Discussions By Condition: I cannot get a diagnosis.

sick tired and scared

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: miserableMOE
  • January 19, 2007
  • 06:38 PM

am a 34 yr old female. Last year ( 2006) was a pretty rough year for me physically and health wise. Last March, I started getting migraines for the 1st time in my life. Was in ER several times trying to break what turned out to be a 4 week migraine. Started getting 1-2 a month since then. I am very tired all the time. I have a mild headache every day. I began what my Dr said was hot flashes in April 06. My hot flashes, which I call episodes las 45 min to an hour and happen 2-3 times a day. My blood pressure has been up and I am told it is from the pain in my back due to a herniated disc. My back and insides constantly feel horrible. I have gained 20lbs and do not really even eat much. I am usually 115 lbs and blew up to 130? I eat very lean and healthy. I had blod drawn in Oct while I had a kidney infection. My Dr. said my norepinephrine level came back at 600. Should be 0-399. My total catecholamine levels were 723 and should be 0-640. He said could be pheochromocytoma? Did 24 hour urine and came back OK. My insurance will not cover PET scan. I am very worried about this. I have and anyone I know has never heard about this. My own Dr. hasn't treated a patient wuth it. Because urine was ok Doc and hubby do not seem worried. My mom had cancer at 55 and had a tumor on her adrenal gland along with many other sites not knowing primary. There are days I do not feel like getting out of bed. I am exhausted and now all my muscles are aching. I feel like my insides are bruised black and blue. Any advice , similar story would be greatly appreciated. PLEASE, I AM DESPARRATE...THANK YOU
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  • do mention an anxiety related to her.sorry to hear of your trouble.since migraine was the first manifestation here,i think you may like to read oliver sacks book "migraine"i would not normally suggest this but you seem intelligent enough to tackle it .it will save me a lot of typing here! it may seem a little dense at first but it is really quite readable.you may remember oliver sacks,as played by robin williams,in "awakenings".he is a profoundly humane ,decent man,and doctor.he explains how migraine,once established,can produce a dizzying variety of symptoms,seemingly unrelated,and inconsistent with our usual,simplistic conceptions of the condition.obviously,it may all be unrelated to migraine,but it did show up first and in grand style!it is a bit of a clue,and worth considering while other investigations proceed.he will imply what you are to do,if you take my meaning:it may require some close reading to identify your pattern,and some self examination,introspection and personal reorganisation,all of which may be difficult;but they are better than what you are going through.he fixed me,from a three day blast every two weeks i am down to the occasional slight shadow of a migraine attack,the last one over a decade ago.many migraine people also benefit from "rational emotive therapy"by albert ellis .you only need to read a few pages of this,just the list of"core irrational beliefs".mother plays a role in the genesis of migraine(though sacks does not mention this) and you do mention an anxiety related to her.this raises an eyebrow.while some cancers do exhibit a slight tendency to inheritance it is only very slight,and i believe that cancer of the breast is the most prominent.a primary in a breast would not have gone unnoticed.stop worrying about this aspect of it .you are not your mother.and you are not doomed to repeat her suffering in your life.keep us informed.many of us worry about the people we try to advise though perhaps we shouldnt.
    Anonymous 42789 Replies
    • January 20, 2007
    • 01:11 PM
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  • Thank you for the reply. I will definetly look into Oliver Sacks' book. Willing to try anything. I go see family Dr. on Mon and he will give me names of Endo Dr.s in my area. And I do have many anxieties about my mother. Probably too many. Somehow feel I will receive same fate.Thanks again
    miserableMOE 52 Replies
    • January 20, 2007
    • 05:32 PM
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  • thank you for replying to me .i am most concerned about you.please tell me ,as it is unclear from your post, is your mum actually o.k. now-or did she die?if so ,when?do you have brothers and sisters,or are you the only one?would you be prepared to tell me a little about her character,or would that be too upsetting?stay brave.
    Anonymous 42789 Replies
    • January 20, 2007
    • 06:45 PM
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  • Unfortunatly, my mom passed away right after her 56th birthday. I was 27 and my daughter was almost 2. This was so devastating because my mom was such a caring and wonderful person. I was born with kidney disease and she was always by my side growing up. And I never even seen her suffer from anything more than a cold! Her total time from diagnosis to her passsing was 11 months. I have 2 half sisters but they are older and way differant from me. I have always been very affectionate, huggy feely and they are just very stand offish. I have a relationship with my daughter that I had with my mom which is very special to me. But it is so hard, for the last couple of months and my not feeling anything but horrible, my daughter doesn't understand. I promise to you , I give it my all everyday to get out of bed, showeer and try to attend to her needs but I just feel horrible. My husband works alot and the responsibilities are overbearing. Alot of the time my pain and discomfort makes me vomit and she has witnessed this. She is only 8 and I am so scared but do not want that to show through to her. If I do have this tumor on my adrenal gland, there is a chance it could be cancer. I was never a pesimist before my mom got sick but I can't help but be one now. Every time they did another test on my mom , they found more cancer! I am glad I found this website because I was really starting to get depressed. It helps just to hear anything from anyone. Thanks again
    miserableMOE 52 Replies
    • January 20, 2007
    • 07:04 PM
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  • what makes you suspect that you have an adrenal tumour?
    Anonymous 42789 Replies
    • January 20, 2007
    • 10:25 PM
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  • First of all I am sorry for your pain and you are not alone. Secondly, please take a proactive stance with your health! There are many things you can try and see if they help you feel better. How is your diet? How is your digestion? you say you eat well, which is great, but do you take any supplements? Are you on any medications? Which ones? Doctors don't diagnose or treat candida overload and there aren't many good tests for it. You must do this yourself - please visit www.candidasupport.org and www.wholeapproach.com two very good websites about candida. Candida overload can cause a huge and seemingly disassociated array of symptoms. Please look into this and consider a good cleanse. Two months minimum to get you back on track. Also, please consider trying acupuncture and find a practitioner who specializes in Chinese herbal medicine. This can be so effective! And you do not need a western diagnosis as we treat disease very differently. To find one near you visit www.acufinder.com Lastly, go and buy a tincture called Rescue Remedy. This is an excellent remedy for stress and emotional trauma, which you are still experiencing over the tragic death of your mom. You can find this at any health food store and it is wonderful for evening out your emotions. Put 4 drops in a glass of water. Drink at least 8 glasses of water a day and you can use the Rescue Remedy as often as you need. Hope this helps and good luck to you.Doctor of Oriental Medicine Hope this
    acuann 3080 Replies
    • January 20, 2007
    • 10:48 PM
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  • what makes you suspect that you have an adrenal tumour?My blood work came back and norepinephrine level was 600 ( 0- 399 norm) My VMA or VAM levels in 24 hr urine were high. My main symptoms are : high blood pressure, sweating episodes and daily headaches. My family Dr. mentioned that this could be the result pf pheochromocytoma ( adrenal tumor) Wants me to have PET Scan but insurance will not cover it:mad:
    miserableMOE 52 Replies
    • January 21, 2007
    • 00:12 AM
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