Discussions By Condition: I cannot get a diagnosis.

Sick For Almost Two Years

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • November 3, 2010
  • 04:47 AM


I just registered on this forum, so mods if this belongs somewhere else please move it.

On to my story,

Whatever I have started back in August of 2009 when I was about to turn 18. The first time I had this was by far the worse and it lasted about two to four weeks. My memory is very bad at the moment and I really do not remeber much besides the pain that I was in and what my parents have told me. My condition consisted of severe pain on both sides of my throat. My left side was much worse then my right. I could not swallow anything at the time without being in EXCRUCIATING PAIN. I also had very bad body aches and I felt like I had arthritis in all of my joints especially my knees. Although I was not tested for a fever every hour, I can assure you that I had one almost all the time. I was very confused and could not remember anything. My brain felt like it was about to explode and it felt like it my head was swelling. I had ulcers in my mouth and my tongue was always coated. I practically ate nothing through most of this ordeal. I also was very agitated and from what my parents tell me I was saying very odd things. I had chills, and night sweat all the time. Words cannot describe the type of pain that I was in. I felt like I wanted to die and typing this now I think to myself it could not have been that bad, but trust me it was BAD. My flem would either be brown or yellow or a mixture of both these colors. My breath was always hot and throughout the day my mouth became more of a cespool than it already was. I was fatigued all the time and I could not do any physical activities at all. Every part of my body was sore, some parts more than others. My Lymph nodes where very large/swollen as well as my glands and my tonsils. My parents finally got me to the doctor after a week and a half to two weeks and I was tested for both Strep and Mono which both came back negative. I believe I was put on Penicillin which did nothing for me. A few days after I finished the course of Penicillin, my parents sent me to another doctor. She took one look at my throat and said it looked HORRIBLE and she knew that I was in very bad pain. She put me on another Antibiotic which was Azithromycin(Z-Pack) sorry if the spelling is wrong. It consisted of three red pills and I was instructed to take one daily. She also gave me a prescription for vicodin to help with the pain. Im sure many of you on here know that vicodin is somewhat of a last resort for a pain killer and doctors are very hesitant to give prescriptions for it for various reasons, especially for a 17 year old kid. The Z pack and vicodin combo worked very well and I thought I was back to full strength as I felt great and was in no pain at all for a few weeks or so I thought. I had just graduated from high school and I played baseball and was on scholarship to play baseball at a college in Texas so I had to leave pretty much as soon as I started to feel some what normal. This brings me to my health problems while in college.

I lived in Florida but my college was in Houston, Texas. The first couple of weeks I felt somewhat normal but I still suffered from the pain in my knees. I am a catcher for those who know anything about baseball so I was squatting and putting pressure on my knees quite a bit which did not make my situation any better. It would take to long for me to tell you everything so I will try and summarize it. The first day we had conditioning was the first day I had skipped my classes and the first day I started to fell sick again, but not quite to the point as the first episode. Our conditioning consisted of a two mile timed run and a lot of other crazy stuff. Looking back on this situation I should have stepped up and let my coaches know what had happened to me but I didnt know what it was, so I just let it go and pushed through as many athletes stupidly do in many situations. The story of college pretty much goes as I would get sick almost every other week and my body always felt horrible, I felt so tight and achy always. I was also not sweating like I should have been and I could not focus on anything which caused baseball and my school work to be greatly affected. I was tired all the time, and my memory was very bad, and looking back at it I am sure my team mates and others knew something was going on but never really said anything. I became very depressed in my opinion and just wasted my first year of college. When I came home for Christmas break I got sick again, and it was almost full blown like the first time I got this sickness. I went back to college and the only thing that helped was pain killers and the only thing that helped was my body pains and mental struggles. Towards the end of my time in college, when baseball season was over, I started to feel OK but I am sure that was because of the pain killers I started taking again. When I got back home I stared to feel sick again.

I have been home since the summer and because of my health problems, my parents and I have decided it was best that I took online classes at home and not return to college. My time at home has also seen me very sick and KISSING my girlfriend seems to start these bouts of sickness. I usually have one week where i fell half way decent and when I start to feel better I see my girlfriend and the next 1-2 weeks I start to fell this sickness coming on again except these bouts are nowhere near what I felt that first time. I do get fevers, chills, loss of appetite, body aches, joint pain, and my mental sate is horrid. I get very irritable and have a very hard time remembering anything at all especially short term. I have loss about 15-20 pounds since I have been home. My parents sent me to a psychiatrist and I was put on adderall xr 30 mg and alprazolam .5 mg recently. This has definitely had some effect on my mental state getting better but I know I am not where I should be. Vicodin seems to be the only thing that helps with both the body aches and mental issues but I really do not like to take that anymore due to the side effects and the possibility of developing an addiction. I have been to the doctor any times throughout my time of being home and no one has been able to give me a solid answer as to what I have or cure me of this if it can be. I have had mouth ulcers and have also been getting cold sores. When I get the cold sores this usually means that I will be getting sick sometime soon. The only time I get these cold sores is when I kiss my girl friend but she has been tested for everything and my mom went with her and she has no STDS which is a relief. I have been tested for strep and have had blood tests and everything has come back normal or negative. I will now be getting my white blood cell count checked every week for the next five weeks due to my doctor checking to see if I have Bachettes Disease which is prevelant in my family on my moms side. I know I do not have this but now its to the point that we are checking for everything and anything. I have felt OK for the past three to four weeks and have had no flare ups. However I still get that pain on the left side of my throat when swallowing, my breath still gets hot, and my tongue still gets white throughout the day. My arm pits also stared to peel when I was in college and started agin recently and I am not sure what this is from either. I am still getting body aches as well from time to time and that feeling of tightness.

I am sorry for this long poorly written thing I just wrote, however I wanted to try and get everything in there that I have been suffering from, which I still did not accomplish. Any help would be much appreciated, as I just want to get back to being healthy and not being sick all the time. I would love to give you guys a small update on how I feel everyday in this thread but I am not sure if that is allowed.


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2 Replies:

  • Have you been checked for lupus?
    gr8tful 175 Replies
    • November 5, 2010
    • 03:22 AM
    • 0
    Flag this Response
  • Have you been checked for lupus?No I have not. I am getting my blood drawn every week for five weeks as requested by immunologist. Lately I have also been getting these red swollen bumps on both my face and now I have one on my shoulder. This is my third one thus far. I have also been constipated for quite awhile and have slime in my brown/clear slime in my stool. Lupus was one of the various other conditions my immunologist thinks I may have.
    Anonymous 42789 Replies
    • November 5, 2010
    • 04:30 AM
    • 0
    Flag this Response
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