Discussions By Condition: I cannot get a diagnosis.

Sick and tired of being sick and tired

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: njmomto3
  • January 8, 2008
  • 03:12 AM

Please bear with me here, it's a long story. 10 weeks ago I started with a head cold right after the kids were also sick. A week later it dropped into my chest and my asthma kicked up a bit. I called the doctor who prescribed antibiotics. A week and a half later I was worse so I went in and was given a prednisone injection and oral prednisone and told that I had bronchitis. I had improvement after a couple of days on the prednisone but within a week my lungs felt full/gunky again and I was coughing a lot still. After another week I went back to the doctor who prescribed a different antibiotic and more oral prednisone along with adding an inhaled steroid (name escapes me) and told to resume taking the prevacid that I stopped taking six months before even though I am not having reflux symptoms any longer. Another week or so later and I was no better so I was referred to a lung specialist. It took a week or so to get in with him and I was put on one more round of oral prednisone to control the breathing issues in between. The specialist switched me to advair, put me on singulair, and told to keep taking the prevacid, and use Xoponex every 4 hours as needed. I was also given another injection of prednisone. I did get better again for a few days.

During this whole time I have been experiencing shortness of breath with talking or any minimal exertion (even walking to the bathroom). Frequent pain in chest at the bottom of my ribcage on both sides, fullness/heaviness in my lungs, more rapid breathing than normal, extreme extreme fatigue, muscle aches, insomnia. Just getting my 3 kids ready for school gets me to the point of collapse but then when I sit down I can't fall asleep. I have been running a low grade fever off and on for weeks (99 to 100 as high as 102 a couple of times).

I am very frustrated by this because I feel like the specialist isn't listening. They have done an Xray (normal) & CT of my chest (don't have results yet), blood test for a blood clot (normal), echocardiogram to check for pulminary hypertension (told negative by tech on Friday but no formal results yet). He now wants me to have a CT of my sinuses because I started having sinus symptoms on Friday, he had told me before it could be sinuses draining into lungs and irritating things. I have not had sinus symptoms since first week until last Friday. I really do not think that it is my asthma, I have never had more than a bit of wheezing when I exercise or if my allergies flare up. I am completely debilitated by what ever this is. At this point my biggest concerns are the shortness of breath and the extreme fatigue.

If you have any ideas please let me know.

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3 Replies:

  • Do you still have your tonsils?
    rad-skw 1605 Replies
    • January 9, 2008
    • 01:19 PM
    • 0
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  • I do have my tonsils. Why do you ask? Oh, and I just went to get the CT of my sinuses and picked up the Chest CT while I was there.. Normal.
    njmomto3 1 Replies
    • January 9, 2008
    • 02:31 PM
    • 0
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  • Glad to hear the chest CT is normal. That probably rules out cancer. My tumor was mediastinal (in the chest, behind the breastbone) and caused:- Chronic dry cough- Chronic fatigue (identical to what you describe)- Night sweats.If you are experiencing a lot of unusual sweating at night, tell your doctor and bring up the possibility of cancer, and re-do the CT scan and get a blood test and check for cancer that way. Early diagnosis is the key.
    Anonymous 42789 Replies
    • January 9, 2008
    • 05:18 PM
    • 0
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