blood pressurecanker soresnumbness/tingling lipscold fingers and feetmuscle and joint achesfatiguetrouble concentrating/'foggy' feelingconstant/easy bruisingracing heart (very infrequent) ...and I think that's all. I've got a list, but am having a really bad day (and feeling pretty darned sorry for myself) and don't want to move myself to get it. My GP ran 'all the tests' and they came back normal with the exception of 'a few' white blood cells in a stool sample. I know--Crohn's. But I don't feel as though I fit the other Crohn's symptoms at all and neither did the GP. I'm 26, a female, a generally happy/content person, have a toddler--and no, I'm not just tired. This has been going on for a few years now. Thanks for reading. I don't mean to scare you, but you should look into/ask about possible Leukemia.
    Missa995 38 Replies Flag this Response
  • I don't mean to scare you, but you should look into/ask about possible Leukemia.Hi I have been getting very similar symptoms to yourself but i get constipation and and also get bloated and have abdominal discomfort.I have had many tests as have also felt unwell for quite some time and have been diagnosed with helicobacter pylori which is a bacteria that lives in your stomach causing various problems and i have also been put on a gluten free diet because my gastroenterologist says i am boarderline coeliac.Your symptoms suggest to me that you could possibly have coeliac disease or definately have some kind of food intolerance so it might be an idea to get that checked out.i am no doctor but have done alot of research on coeliac and food intolerance symptoms and yours sound familiar.Hope this helps
    sarah oxland 2 Replies Flag this Response
  • I don't mean to scare you, but you should look into/ask about possible Leukemia.Hi I have been getting very similar symptoms to yourself but i get constipation and and also get bloated and have abdominal discomfort.I have had many tests as have also felt unwell for quite some time and have been diagnosed with helicobacter pylori which is a bacteria that lives in your stomach causing various problems and i have also been put on a gluten free diet because my gastroenterologist says i am boarderline coeliac.Your symptoms suggest to me that you could possibly have coeliac disease or definately have some kind of food intolerance so it might be an idea to get that checked out.i am no doctor but have done alot of research on coeliac and food intolerance symptoms and yours sound familiar.Hope this helps
    sarah oxland 2 Replies Flag this Response
  • After writing this message, I started looking around online (for the 100th time... we all know the drill...) and am starting to wonder if perhaps I've got a SOY intolerance/allergy? It does look like a possibility based on food journaling I've been doing.The leukemia--I know a blood test would *typically* show high WBC and low RBC, but is that definitive? My counts all came back normal...
    Anonymous 42789 Replies Flag this Response
  • Anyone want to throw out an idea? or a suggestion? or at least some hope? I'm waiting to get in with a gastro., but am crawling out of my skin while I wait. I don't know how much longer I can tolerate feeling so sick all.the.time. Symptoms (all come and go--food journaling hasn't shown anything obvious yet): nauseadiarrhea (but really no abdominal pain)headachesdizzinessfeelings of low blood sugarfeelings of low blood pressurecanker soresnumbness/tingling lipscold fingers and feetmuscle and joint achesfatiguetrouble concentrating/'foggy' feelingconstant/easy bruisingracing heart (very infrequent) ...and I think that's all. I've got a list, but am having a really bad day (and feeling pretty darned sorry for myself) and don't want to move myself to get it. My GP ran 'all the tests' and they came back normal with the exception of 'a few' white blood cells in a stool sample. I know--Crohn's. But I don't feel as though I fit the other Crohn's symptoms at all and neither did the GP. I'm 26, a female, a generally happy/content person, have a toddler--and no, I'm not just tired. This has been going on for a few years now. Thanks for reading. Firstly do make sure all food issues are ruled out but if you still continue to have issues you could well have chronic fatigue immunity dysfunction syndrome (CFIDS)... most of those symptoms happen with it (except the "few white blood cells in stool sample and the tingling on lips isnt common with it but could well happen as tingling and stange sensations can be common in it). CFIDS is a commonly misunderstood diagnoses and CFIDS patients often go more than several years before correctly diagnosed. - Hypoglecemia (sp?) low blood sugar may happen with CFIDS- More than half of CFIDS patients commonly have food issues or irritable bowel syndrome (which can cause diarhearr or constipation).- Cause there can be poor immunity in CFIDS.. canker sores can happen more in CFIDS people than a healthy person.- Cold fingers and feet.. poor circulation in CFIDS people can end up leading to things like Raynauds syndrome in CFIDS patients but you havent got Raynauds currently but coldness in fingers and toes is a sign of poor circulation.- Racing heart at times in CFIDS is often caused by the overlapping POTs(postural orthostatic tachycardia syndrome) can be an alone illness but is also a symptom/interconnecting illness many with CFIDS get. POTs and CFIDS can be responsible to tiredness, dizziness, feeling nausea and headaches. These and the other symptoms you mentioned are CFIDS symptoms.. check out http://wwcoco.com/cfids/bernesx.html . and for POTs http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome Do some good reseach yourself on it as many doctors are very misinformed about these conditions and most dont have a clue).....So rule out food issues, rule out anything else which can be ruled out, rule out POTs (if you have it as part of whatever you have) and then CFIDs if possible (find a doctor who specialises in CFIDS).
    taniaaust1 2267 Replies Flag this Response
  • Anyone want to throw out an idea? or a suggestion? or at least some hope?I'm waiting to get in with a gastro., but am crawling out of my skin while I wait. I don't know how much longer I can tolerate feeling so sick all.the.time.Symptoms (all come and go--food journaling hasn't shown anything obvious yet):nauseadiarrhea (but really no abdominal pain)headachesdizzinessfeelings of low blood sugarfeelings of low blood pressurecanker soresnumbness/tingling lipscold fingers and feetmuscle and joint achesfatiguetrouble concentrating/'foggy' feelingconstant/easy bruisingracing heart (very infrequent)...and I think that's all. I've got a list, but am having a really bad day (and feeling pretty darned sorry for myself) and don't want to move myself to get it. My GP ran 'all the tests' and they came back normal with the exception of 'a few' white blood cells in a stool sample. I know--Crohn's. But I don't feel as though I fit the other Crohn's symptoms at all and neither did the GP.I'm 26, a female, a generally happy/content person, have a toddler--and no, I'm not just tired. This has been going on for a few years now.Thanks for reading.So you say feels like low blood pressure, do you have low blood pressure? In addition to all these autoimmune diseases you can have secondary, third, etc.....more diseases added so it could be Chrons "plus" another so youre symptoms could be explained that way as well.
    JWANTLAND 5 Replies Flag this Response
  • check into Gasteoparisis.. my 14 year old daughter was diagnosed. alot of the same symptoms....just a thought
    Anonymous 42789 Replies Flag this Response
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