In January 2010, my 32-year-old sister began experiencing unusual fatigue, weight loss, and burning in her lymph nodes and feet. Doctors ran dozens of tests but everything came back normal and they could only diagnosed her with idiopathic fibromyalgia/ neuropathy. The medications they prescribed did not help, and her symptoms got progressively worse until September 25 this year when she began to experience extremely low blood pressure and memory loss. Since then, she has been to the ER 13 times (including 3 in the last week) at 9 different hospitals for shortness of breath, body numbness, and high blood pressure in her head. She has been seeing a primary doctor, cardiologist, rheumatologist, and neurologist, received 5 CT scans( with and without contrast), 2 MRIs (with and without contrast), 1 nuclear heart test, and over 50 blood/biochemistry tests and no one has been able to diagnose her.
The only possible complication: she has 3-year-old silicone gel breast implants, but we recently spoke to a breast implant poisoning doctor and she doesn't believe the implants are the problem.
This week, she received a CMP and tests for Babesia, Lyme, and other infectious diseases, but everything came again back normal. Now she is considering removing her breast implants as a last resort, because she does not know what else to do. Her condition has taken a huge emotional and financial toll on our family, with no end in sight.
Please, if anyone has suggestions or knows a doctor who treats unknown/ mystery conditions, please let me know because she is struggling every day and now must face having an expensive breast removal surgery that may not help her at all.