I have "episodes" during the day where I feel extremely tired, as if it is 2am or I've been drugged, but I can't fall asleep even if I try. I sleep well at night, and get 7-9 hours most nights. With the episodes, I often get chills, and it often feels like severely hard work to breathe (but my airways/lungs are fine) and I end up panting out of breath or breathing really slow (about 3-4 times per minute.)
These episodes usually come on about 10-20 minutes after eating or drinking, but I don't think it's food allergies because it has happened even after just a glass of water. Sometimes they come on after a brief physical exertion, such as squatting to check the lowest shelf at the grocery store.
I have neurological symptoms (dystonic muscle spasms and apraxia of eyelid opening) that flared up when these episodes started happening, and tend to occur with the episodes, but the neurologists don't think these episodes are caused by a neurological problem. Other medical history: mild allergies/asthma; microscopic colitis; rosacea. Family history of thyroid disease- my maternal grandmother and both her daughters. But my thyroid tests have been normal. Great grandfather had parkinson's in his 80's; neurologists tell me that is insignificant to my case.
Doctors have been testing me for 6 years, but all tests have been "normal" including MRI, EEG, and extended sleep study. I'm not expecting any miracles here, but the doctors are out of ideas so if anyone here has any......... please help!