Discussions By Condition: I cannot get a diagnosis.

Skin Pain Forever

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: waterdeepchu
  • December 6, 2010
  • 03:00 PM

First off: im male, 25 years old, whos lived in several different states in the US over the course of that time.

For my entire life, the whole of my skin has been absurdly sensitive; I cannot stand being touched becaue of the level of pain it brings about, and will pull away wholly through reflex at even the softest contact. My entire body is this way, with more sensitive areas being more painful. In many cases even my own touch is painful, while it is painful without exception when someone else touches me. This is without any clear physical reason: no rash, sunburn, anything.

There has never been a time when this wasnt the case; i recall at least from 10 years old making comments to my parents, along the lines of "we're luckly all pain doesnt make us cry, or we'd never stop" only to be rebuffed with obvious confusion on their part, in retrospect. This isnt something that comes and goes, and isnt new, its always there.

Not until my first sexual encounter did i realise this was not how most people felt. As the sensitivity in those areas is extraordinarily high, it has basically left me with no sex life, and no intimate physical relationships. Ive tried searching, all over, for anything like this...but all I ever see are people for whom the condition is a new thing, not one mention of a permanent state that i could find.

Any help in finding an answer, a name, ANYTHING to give me even a basic starting off point, any of this would be astoundingly helpful, and will get my eternal gratitude, for what its worth. Thank you all for reading.

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7 Replies:

  • Hmm maybe you are an allergic? Does your skin look innormal?
    rkoziol7 1 Replies
    • December 6, 2010
    • 06:40 PM
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  • Nope, looks fine. But remember: This condition has been perpetual, from my earliest memories. If anything looked wrong, itd likely appear fully normal from my point of view. But as far as i can tell, the weirdest thing is an errant freckle or two.This is all over, my entire body. and its never not been this way. The only way I can explain it, at all, is to ask you to imagine going through life without any idea what "physical pleasure" is. I know people *act* like it feels good to be touched and stuff, and I know its definition, but for me its only been pain, always been pain x.x
    waterdeepchu 9 Replies
    • December 7, 2010
    • 01:20 AM
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  • It could be "sensory defensiveness". There ought to be a better name for the thing, but the idea is that certain types of sensory inputs are extremely irritating to sensory defensive people, even though they are no problem at all for most people. For some sensory defensives the problem is being touched, but for others it can be certain sounds, certain types of light, certain smells, etc. (Many people even have a combination of problem sensations- aren't they lucky?) However, I always thought that the effect of these sensations wasn't really "pain" so much as that the problem sensation just feels too intense for these folks, and also that it triggers a fight-or-flight type of feeling. But you may want to look into it even so. I'd be interested to hear what you think.
    Walker12 30 Replies
    • December 7, 2010
    • 05:08 AM
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  • OK- having looked into sensory defensiveness a bit more, it turns out that the problem sensation can in fact be painful. Or it can just cause a fight-or-flight feeling. Or it can just be too intense. Or some combination. It all depends on the person (or on the sensation, in cases where the same person has a variety of problem sensations).
    Walker12 30 Replies
    • December 7, 2010
    • 05:39 AM
    • 0
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  • I would start by seeing a good neurologist about this, because it is a nerve issue, try to get a referral from someone you trust. they will be able to help you pinpoint what it is, and hopefully can find a way to calm your nerves so that you can be touched without pain. there are some drugs that help with neuropathic pain that might offer you some relief, but finding the cause is really important too. i cant imagine how hard this must be to live with, and i hope you find a great doc. please post if you do find out what causes this, i am really curious.
    safyreshel 8 Replies
    • December 8, 2010
    • 09:55 AM
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  • I'm not a doctor, and I don't have quite the same issue as you do. For me it isn't constant, but there are times when my skin just feels like its being electrified when touched, even by clothes. This isn't true for other sensations such as heat or cold, just touch. My problem is much worse when I have been sick or over-exhausted. It can also flare up when I am depressed (I have chronic depression and anxiety). It has been suggested to me that I might have fibromyalgia. This is a condition of the nerves, by the way, not the skin, so there wouldn't be any visible signs. I would talk to a doc about this and try to get a referral to a neurologist or a geneticist to find out what testing can be done.That said, I hope that you hang in there and I want you to know that you are not alone. I have always had excessive pain (as my family, too, didn't realize I had). If it does turn out to be nerve pain, there are medications that can help.Nope, looks fine. But remember: This condition has been perpetual, from my earliest memories. If anything looked wrong, itd likely appear fully normal from my point of view. But as far as i can tell, the weirdest thing is an errant freckle or two.This is all over, my entire body. and its never not been this way. The only way I can explain it, at all, is to ask you to imagine going through life without any idea what "physical pleasure" is. I know people *act* like it feels good to be touched and stuff, and I know its definition, but for me its only been pain, always been pain x.x
    Anonymous 42789 Replies
    • December 8, 2010
    • 10:05 PM
    • 0
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  • Hello Water,Thanks for mentioning Exploding Head Syndrome. I spent some time reading on it. It was the thing that I needed to read about.I am replying to this post because I just found an interesting article on research on red-haired patients who happen to need more anesthesia to prepare for surgery than other patients that are not red-haired. The article deals with genetics and pain.http://healthland.time.com/2010/12/10/why-surgeons-dread-red-heads/?hpt=T2There is more, but I have to sit down and read it carefully.P.S.: Are you familiar with gout or high uric acid? Your doctor could check your uric acid. This is a long shot, but people have documented extreme pain when touch. It is almost like 'gout all over'. It is painful to suffer and I always wonder if uric acid was part of the equation.Best,Fruity.
    Eatafruit78 960 Replies
    • December 11, 2010
    • 06:40 AM
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