Hello all - I have been sick since I was 12 years old. I was hospitalized for anemia for well over a month then, and it has plagued me since. Below is a run-down of the symptoms and when they started. I have been to cardiologists, neurologists, gastroenterologist, hematologists, oncologists, rheumatologists and dozens of gp's. My husband is active duty military, so we start over every six months!
1994-2010 - Anemia. IV iron monthly for about six months out of the year.
2006 and 2010 - Unexplained losses of conciousness. Followed by weeks of "fog" where I have no memory
2006, 2008, 2010 - sever lower left quadrant pain. Suspected kidney stones or ovarian cysts, but no confirmation through CAT scans or ultrasounds. The pain subsides after about two weeks.
2009-2010 - Constant headache. About a 2 or 3 on a 1-10 scale daily with days of 11 or higher. Topomax was given, but no relief.
2009-2010 - Heart palpitations (flutters). These are occasional, but worrisome. All cardiac tests came back normal.
2009-2010 - Debilitating fatigue. I am not able to even walk to our mailbox, or cook diner most nights. Sometimes I am too weak to feed myself.
2009-2010 - Feels like my insides are shaking, and my hands shake uncontrollably.
09/2010 - feeling of my legs falling asleep. Burning, tingling discomfort that comes and goes.
10/2010 - Sever leg cramps that wake me in the middle of the night screaming.
I have had a positive ANA (09/2010) but the titer was too low to diagnose Lupus or other diseases.
I have had numerous tests and my heart and brain are both functioning normally.
Does anyone have similar symptoms? If so, can you tell me where to go from here? I am currently trying to get a bone marrow aspiration and biopsy to rule out issues on that end...or finally diagnose the type of anemia I have. But, military healthcare is sometimes a headache in itself!
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