Discussions By Condition: I cannot get a diagnosis.

Sick for a year...grasping at straws...HELP PLEASE

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: allie2304
  • December 4, 2008
  • 02:18 AM

I have been sick since October of 2007. It started with terrible diarrhea (10-20 times a day). I have been through every test known to man. In March 2008 the Dr. discovered that my cystic duct was completely obstructed and it was removed the next day. After that I only felt worse. I have had blood workups, upper GI, colonoscopies, gastric emptying studies, stool samples...you name it, I've had it done. Still NOTHING! Two months ago I was watching Mystery Diagnosis and saw a woman on there with similar symptoms, it turned out to be a B12 deficiency. My Dr. tested for that and my rate came back at a 199. She started me on injections and still nothing. I have severe abdominal pain (upper quad) between my ribs, horrible lower back and joint pain in my lower extremities and the diarrhea just won't stop. I am 30 years old and have 2 children that want their mom back. Does this sound like anything that anyone has ever had or heard of? Please help me get my life back.

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  • Have you had things like issues with lactose ruled out? My nanna after 35 yrs of issues.. diarhearea, stomach pain, joint pains etc.. only last year FINALLY found out she was lactose intollerant. (yeah one would of thought her specialists would of picked that one up but somehow it was missed. There is an actual test which can be done for this at the hospital.. she did it and ended up so so sick). Also make sure things like celiac disease have been ruled out.
    taniaaust1 2267 Replies
    • December 5, 2008
    • 00:56 AM
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  • The Docs have ruled out celiac, crohns, lactose intolerance, pretty much everything that exists. I have had MRI's, ultrasounds, CT's, you name it, I've had it done. I had a laparoscopy back in 2004 and it showed that I had alot of abdominal adhesions. The surgeon that removed my gallbladder also commented about the adhesions as well. Does anyone think that maybe that could be related to any of my symptoms? Within the last couple of months I have been experiencing night sweats occasionally, maybe twice a week. I am just throwing it all out there with the hopes that someone out there makes a connection for me. I will do some reading on Lyme's. That has never been mentioned to me before, however I do live in Michigan so it could be a possibility.Thanks so much for your suggestions.
    allie2304 2 Replies
    • December 5, 2008
    • 04:18 PM
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  • Several years ago I also had those symptoms which began about a month after I'd had to go to the E.R. b/c I was throwing up and having diahhrea along w/horrible stabbing pains in the gut that were... well, bad enough to go to the E.R. They never diagnosed it, but said maybe it was food poisoning. However a month later I had a weekend of diahhrea and extreme weakness, so weak I could barely stand and had to crawl to the bathroom. Then -all of a sudden - I was better. About a month went by and it hit me again, once again lasting for only a few days. But then it came back after only two weeks. Again, after a few days I felt fine. However, these spells began occurring closer together until instead of being a few weeks apart it was a week, then came closer & closer until after several months the sick spells never went away except for now and then for a day or two. As with your situation, the doctors did every test they could think of but could find nothing wrong with me. I lost so much weight I looked like a skeleton and was so weak my husband had to carry me into the doctors' offices. Finally, a friend told him to take me to her naturopath, which he did. By that time I was almost constantly bedridden. He continued taking me there for a few weeks with no good results. Then we were told of an M.D. in the area who believed in naturopathy over drugs, so he took me to him. His name was Dr. Kim Webster, in the Portland, OR, area. He was also stumped, and even though he didn't normally believe in using drugs, he prescribed a strong antibiotic for me because he thought it might be some kind of systemic bacterial infection I had acquired after eating bad food. I was pretty skeptical about it, but by golly, it worked. I never got sick again after taking the antibiotic. (Sorry, I can't remember the name of it.) We know it wasn't just "all in my head" because I had lost something like 30 pounds, and until that time had been slightly overweight with zero will-power over food. Also, I myself knew how I felt, and could never have "imagined" myself into being unable to get out of bed. Whew, I never have written about that before and didn't realize how hard it would be or how long it would take to explain it. Since that time I've struggled to keep my weight up even though I've never had another spell like that again. Somehow it just changed my appetite for food, apparently forever My husband and I called it the "wasting disease". Whatever was wrong with me was never diagnosed. If they can't figure out what's wrong with you maybe they should try giving you an antibiotic to see if it helps. In any case, I know how you feel and how frustrating it is to not have a diagnosis. My prayers are with you in hopes of a complete recovery SOON.
    Anonymous 42789 Replies
    • December 6, 2008
    • 01:50 AM
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