Discussions By Condition: I cannot get a diagnosis.

Slurred speech seizures and more

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: for my girl
  • February 20, 2009
  • 03:35 AM

Hi ,

After 3 years of doctors shrugging their sholders both my girlfriend and I are taking matters into our own hands to try and get some answers,

3 years ago my partner was at work when she had a seizure, a bit like an epileptic seizure, knocked herself out in her class (she's a teacher) and had to be admitted to the emergency dpt, she was dopey for a few days and had initially no short term memory but it slowly returned over the next month or so, 3 weeks later it happened again.

Since then she has had random symptoms like instantly her speech will go slurred as if someone turned off a switch, some times for an hour, sometimes for weeks, she constantly has tremors in her hands, sometimes so bad she cant use a computer, frequently has numbness on the left side of her face or down her left arm or left leg, and of course has seisures occaisionally.

The doctors have told her it's stress, which is rubbish, we have just been overseas on holiday for a month and while out at an amazing restaurant with friends she was reading out the menue when instantly her speach went totally in the middle of a sentance and came back after about 15 mins, then came back completely the next morning, there was no stress at all and we were on an amazing holiday just her and I.

She's a small person and the doctors have her on loads of medication but it just doesnt seem to be the answer, she has had EEG (showed faster than normal brainwaves on one side of her brain), MRI (showed a small scar from birth, no tumor or clot or bleed) and all her bloodwork is normal,

She is at the stage where if it happens much more she wont have a job and this is effecting so much of our lives on a daily basis, shes only 28 and this just shouldnt be the case

Can anyone help? does anyone else have the same thing?

Hopefully
Gregg

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1 Replies:

  • Hi Blaze, thanks for your input, I should have mentioned she is on the following medicationsEpilim - 2000 mg per day - for presumed epilepsy but not confirmedefexor - 225 mg per day - depressionMogine - 100 mg per day - for seizures (thats also hat the epilim is for!)Calcitriol - 0.5 mg per day - for osteoperosis - diagnosedSeroquel - 200 mg per day - mood stabalizer - aparently the doctor thinks she has bipolar??Now I was married to someone and with them for 8 years who had bipolar, there is no way my girlfriend has this.We are now thinking it's medication issue, two meds for seizures??? and two meds for mood/depression???The doctor really hasnt done any research on the whole thing I dont think.thanksGregg
    for my girl 1 Replies
    • February 22, 2009
    • 06:27 AM
    • 0
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