Discussions By Condition: I cannot get a diagnosis.

Sick and Tired

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Delisha
  • September 22, 2008
  • 07:24 AM

Hi - I am a new member and hope that someone can help me with some suggestions. I have such a long list of symptoms, so please be patient. I have chronic fatigue, insomnia, no restorative sleep, muscle cramps, joint pain, puffy hands and feet, persistent and worsening dry cough, excessive weight gain, choking, breathlessness, chest pain, attacks of epigastric pain accompanied by severe vomiting and fever (which has necessitated trips to the ER). I have been referred to various consultants for some of these symptoms, but no one has ever look at the whole picture and I now believe that there is a connection. I have not really been well since I had a ruptured appendectomy resulting in peritonitis and pneumonia and a month long stay in hospital (2001). My weight has steadily increased since 2002, but at an alarmingly increased rate over the last year. I stopped smoking in September 2003 and at first thought my weight gain was due to that, but the rate at which it continues to escalate has me very worried as my diet does not account for it. (I have gained approx 60 pounds in 5 years and 40 of those in the last 2 years!) I had a partial thyroidectomy (because of a benign tumor) in 1979 but have always been told my thyroid levels are "normal". I presently have another lump on my thyroid which is scanned every 6 months and aspirated occasionally. They are reluctant to operate again and I am happy with that decision. I had an abdominal hysterectomy in April 2008 necessitated by fibroids. I have a hiatus hernia and acid reflux but have been told that this reflux is not the cause of my cough. I have chronic arthritis. I have done some research of my own and have suggested to my doctor that I may have hypothyroidism, hyperparathyroidism, ME or fibromyalgia. I went for blood tests on Friday and am awaiting results. I want someone to look at the "whole picture" rather than bits and pieces. Any suggestions/feedback would be most welcome.:)

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  • I have had both FM (fibromyaliga) and do have ME.. so will reply to your post and hopefully help you to be clearer about things.................... fibromyaliga ISNT a bogus diagnoses. It thou does sometimes appear with other conditions eg ME or on it's own, but is an issue in it's own right and it's own scienctific findings are now being found. (Blaze.. you really need to go and research the latest findings on FM before you go shooting your mouth off about it, they are finding certain abnormalities in FM patients now). I have chronic arthritis. Maybe a lot of your pain is coming from that??.. rather than something like FM. FM pain commonly flares from certain spots, (if affected by arthritis thou in that area.. i dont think one could at all say it was FM). FM is best diagnosed by FM trigger points and on having excessive pain in a certain number of these trigger points. FM shouldnt be a wastebasket diagnoses used just cause a doctor cant work out what is causing pain!!!... a proper examination using the FM trigger points to certain pressure, should be done (by someone who is familiar with FM). How Is Fibromyalgia Diagnosed? Fibromyalgia is difficult to diagnose because many of the symptoms mimic those of other disorders. The physician reviews the patient's medical history and makes a diagnosis of fibromyalgia based on a history of chronic widespread pain that persists for more than 3 months. The American College of Rheumatology (ACR) has developed criteria for fibromyalgia that physicians can use in diagnosing the disorder. According to ACR criteria, a person is considered to have fibromyalgia if he or she has widespread pain in combination with tenderness in at least 11 of 18 specific tender point sites. For location of the FM tender points http://www.immunesupport.com/fibromyalgia-tenderpoints.htm (as i said.. if you have arthritis in that place.. the pain needs to be put down then as due to possible arthritis.. not FM). I also note that you dont have other common things which go with FM.. yeah tiredness goes with it but many with FM also have other issues with it as well to which you havent listed eg IBS etc (I are not sure what percentage of ones with FM get the other common FM symptoms too..but i do know that most do.. and you just havent mentioned those things). From what you've said.. im doubtful you have FM (unless you have had the trigger points checked and meet that criteria..and dont have arthritis in those places)........................ From your symptoms thou.. ME/CFS would be more likely. ME symptoms can be very much like FM but ME has many extra symptoms which people with FM alone just dont have eg fever, vomiting, cough, puffy hands and feet dont happen with FM but commonly do with ME no restorative sleep, insomina Have you got a reason why you think this is happening??? is it due to waking up a lot during night due to pain?? If that is a no and you also dont have something like sleep apnea causing the symptom.. This symptom then would strongly point to ME. Does over exerting yourself make your condition worst??? or does exercise help it?? Do symptoms happen more post exertionally?? if the answer to those questions are yes... that points to ME.. if no.. it is then doubtful you have ME. If the answer in the above paragraph was a yes.. i then suggest you check out http://wwcoco.com/cfids/bernesx.html for a full list of ME symptoms. I have not really been well since I had a ruptured appendectomy resulting in peritonitis and pneumonia and a month long stay in hospital (2001). ME is often triggered by various things.. different assults on the body one could say. Surgery and viruses commonly can trigger ME. So that history points towards your problem maybe being ME. I hope my post has helped you to clear up some of your confusion. If you still think you may have ME.. i strongly suggest you then go and see someone who specialises in this condition.. as there are some common findings which can be found on tests in ME if the doctor knows what else to go looking for. (to help back up that it's probably ME). Also i think you should see another specialist over your thyriod stuff.. just in case it is causing your symptoms.
    taniaaust1 2267 Replies
    • September 23, 2008
    • 04:33 AM
    • 0
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  • If by "puffy hands" you mean swelling, I wonder if you have ever been looked at for hereditary angioedema. Your hands and gastric pain fit this. Try here: www.haea.org
    aquila 1263 Replies
    • September 23, 2008
    • 07:07 PM
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