Discussions By Condition: I cannot get a diagnosis.

So frustrated...any thoughts?

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • March 26, 2008
  • 00:00 PM

Over the past two months I've been dealing with tingling of the left knee down, left elbow down, lower back & buttocks, right shoulder. I've also been getting sensations on the rear of my head. Recently, I've been dealing with aching knees, calf muscle and the heels of my feet (not weakness or drop foot just achiness). I've had increased vision floaters, headaches, anxiety (on alprazolam for that), and at times I feel confused. My stomach often feels queezy but I'm sure that's from all the stress of not knowing what is wrong with me. I constantly have lower back aches


I've had an MRI done of my head and cervical spine both with and without contrast to rule out MS or a brain tumor and the results came back normal although my neuro did point out that I have some mild disc compression in my neck (can't remember what discs) but mentioned that mostly everyone has a degree of disc disease (??)

I also noticed that after I let my guard down after being told that my MRI's came back normal that I was only dealing with some real mild tingling however then I started mensing and it seemed it all came back.

Well, after reading some of the posts on here and after my neuro told me that while what I am feeling is real and not something I'm making up, sometimes, in some cases there is no diagnoses given. She told me to revisit her in 6-8 weeks and thinks that the tingling should hopefully subside on it's own. I decided to call her up and ask her if she thinks a Lyme test would be appropriate considering I was exposed to ticks this past summer/fall, however I don't remember being bit or seeing any site of infection but most of what I feel are symptoms of Lyme Disease.

Sorry, I've rambled on in this post and my major question is.......since it is so hard to diagnose Lyme without seeing the "bullseye" from the bite, what if my blood work comes back normal? What is the next step? What do I ask for then? My blood has been tested for any signs of inflamation caused by arthritis, fibromyalgia, thyroid levels, diabetes, etc.....and all blood work has come out normal.

I just want to feel normal again especially for my 4.5 month old son!

TIA

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2 Replies:

  • How old are you Tia? Have you been tested for thyroid...and autoimmune thyroid disease? Have you had your hormones (ovarian) tested? Have you been tested for any other autoimmune diseases? Joan
    Joan5555 316 Replies Flag this Response
  • LOL, my name is not Tia....that means 'thanks in advance'! I am 29 years old. I have had my thyroid levels checked and all are within normal ranges. I'm not anemic and don't fit the profile for lupus. I do fit the profile for R-Athritis BUT she couldn't find any inflamation in the blood tests she had me undergo so perhaps that means that's not an option.
    Anonymous 42789 Replies Flag this Response
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