Discussions By Condition: I cannot get a diagnosis.

Sick since August and still no diagnosis... help? (pain, weakness, fatigue)

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: abgalloway
  • December 1, 2011
  • 03:28 AM

Can you help me?

My symptoms: The last week of August I began getting odd symptoms. I had an upset stomach with mild nausea. I had shooting and achey pains all over, but they are mainly concentrated in my upper body like my chest, arms, and abdomen. I have a history of migraines, but I got a new headache that is localized to my temples. I developed fatigue that doesn't get better with rest, and short term memory loss. My husband would remind me of something like him playing with the cat the night before, and it would take me over 30 minutes before I can recall a snippet of that. My menstural cycle also became later, and I'm not bleeding while sleeping at all which is really odd. In September I developed unexplained, low grade fevers, and sometimes I would get shakey and overly anxious for no reason. I developed shortness of breath with physical activities that used to be, and shouldn't be a problem... like walking up stairs. I became thirsty quite often- I used to drink 3 bottles of water or so on days I worked out, and maybe 1 on days I didn't. Now I haven't worked out since I became sick because of the pain and fatigue and I drink 3 or 4 bottles a day. My pulse rate increases to over 100 sometimes, and sometimes my blood pressure raises for unknown reasons (at least to me). I also developed increased sensitivity to cold and touch. I don't like anyone to touch my skin now just because a poke hurts, and laying my forearm on a cold desk hurts as well. In October, my muscles became stiffer, and I had increased neck and back pain along with increased joint popping. Then, I developed blurred vision. I don't know then whether it was in one or both eyes, but now I have discovered it's just in my right eye. I noticed this because one night I was in a lot of pain, and had a headache at my right temple that was also behind my right eye. I felt a 'pop' and the next morning my right eyelid was drooping. It's still drooping now in late November. This causes my pupils to be different sizes, and now my night vision isn't good at all with the blurriness. I also have a dull ache frequently behind my eyes, but it could be because I haven't gotten to my eye doctor for a new prescription now that my right eye vision has changed. I also noticed in October hand pain and stiffness, as well as an overwhelming lack of motivation. Many times I can't say anything to myself to get me out of bed, no matter what important thing I have to do or person I have to meet with. In November I noticed slightly more joint pain, and some facial pain in my cheeks. I've also noticed increased rib pain, but it could be the pressure of wearing my bra all day since touch bothers me so much. Just today I noticed a tender point on the right side of my sternum, that if I press is a 10 on a scale of 1-10.

To sum up: My worst symptoms are fatigue, muscle pains all over, and new headaches, but I have other random symptoms as well.

I've already been tested for : lupus, lyme disease, anemia, hypthyroidism, hypoglycemia, lead poisoning, gallstones, ms, and infections.

Tests performed: multiple blood and urine tests, 2 CT scans (one with contrast), chest x-ray, PFT, ultrasound, Hida Scan with contrast, Colonoscopy

Tests to be performed: 2 MRIs (one with contrast), EEG

So far every test has turned up negative. Most doctors have dismissed me as just stressed and that's why I'm experiencing all of this, but when I got sick I was as far from stressed as ever. Since becoming sick it's been very stressful, but that doesn't explain my initial symptoms, which are my worst (besides the eye thing maybe). My doctors really haven't given much, other than just saying everything on paper looks fine. Any ideas that anyone on here could give me?

Oh, and I'm a 21 year old female in college full time working part time, at a normal weight and height.

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3 Replies:

  • Hi, I wish I could offer advice. What I can do is to say I'm in the same situation. I've been tested for all of the same things (plus a few other things) and done all of those tests and was mostly dismissed as being stressed and sent to see a psychiatrist. He referred me to a Hematologist and Rheumatologist to check me better for auto-immune diseases. Have you been tested for Myasthenia Gravis? I'm doing a CT scan of my chest next week to check the status of the thymus gland (where MG starts). Although the doctors don't have any idea what could be wrong with me, they did give me Prednisone on the off chance it could help with my muscle weakness and within 5 days I had normal single vision (90% of the day). It's helped my eyelids to stay open more evenly as well and my leg muscles aren't giving out on me randomly anymore. Although I don't know what is causing all of these symptoms, I am finally getting back to a fairly normal life thanks to taking Prednisone every day. You might want to talk to your doctor about trying something similar. At least until a complete solution can be found. My doctors checked for: MS, Fourth Nerve Palsy/Lesions, and all of the things that show up on a CT scan and MRI of brain, Myasthenia Gravis, Lupus, lyme disease, anemia, hypothyroidism, hypoglycemia, lead poisoning, infections, and some other random, not connected thingsBest of luck!
    dogmum 2 Replies
    • December 2, 2011
    • 02:55 PM
    • 0
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  • Hi abgalloway, I'm learning to be an alternative healer and ran your case through my methodology. This could be way off, but what came up was Chromium poisoning from supplements. This is very little known and is a new one for me.It seems to fit the symptoms for sensitivity, breathing, skin, fatigue and depression, nerves, joints and eyes, mind, kidney/repro center, endocrine, stressed heart center (those go with toxic metals), and stomach area pain and sugar imbalance symptoms including thirst (those seem more specific to chromium's effect on digestion), among other things.If you have been taking say chromium picolinate, stopping it should reduce symptoms, but I think your body will need help to clear it. The detoxifier for this is a homeopathic that should work very well. It is not in the standard catalog and would have to be custom made. Let me know if you are interested in that.Regards, JohnJust my opinion. I'm not officially approved to diagnose or prescribe!
    Buck59 2 Replies
    • December 14, 2011
    • 09:45 PM
    • 0
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  • I'll bet your doctor has already checked this out, but it would be worth double-checking to make sure: some of your symptoms could be related to an overactive thyroid. Hyperthyroidism can cause many of the symptoms you describe and is also associated with a specific type of eye disease. If your TSH level has not been tested, I would urge your doctor to order a blood test.
    txpacotaco 3 Replies
    • December 17, 2011
    • 04:40 PM
    • 0
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