Discussions By Condition: I cannot get a diagnosis.

So much going on.

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • February 2, 2008
  • 11:18 PM

I don't even know where to begin. I thought this was something sexual related, since it occured 2 weeks after intercourse with a man (I'm female) but I've now had a seven month HIV NEGATIVE along with a PCR DNA negative and 11 other HIV tests all in between.

So here's how it began.
I've always had enlarged tonsils, later a heart problem that developed after the birth of my daughter (2000), recurring uveitis for the past two years...

so in August my tonsils swelled up to where they touched eachother, and I developed night sweats. The tonsils didn't hurt, and there was one swollen lymph node under my chin. Eventually I was given a tonsillectomy, but the low grade fever, night sweats, flushing, all intermittent. Excessive fatigue that will not go away. Chills. Skin changes (rash on back, on legs), swollen painful lymphnodes on collarbone and tops of legs, and on back of one knee. flushed apperance on the face in the evenings, I just don't feel good :( I used to be overly hyper :) OCD in my cleaning, happy-go-lucky. What the heck happened?

Here's lab work:
HIV Antibodies at 6, 9, 10, 18,19,21,22, 27 and 30 weeks... excessive much ::)
HIV DNA PCR negative at 5 months
HIV ICMA Negative at 5 months
Mono spot and strep test negative
CBC normal - neutrophils and platelets slightly elevated
Sed rate 8
Thyroid panel normal
ANA normal
Heart function normal
EBV shows past infection (long ago)
CMV shows past infection (long ago)
CT scan shows mild lymph nodes, nothing characteristic of cancer or that they feel needs biospy

If anyone can point me in any directions, I'd appreciate it. I focused on HIV for so long because it followed a sexual encounter, however the guy I was with tested negative with a rapid test 6 weeks after we had sex, and I've had all these negative tests, so symptoms and timing coincidence are just that - coincidence... I need to get to the bottom of what is going on. Please?
Tonight I have a fever of 99.8, night sweats, and pain in the lymphnodes in my legs, but that pain changes to other areas depending on what day it is.

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3 Replies:

  • This sounds like either some kind of infection, or perhaps (more likely) an autoimmune or connective tissue disease:Given the HLA subtype and uveitis, I'd start looking into the spondyloarthropathies. There's a whole family of them with funny names that really might take a rheumatologist to hammer out for you. These names include:Psoriatic ArthritisPosturethral Reactive Arthritis (Reiter's syndrome, sexually acquired reactive arthritis, nongonococcal urethritis, chlamidial arthritis)Ankylosing Spondylitis (Bekhterev's arthritis, Marie-Strumpell disease)Postdysenteric Reactive Arthritis (Reiter's syndrome)Enteropathic Arthritis (Crohn's Disease, ulcerative colitis)It doesn't sound like something a family doctor can nail down. It really might take a rheumatologist.I hope you get an answer soon and am sorry you are having such troublesome symptoms.
    Anonymous 42789 Replies
    • February 3, 2008
    • 07:10 AM
    • 0
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  • Seems like you have 2 herpes viruses...I imagine that they can compound each other and smolder...but since this came after being with some ***k, have you thought to get a blood test for herpes 2? You have od'd on hiv tests... http://www.health.state.ny.us/diseases/communicable/cytomegalovirus/fact_sheet.htmWhat are the symptoms of CMV infection?Most children and adults who are infected with CMV do not develop symptoms. Those who develop symptoms may experience an illness resembling infectious mononucleosis and have fever, swollen glands and feel tired.
    Monsterlove 2921 Replies
    • February 3, 2008
    • 07:26 AM
    • 0
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  • What is your heart problem?
    aquila 1263 Replies
    • February 4, 2008
    • 03:51 PM
    • 0
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