Discussions By Condition: I cannot get a diagnosis.

So many symptoms...

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: Anonymous
  • November 17, 2008
  • 05:13 PM

I have so many dissimilar symptoms that I figure I must have multiple illnesses. At one point or another I've thought it might be so many things. My doctors too, I want to see what you can come up with.

I am a 24 year old male, 6'1", 170 lbs. I exercise every other day or so. Someone, somewhere in my family has just about every neurological disorder you can think of.

My biggest symptom that started when I was 16, vertigo. It started small, several episodes a year that only lasted about an hour. It peaked when I was 22. I would be dizzy for up to 30 hours, like can't get out of bed dizzy, and I'd get it about once a month. I also feel slightly dizzy almost all the time, things that increase it are, looking at CRT monitors, reading, being in the car, any kind of severe stress such as emotional or physical. Luckily now I know more about its triggers, and only get it a few times a year. I still can't read for long periods of time, and can barely travel for longer than 60 minutes.

A few years ago I had a CT and MRI of my head, they didn't find anything.

I've also always had mood swings, but they've gotten worse more recently. Usually triggered by emotional stress. On the up swings it can actually be nice, I can actually get euphoric.

Depression as well. Usually I have low periods of a month or two, with oscillation between days of up and down (I know it sounds like bipolar, but I don't really get manic).

I seem to have a touch of OCD, as I'm a bit of a checker and hand washer. Not enough though that I'd actually consider it a disorder. ADHD seems unlikely, but possible. I'm also somewhat paranoid (again not severely, but its there).

This last year or so I've been getting fairly bad eye pain. Quite often, practically every day. Any kind of strain (computer, reading) seems to make it worse, but its not directly responsible. For instance, I often wake up with it.

The last few weeks I've been getting diarrhea, 3 or 4 times a day. With only a few days here and there of normal bowel movements. I've had some trouble with it over the last 6 months or so but never this much. I've been keeping a food diary but so far nothing seems directly responsible. Lactose intolerance or celiacs is possible, but unlikely.

My blood pressure is normal.

I tend to feel somewhat shaky and am twitchy. Eating often helps. But not so shaky I'd consider it tremors. The twitching is often in my limbs (not my face). Not too often, maybe 5 times a day. When I was a teenager I used to get really shaky and horrible stomach pain at least once a month. I absolutely had to eat or I would become very ornery.

I'm often extremely bored (probably just part of depression).

I don't do any illegal drugs.

I get anxious quite often.

I take an SSRI (sertraline), 100 mg, daily. It has been the biggest thing that's helped with reducing my vertigo and anxiety. I've been taking it for about 14 months with seemingly no side effects.

Not sure if its worth mentioning, but the skin on my shoulders has small bumps. I also tend to get a lot of acne there. The bumps (not acne) seem to have spread down the center of my chest recently. I've had it since I was a teenager.

Thoughts? Thanks for reading.

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17 Replies:

  • Some things I forgot to mention. I have heat and light sensitivity. Often nauseous without cause. General fatigue even if I get enough sleep, I eat fairly well. Probably related to the depression, except I still can get it even when I'm 'up'. I also see flashy small balls of light zig zagging around whenever I look at something bright, the sky for instance. There are hundreds of them. They are not floaters. I have had my eyes checked out too, and the doctor didn't find anything wrong.
    Anonymous 42789 Replies
    • November 17, 2008
    • 09:04 PM
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  • If the bumps look something like this (below) think about celiac disease. http://www.nlm.nih.gov/medlineplus/ency/imagepages/2400.htm This is about celiac disease, which can manifest as depression and anxiety: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm Also, have a look at this: http://www.ncbi.nlm.nih.gov/pubmed/17030405?ordinalpos=3&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum http://renegadeneurologist.com/category/ailments/celiac-disease/
    aquila 1263 Replies
    • November 18, 2008
    • 08:51 PM
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  • I agree, consider Celiac Disease.I would also consider Lupus, since you mentioned sensitivity to light.I would also seriously consider orthostatic intolerance.
    firefly646 8 Replies
    • November 19, 2008
    • 01:46 AM
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  • Thanks for the replies. Some interesting suggestions to digest.Aquila, no they're no were near that noticeable. You'd have to be within a foot or so to even see them. And they don't itch. Right now it seems most like celiacs (out of what we're currently considering). Lupus is of course, just hard to say, I'll see what my doc thinks of testing for it. orthostatic intolerance is interesting, and something I haven't heard of before. I often get light headed if I stand up too fast. And when sitting, I have to put my feet up, or put my knees up to my chest, or I get extremely uncomfortable. Not a pain, just really bugs me to sit "normally" and tires me out. So if I cut out whey products is it a good enough test? Or should I go back to the doc to test for it?
    sickandtired00 6 Replies
    • November 19, 2008
    • 03:37 AM
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  • Btw, do you think it could be Marfan's syndrome? I have a small skeletal bump on my sternum and I'm fairly tall and lanky. I have some asymetrical bones as well, like one shoulder is a bit wider, one leg slightly longer. My digits aren't that long though.
    sickandtired00 6 Replies
    • November 19, 2008
    • 03:57 AM
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  • I just weighed myself. Here's a head scratcher. 2.5 weeks of diarrhea and I gain 2 pounds?!
    sickandtired00 6 Replies
    • November 19, 2008
    • 11:59 PM
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  • Some things I forgot to mention. I have heat and light sensitivity. Often nauseous without cause. General fatigue even if I get enough sleep, I eat fairly well. Probably related to the depression, except I still can get it even when I'm 'up'. I also see flashy small balls of light zig zagging around whenever I look at something bright, the sky for instance. There are hundreds of them. They are not floaters. I have had my eyes checked out too, and the doctor didn't find anything wrong. I have been suffering from the same symptoms you've listed here & have seen numerous doctors & had every blood/urine/stool test possible with absolutely nothing showing up! I'm also male and the same age. Other symptoms i've been suffering from are frequent pins and needles, numb/tingling feeling of the forehead, headaches, burning up, loss of breath & blurred vision to name the main ones. Have you been suffering from any of the above? The doctors i've seen are stumped as to whats wrong, especially with the flashy balls of light flying about. I too have had my eyes tested recently and they could'nt find anything wrong. Would be really interested to hear more about your symptoms.
    BRANDNEWSTART 4 Replies
    • November 20, 2008
    • 01:01 PM
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  • Mention Marfan's to your doctor. It wouldn't hurt.
    aquila 1263 Replies
    • November 20, 2008
    • 08:08 PM
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  • Well Blaze, that's an interesting thought. I'm a bit skeptic, but something that did pop into mind just now is that I can't recall any of my symptoms when I'm out camping. Does anyone have any comment on ES?BRANDNEWSTART -I've had all of those symptoms except the tingling forehead one. But none of them often enough or severe enough to mention. Unless by pins and needles you mean limbs falling asleep. In which case, I do seem to get that more than the average person, but I just attribute that to poor circulation from being tall. What else would you like to know about my symptoms?Ugh, I'm feeling nauseous right now, gotta go.
    sickandtired00 6 Replies
    • November 20, 2008
    • 09:48 PM
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  • Hi sick and tired,I have been having almost identical symptoms to you with the peak of intensity being about 7 months ago. I have been through every test imagineable including celiacs (thank goodness I'm not a celiac). I've had digestive scans and xrays and they cannot seem to find anything.I have naseau - sometimes vomiting - photophobic headaches - depression. At it's peak I had diarrea for about 7 weeks. I'm still not healthy and just this week I've been super sick for about 3 days. I'm approx the same age and build as you are. Also physically active etc. Do you work with computers as a regular part of your job. I'm a technician so I basically sit in front of a computer all day and some studies have linked computer operation to a host of digestive and metabolic problems which can have far reaching effects on mood etc. If you don't work with computers directly do you spend a lot of time at one otherwise? I am also curios about the ES since I am a cell user exposed continually to wifi and actually work underneath my companies central tower and next door to their main recieving unit. I also have one particualr ear that gets random pain in it - not a shooting pain, but a sharp pain almost similar to neck strain and on the same side of my face the gland seems to be aggravated - not sensitive to touch, but larger than the glands on the other side of my neck. Any history of head trauma in your case?I had an accident several years ago, but I'm not convinced it's related. I have not found any link to eating and the reduction of my nasea. In fact some weeks it seems to be terrible unless I am int he act of eating and other weeks it gets worse exponentially if I eat. I get easily dehydrated and occasionally get chills, especially accompanied by headaches. Sorry to bombard you but in all my research you are the closest to reporting the same things I am experiencing.Thanks
    edo333 2 Replies
    • November 21, 2008
    • 02:02 AM
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  • Well Blaze, that's an interesting thought. I'm a bit skeptic, but something that did pop into mind just now is that I can't recall any of my symptoms when I'm out camping. Does anyone have any comment on ES? BRANDNEWSTART -I've had all of those symptoms except the tingling forehead one. But none of them often enough or severe enough to mention. Unless by pins and needles you mean limbs falling asleep. In which case, I do seem to get that more than the average person, but I just attribute that to poor circulation from being tall. What else would you like to know about my symptoms? Ugh, I'm feeling nauseous right now, gotta go. The Muscle spasms, eye pain & bowel discomfort is all quite interesting as I've been suffering from all 3 (along with many of the others) for the past year or so now. They are probably my newest symptoms, but the docs can't discover anything out of the ordinary in regard to these. In fact they have no explanation. All the tests have come back completely normal. I've even been tested for things 3 or 4 times and still nothing. Not sure how relevant this is, but this all started after a bad case of the flu about 4 years ago. My Health & Symptoms have been going downhill since then. The most annoying thing is that I never have any idea how I'm going to feel from one day to the next. Somedays I cant even get out of bed & other days I'm on a massive high and convincing myself I'm on the road to getting better. I've been told numerous times this is down to my state of mind. i.e depression. Thing is i'm in no way a depressed person. Depression cannot account for the numerous symptoms ive been sufering from. Have you been given any inidaction of what you might be suffering from? Thanks in advance.
    BRANDNEWSTART 4 Replies
    • November 21, 2008
    • 11:28 AM
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  • what medications do you take? what about vasculitis? http://www.nhlbi.nih.gov/health/dci/Diseases/vas/vas_whatis.html
    jenmar 6 Replies
    • November 21, 2008
    • 03:06 PM
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  • No, only the dizziness has been "diagnosed". Which range from migraine, labrynthitis, to meneiers disease depending on which specialist you want to ask. All my blood tests, MRIs, eye, neuro, even hearing tests came back normal.
    sickandtired00 6 Replies
    • November 21, 2008
    • 04:47 PM
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  • I only take sertraline (zoloft equiv.) an SSRI, regularly. But that's only been for the last 14 months or so. I can trace my first symptoms back to at least 16 years old.Vasculitis is certainly possible. I'll put it on my list of things to further investigate. I do spend a lot of time on computers. It definitely seems to have some relation to at least some of my symtpoms. My room, where I spend most of my time, is filled with electronics. My house is also near several towers. No major head injuries that I recall (hah). But I was a wild kid and have played contact sports, so ya never know.I also get easily dehydrated (or what feels like it) too. No problem, I'm happy to answer any questions and pool our research. Let me know if I missed any questions.
    sickandtired00 6 Replies
    • November 22, 2008
    • 00:32 AM
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  • I did a quick poll at work. EVERYONE I asked listed at least some of the symptoms with the naseau and other bowel problems being lowest on the list. Some possible common ground. Most of us are male mid 20's to early 30's, mostly caucasian. Work with computers in a relatively high stress environment. According to what I've read the symptoms can be explained like this. The pain diziness vision problems etc can be related to monitor reflection (reduced by the fact that all of us use LCD's) bright sunlight - prolonged computer work (the act of focussing and refocussing is very ******n the eye, especially for people like me who glance at the keyboard out of habit more than out of needing to look. Headaches and diziness can be stress related. Bowel problems can be linked ot prolonged sitting stress etc. The body is actually a very poor handler of stress though, and usually starts to exhibit measureable symptoms after prolonged exposure (6 months). So our tests should start to reveal ulcers, clinical depression, a metabolic response (rapid weight gain, or weight loss) nights sweats, etc. But none of us exhibit these symptoms. The other possible cause is the fact that we work on the seventh floor of a building directly across from a cell tower. Since there isn't a lot of research on the bodies tissue response to low level radiation exposure over a prolonged experience it is hard to say what the symptoms should look like. According to what I've read most of the studies have been conducted on the link of low level radiation and cancer, and or the growth of existing cancer cells. Are we poisoning ourselves?Now I know I'm not radioactive (my mom had thyroid cancer and was on radiation treatment for a while which resulted in her having a gieger counter (I didn't set it off), but I also wasn't working in the same environment then. (maybe I should try and get one lol)If this is related to low amounts of broadcast noise/radiation then I don't know how we'd be tested for it. I can't quit my job temporarily to see if that helps, and medically I don't know how they could confirm it without more research. My bet is on stress related illness or effects of prolonged computer operation, but it's gone on far to long for me to be certain. I cannot find any other common links between the symptom sufferers (ie we all have different backgrounds, different levels of physical activity, live in different houses/apartments, some of us are non-smokers.)I think I need to take a trip to the library and nab some medical journals on electronic effects.We can also try to quantify the symptoms and do a selfreflective poll of at risk and non at risk people and try and compile some numbers from different regions. There's no harm in trying to do our own research. What we can record anonymously (and of course with the other persons permission) a table of the following:Age Weight Height Distance from a cell tower (closest either work or home)/wifi in home Work with computers?/Spend more than 5 hours a day on a computer Stress level 1-10 (not necessarily great data here, but we still might notice a trend) Symptom group A (yes or no) B? C? D? E? With the symptom groups being A - No symptomsB - headaches earaches light sensitivity (unexplained)C - depression anxietyD - NaseauE - Bowel related symptoms vomitting indigestion diarrea Please feel free to make a suggestion to alter the table, and if everyone reading this forum could compile results carefully and post them that would be helpful. Please post groups of ten or more.If this page does a bad job of formatting tabling, then I may ask you to email them to me, but we'll cross that bridge later. Please I cannot stress enough that you have to inform anyone you ask these questions to that their data (without their name) may be used for informal research.Hope this helps.
    edo333 2 Replies
    • November 22, 2008
    • 06:27 PM
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  • Hi there, You are celiac and have lactose intolerance. You might have additional intolerances. You are very acidic. Take the homeopathic remedy phosphorus 30 c - 3 times a day under tongue for 7 days.Metabolic typing will be very useful. That will give you an answer what is the correct diet for you. Love, peace and joy, Dr B
    Anonymous 42789 Replies
    • November 23, 2008
    • 02:21 PM
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  • I have very similar symptoms as you and it took a dozen doctors to finally get diagnosed with chronic fatigue syndrome and Asperger's syndrome. Celiac disease is possible and worth testing but look into gluten intolerance also as it's more likely and can explain some of your symptoms. Gluten intolerance is tested by checking for antigliadin IgG and IgA antibodies (which is also the older test used for Celiac disease - the newer test will miss gluten intolerance). If antigliadin is positive, you can get the newer Celiac test to differentiate between Celiac's and gluten intolerance. You may be able to treat the gluten intolerance with probiotics.
    stanleybrown 29 Replies
    • November 24, 2008
    • 05:14 PM
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