Discussions By Condition: I cannot get a diagnosis.

so frustrated

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • August 21, 2007
  • 07:46 PM

I'm 24 years old and have been getting UTI-like symptoms since starting my current sexual relationship (past 10 months.) Although I've had symptoms around 17 times in the last 10 months, I have had a proven infection only about 5 times as most often the symptoms start at night/ on a weekend/ holiday- and emergency doctors in the UK (for some strange reason) can't take urine samples so I've only had my urine tested 5 times. It has become really painful lately and no matter what antibiotics I'm on they don't seem to get rid of the pain/frequency. I've had a cystoscopy done- everything was normal, also a kidney ultrasound- normal too. The symptoms definitely get worse after sex, although even without having any sexual contact for almost 2 months I still had a constant burning feeling in my urethra and a fullness in my bladder with urinary frequency (although no sharp acute bladder infection symptoms which I get with sex.) Sex is quite painful now, although it's never been a problem with any previous sexual partners, also I've never had so many infections before (had only 2 in the last 7 years). My partner and I have both been repeatedly tested for STIs- everything negative. I drink plenty water/ take cranberry tablets/ pee after and before sex/ cotton knickers/ good hygiene, the whole recommended deal for utis and I still can't win! My doctor now wants to put me on long-term antibiotics but I'm reluctant to do that as they give me constant diarrhoea and thrush, and don't seem to help anyway! Any other ideas/ help would be much appreciated. Has anyone had alternative therapies for urinary problems, that worked? I am getting so frustrated and fed up, it's really affecting my relationship besides all the discomfort and pain.

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7 Replies:

  • I have the exact same problem.....getting an ultrasound done in a few weeks but doctor just thinks I must be prone to UTIs but i dont want to have to take antibiotics all the time because I always get thrush when on them...
    Nymphete 21 Replies
    • August 22, 2007
    • 06:47 AM
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  • Interstitial cystitis? Is your partner too well-endowed? Maybe a different position might help. Get some uro-stat or pyramidine (sp?) over the counter at the drug store. If this helps, and it will dye your urine orange, you will know that it is a urinary tract problem. If not, go to the gynecologist (again).
    rad-skw 1605 Replies
    • August 25, 2007
    • 11:33 AM
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  • I was thinking interstitial cystitis but apparently a cystoscopy would've picked that up??? And would that have started with sex?My partner is pretty big, bigger than previous partners- do you think this could be causing it? Any ideas on positions that wouldn't hurt? Lately, the pain seems to get worse after I pee, rather than during urination, which is weird. My urethra and lower bladder just start spasming after I go to the loo, for about an hour, and then the pain subsides until I go to the loo again. Also, sex has been unbearable lately- so sore on entry and even worse during the sex itself. Afterwards, I'm so swollen and burning down there I can barely walk! Could this be thrush- I don't have any discharge, it just swells and goes red and feels kind of raw.
    Anonymous 42789 Replies
    • August 25, 2007
    • 05:00 PM
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  • I feel for you!!I had some issues the past 2 years with this (though not as severe as yours) and I've recently been diagnosed with intersistial cystitis. I had gone for more than a year and a half with recurring 'UTIs', or what I thought were UTIs since I wasn't always able to get a urine sample taken to confirm. So I would be prescribed antibiotics but the sensation would come back at a later date. I was ready to freak cos I was doing EVERYTHING to prevent UTIs (like yourself), inc taking cranberry pills, cotton undies, being a clean freak with sex, etc etc. Then my doc sent me to a urologist who performed a cystoscopy and distended my bladder which helped the symptoms some. The doc said I only had a mild form of intercystial cystitis, and that was only from ruling out other possible causes - he didn't actually see anything unusual on the cystoscopy.But it all made sense (my aunt has intersistial cystitis as well) and at least now I know enough to recognize some 'triggers' - one of the MAJOR ones being cranberry juice and anything citrus/acidic!NOT that I'm a doctor or anything, but at least until your insurance kicks in it can't hurt to modify your diet for a week or 2 (and yes, stop the sex for awhile) and see if you get some relief. If you're not getting any or if things get worse you should absolutely go back to the doctor regardless of how futile it seems!You chould also check out these websites for some more info:www.ichelp.orgwww.ic-network.comHope this helps some!:)
    Anonymous 42789 Replies
    • August 28, 2007
    • 00:39 PM
    • 0
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  • You did not mention whether you use any particular form of birth control. If you do, for example, a condom, possibly you are allergic to latex. If you use contraceptive foam, you could be allergic to an ingredient in it. One way to check if this could be the cause, is to go on the pill, quit using the foam and condoms (although the latter may put you at increased risk of contracting STD's if either you or your partner are not monogamous). However, because of symptoms given, for example, the burning sensation after you pee and the pain upon your partner's penetration, and the swelling, it makes me think you might have vaginal thrush although an allergy to latex or some foam ingredient could cause the same problems!! Just things you might want to consider. Hope this helps in some way!
    Anonymous 42789 Replies
    • August 29, 2007
    • 08:50 AM
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  • I use the pill as contraception and have done so for the last 6 years without problems. I think I'm allergic to latex (condoms make me swell up down there) so I try avoid them.IC- thanks for the websites, I will give the dietary changes etc a try. Anything is worth getting rid of this! Is it possible for IC to start after beginning a new sexual relationship?By the way I have been on d-mannose for the last week and the pain seems to have gone down- anyone hear of this? Is it genuine?Also, does anyone know of any good GPs in Bristol UK, who have dealt with interstitial cystitis/recurrent urinary problems etc? Mine doesn't seem to be very concerned or helpful regarding my problems. And any good alternative therapies?
    Anonymous 42789 Replies
    • September 2, 2007
    • 07:06 PM
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  • check out the website webmd.com, your symptoms pulled up like 20 conditions. take a look and rule them out one by one. Then see a different doctor.
    Anonymous 42789 Replies
    • September 3, 2007
    • 06:48 AM
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