Discussions By Condition: I cannot get a diagnosis.

Similar symptoms to MS but MRI negative

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • July 19, 2008
  • 01:51 AM

Hi, I'm 30 years old and have been having ongoing health problems. Previous medical history includes: juvenile rheumatoid arthritis (only recurring in the last 6 years), numerous abdominal issues (adhesions with no known cause, nissen fundoplication, my gall bladder was removed Dec. of 06 then resulted in a bile leak and then 1500 level pancreatitis). Started feeling better after recovering 4 months from my gall bladder catastrophy but then started getting short of breath, chest pressure causing me to think I was having a heart attack, unknown upper abdominal pain, dizziness, weakness, near syncope, bp standing of 80/55 and numbness and pain going across my bra line. After many tests it was concluded that I have P.O.T.S (postural orthostatic tachycardiac syndrome). This is still not under control. Excessive fatigue and chest pressure. Within the last few months I have also been having vision problems including blurring, dullness, and a feeling of being disconnected from what I am seeing. I was driving with my 5 year old and everything tunneled and all I could see was bright light. Since then I have not driven. This is very disabling. I have been seeing a neurologist optimologist and there is still not a conclusion. My eyes seem to exam different. I have had numerous doctors say it sounds like MS but after 2 MRI there is nothing showing up. Any ideas?

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2 Replies:

  • This link might help you. www.lymenet.org
    Anonymous 42789 Replies Flag this Response
  • You may have misdiagnosed. P.O.T.S. , while an understandable diag. doesn't completely correct. Sounds more like OI (orthostatic intolerance).Best wishes.
    aliceanna 41 Replies Flag this Response
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