Discussions By Condition: I cannot get a diagnosis.

So many different symptoms for months now, do they relate??

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: bbanning
  • January 25, 2009
  • 00:36 AM

Can anyone please help? I am not sure what to do.

My problems started back in September '08. I started noticing my stomach swelling up all the time. It was always hurting and swollen and it was really frustrating to me. This went on for a couple weeks to where it was hurting so bad I went the hospital. They x-rayed me and said there was a bunch of trapped gas and old stools (sick I know) and gave some stuff to test at the lab. Nothing came back positive. I just pretty much stopped eating because I realized it was mostly food related. I went to a gastro and did an edoscopy to check for Celiac. Nothing. I went to an allergist and he tested me for certain foods, I have some allergies that make it worse and going off dairy helped too, but I still always swell/have pain in my abdomen no matter what I eat.

During that time I had this strange vision/dizzy/weird feeling ALL the time. I felt extremely tired for a month straight and just so strange. I would get heart palpitations often and feel like I was going to have a panic attack sometimes. This was around October/November. The heart thing hasn't been as bad lately but I had this crazy intense heart palpitation for a few seconds the other night, scared me so bad. I'm also still feeling just weird all the time...I know that isn't a very good description but I'm not sure how to describe it.

My throat has been in pain from October to now just on the left side. Tested for strep, nothing there. The doc gave me some antibiotics but they haven't helped much. I'm going to another doctor on Monday because it's been months now and it still hurts really bad.

So I've gone to different doctors and I know I don't have inner ear problems, a thryoid problem or anemia, or celiac disease. I'm just not sure what's going on!! And I'm tired of them trying to blame it on something mental. Anyone have any ideas? At least what kind of doctor I should see? A neurologist, stomach doctor, throat, internist...?

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4 Replies:

  • Hi, did you eat fish back in September or August. I have a lot of those symptoms and more.. Food poisoning from Tuna. Ciguatera. It's a neuro-toxin. But there is a lot of toxins that cause a bunch of problems. Anyway, I got sick right away. But my friend who had the same exact dish for lunch didn't get sick until the next day more like flu symptoms. So, this is something you need to think about what may had initiated the stomach problems. Just a suggestion. I have been so sick with what I have and I am concerned there are more people who have been affected then they even know... good luck
    Fanfayr 9 Replies
    • January 25, 2009
    • 00:58 AM
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  • do you regularly drink milk or have other dairy foods? do you regularly have any type of beans?
    Mistergood 4 Replies
    • January 25, 2009
    • 08:47 AM
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  • How are your bowel movements now?Where is the swelling?Did you have an abdominal sonogram?Was your pancreas checked?How about your gallbladder?Does eating cause the pain?Where does it hurt?How does it feel?
    richard wayne2b 1232 Replies
    • January 25, 2009
    • 01:19 PM
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  • Hi, Just because you tested negative to celiac, does not mean you don't have a sensitivity to gluten. I do not have celiac disease, but am sensitive to wheat and Gluten. I had/have many of your symptoms, and largely eliminating gluten seems to have helped... Not easy to do, but it has helped,especially with the heart palpitations and bloating. My doc said it was an allergy vs celiac (immune) I also have MANY other allergies. Keep a log of what makes you feel worse, and if you don't eat it, do you feel better? Hope this helps. The Doctors don 't have all the answers, sometimes WE have more insight into what is going on. It Is our bodies after all.
    Anonymous 42789 Replies
    • January 25, 2009
    • 02:52 PM
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