I have been sick since I was about 21. Fevers (99-101),Fatigue, weakness, dizziness, rashes that sometimes look like strawberry colored birthmarks, sometimes they are huge hives or swollen squares that leave bruises, headaches, alopecia areata (where my hair fell out in a circle about the size of baseball- grew back, but now falling out all over), diarrhea/ constipation, heart palpitations, terrible periods,joint pain, jaw pain, muscle pain. It never ends. I have just completed another round of blood work- My white blood cells are low, my red blood cells are high, HCT is high, Albumin is high, Complement C4 is high and also something else is high it is called a c1Q binding assay says, "patient serum shows reactivity in the circulating immune complex inhibitory assay indicating the presense of aggregates of human IgG other than CIC's" Anyway, I have been passed from my internist to rheumatologist now to immunologist and no one has been able to give me any sort of DX. The internist gave me antibiotics which made my sore throat worse, the rheumatologist gave me some prednisone which made the itching and rash worse (I have no known allergies) and the Immunologist has been doing test after test to see if I am allergic to anything, but he has come up with nothing and ended up just giving me an injection of some cortisone, I think.
If anyone has been through any thing like this or knows anyone, please share!
Thanks so much!