Discussions By Condition: I cannot get a diagnosis.

Slowly progressive paralysis & other junk for 35 years - help!

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • September 21, 2010
  • 07:02 AM

I've had a complex mess of problems getting worse for the last 35 years; unusual stuff, not just aging.

Gastroparesis and other GI motility problems which have been life-threatening. Leg muscles which can range from semi-normal to fully paralyzed, and ache much of the time. What for most people would be normal stress can put me into physical collapse. That and much more is mostly episodic, triggered by some things I'm aware of and others I'm not.

Is this an OK forum to pick peoples' brains about this? I'm trying to figure out whether my life expectancy is shorter or longer, to responsibly plan for my family.... plus it'd be great to understand the underlying basis of whatever-it-is before I go.

Thanks in advance...

DJ

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