I feel like a medical mystery show on TLC...... I hope there's enough room here for me to post this crazy story. Thanks if anyone actually gets through it. I am a 33 year old white male 6' 6" 250LB (Normal range is 200LBS). I'm currently seeing specialists, and they are all in the "I have to run some tests." stage. Most doctors I see seem overwhelmed by the number and broad spectrum of my symptoms. However, the symptoms can all be tied together by the fact that they all flare up and subside at the same times.
I'll start where the symptoms started......After having a broken tooth in the front (1998) which reinfected many times, and a terrible months long battle with impacted and infected wisdom teeth, (I'll spare that story!) I began having problems with bleeding from my mouth. At this time I still had the half front tooth in my mouth (no insurance). The tooth reinfected several times before I finally had it pulled (2002). During the time it was getting reinfected, I was noticing other strange symptoms such as a slight buzzing in my left ear, aching in my left jaw and underneath the jaw where the gland would swell, slight distortion of the vision in my left eye, dizziness, diarrhea in the mornings, bouts of dizziness (especially while standing or sitting, nighttime and waking the worse), and random mouthfuls of blood. Also accompanying these symptoms comes strange other intermittent symptoms like a sore spot in the throat that may last a few hours to a few days, sore spots on the gums that only last until some blood comes out, then the soreness goes away, shooting pains in my left jaw, and headaches that come and go feelings of poor circulation and oxygen starvation, shallowness of breath, loss of energy, and general overall decline in health have gotten more and more prevalent over the past several years since the beginning of these symptoms. All of the symptoms seem to be much worse first thing in the morning, or while tired, or lying down. Since this started, there have been many times where I was on antibiotics for varying reasons for whatever the dental or medical reasons were at the time. Antibiotics used to all but eliminate these symptoms almost immediately, all of them. However, after every course of antibiotics, the symptoms would slowly but surely return to full force, then begin to incrementally worsen. I was without insurance for quite some time, and treating something that no one could pinpoint was quite impossible. Incidentally, the reoccurring symptoms got worse. The blurred vision is even blurrier when it flares up, the buzz in my left ear has become total ringing in both ears, the area in my neck and under my jaw on the left side feel tight and under pressure behind my left eye, my eustation tubes are closed, but my ENT sees no reason why, the intermittent mouthfuls of blood were very bad for a few years, then petered off to where I only get smaller amounts of blood, and less often, but all the other symptoms persist. Now, my left gland under the jaw doesn't swell anymore it just stays a hard little knot that hurts. Also, antibiotics do nothing at all anymore. My ENT is treating me currently for "Signs of chronic infection.". As soon as I started the Antibiotic treatment, the symptoms seemed to get WORSE! I have kept up the treatment though because I am not a doctor. I have experienced a change in my whole chemistry over these years and have had many other smaller issues that come from general bad health such as terrible breath in the mornings and after oral bleeding, shortness of breath, jock itch, athletes foot, weight gain due to lack of exercise....etc. I have never been prone to any of these things until I started with this crazy trip. I smoked cigarettes for 18 years quit one month ago. I have been feeling marginally better because of that, but have seen no reduction in these symptoms. Sometimes the ringing in my ears can be maddening. I am getting extremely frustrated by watching my doctors scratch their heads. My ENT tried to tell me that all these symtoms could be unassociated, and just from different random causes. However, seeing as they all come and go at exactly the same times, get better or worse at all the same time, and all seem to have started and gotten worse together these symptoms must point to a commonality in my logic. But I'm no doctor....*sigh* I've actually been to the emergency room because of this issue because it's pretty scary sometimes. I've experienced dizziness that almost caused fainting, bad headaches and bleeding from the mouth, shortness of breath, etc., gone to the emergency room, and have been told everything from "Sinus/middle ear infection.", to "TMJ", to "It's the marijuana.", or "there's nothing wrong with you." I've even been referred to a psychiatrist! Maybe they thought the blood was coming from my brain? Haha I don't know. All I do know is that I am very scared and have been suffering with and frustrated over this for almost ten years now. I have another appointment with my ENT who thinks the symptoms could be unrelated tomorrow. I'll update this if he has anything important to add. Just for the record, I've had chest/head/dental x-rays, head/sinus/soft tissue neck CT scans and all blood work done recently. Still a lot of head scratching...... I’m still freaked out about it, and have had crazy “I’m dying” thoughts for years because I know darn well I’m not making this crap up, because there’s proof of the symptoms, but no evidence of the cause……. It feels a lot like infection, I’ve been told that blood tests show no infection, but I swear I taste it sometimes when I spit blood. Infection in the face for a long time just can’t be a good thing……..I don't know.....I'm very scared and frustrated. This affects my energy, general health, and sense of wellbeing. Please, if anyone has any hope for a resolution or diagnosis, I'd owe you my happiness!
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