Discussions By Condition: I cannot get a diagnosis.

So frustrated...drs. have to missing something!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: smallm
  • October 15, 2009
  • 04:30 AM

Some of my 11 yr. old symptoms: tantrums; self-injurious behavior; aggression towards people, animals and any object in his way; cognitively impaired; short in stature; problems falling and staying asleep; EXCESSIVE energy; makes sound effects; hand-flapping, recent x-ray of growth plates resulting in what doctors says shows a greater than 2 years difference; recent cat scan showing somewhat underdeveloped gland in brain; height is changed very little in 4 years and and has lost weight though height has barely changed, etc. etc.!!!!!! We are exhausted. The doctors don't listen. Schools say he is just cognitively impaired. He has even been diagnosed as autistic. Allergy tests have been done and glutens tested-all great. Behavior can only be described as jekyll and hyde. Please, does anyone have any information that may help us? Even doctors say with the medication that he has tried over the years, there should be some positive effects, even if autistic. We feel like the doctors are missing something, something rare or even something simple that has been missed. Please, any information!! Everyday he is getting older and still no answer.

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3 Replies:

  • I have heard of children having reactions to the dye used in food. One article told of a child that would completely freak out (screaming and kicking) within 15 minutes after eating anything with red dye in it (like ketchup). I would start a journal and see if there is any pattern to his behavior. A food journal wouldn't hurt either.
    Anonymous 42789 Replies
    • October 15, 2009
    • 05:59 PM
    • 0
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  • Some of my 11 yr. old symptoms: tantrums; self-injurious behavior; aggression towards people, animals and any object in his way; cognitively impaired; short in stature; problems falling and staying asleep; EXCESSIVE energy; makes sound effects; hand-flapping, recent x-ray of growth plates resulting in what doctors says shows a greater than 2 years difference; recent cat scan showing somewhat underdeveloped gland in brain; height is changed very little in 4 years and and has lost weight though height has barely changed, etc. etc.!!!!!! We are exhausted. The doctors don't listen. Schools say he is just cognitively impaired. He has even been diagnosed as autistic. Allergy tests have been done and glutens tested-all great. Behavior can only be described as jekyll and hyde. Please, does anyone have any information that may help us? Even doctors say with the medication that he has tried over the years, there should be some positive effects, even if autistic. We feel like the doctors are missing something, something rare or even something simple that has been missed. Please, any information!! Everyday he is getting older and still no answer.Start with diet, keep it very simple and low protein-high carb at first. Gradually add items one at a time for 2-3 days each. Keep a food journal. Most allergy tests are a joke as they only test for what is on their list, not things like the other reply suggested. One obscure substance could be the key.Have cortisol levels tested as adrenal gland can cause growth disorders, also the pituatary gland. Also, the meds he is on could actually make this worse. The less drugs in a child's system, the better.Good luck,Kirby
    Anonymous 42789 Replies
    • October 17, 2009
    • 00:28 AM
    • 0
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  • Some research is indicating that autism and certain behavioral problems may be related to living too close to a cell phone tower, or even cell phone use. Might want to look into it.I recently read an article about a child that would do abnormal things, mostly violent, would not listen...obviously he couldn't because his mind was full of racing thoughts and high energy. The doctors diagnosed the usual..ADHD and fed the kid medicine. Please im not insisting anything im just saying, it took many FAILED doctors and 1 that truelly cared..it was as simple as a vitamin deficiency.
    Anonymous 42789 Replies
    • October 17, 2009
    • 06:19 AM
    • 0
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