Discussions By Condition: I cannot get a diagnosis.

Sick and apparently getting sicker, please help

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Mattingly
  • September 6, 2008
  • 05:39 AM

About a month and a half ago I was home alone when I began seeing little blobs floating across my vision. I thought I was insane, but about a half an hour later, my left foot, quickly followed by the whole leg, began going numb. I also started having serious word recall issues - I would begin sentences, and would not be able to finish them. I couldn't spell my own name, remember my mother or wife's name, etc. I was rushed to the hospital (where I was admitted), and while I was in the ambulance, the numbness began to fade. The recall issues lasted the remainder of the day, however, and during the night I developed a fever of 103 degrees. The doctors broke my fever with relative ease, and over the next several days I was given two CT scans and an MRI, plus an ultrasound of my heart. I was not, however, given a lumbar puncture, as the doctor in charge of that procedure was out (it was the weekend), and by the time he came back Monday, I was better and discharged. Although there was no definitive proof, I was diagnosed with having had encephilitis, which had cleared itself up on its own. Over the next few weeks, I felt fine but very edgy (I am extremely claustrophobic, and the closed MRI had left me with just terrifying memories). Everything appeared to be normal, when I had another, similar attack during a visit to my parent's house. This time I experience numbness alternately on both sides of the body, but the symptoms cleared up in a matter of hours. I have not had this problem since, and that was over a month ago. Two weeks ago, however, I began to feel slightly dizzy/lightheaded while in the car on the way home from my wife's parents' house. This feeling has been just about nonstop since, only going away when I sleep. Sometimes I feel slight pressure in my head (not a headache, just pressure), and I have also experienced bouts of fairly strong nausea, which usually causes me to throw up. At this point, I am completely freaked out. My symptoms aren't imagined, but I am well aware that I am focused on them and thinking about little else. I am extremely concerned that I might have some kind of rare, degenterative neurological disorder which is on the verge of robbing me of my sanity, followed by my life. My insurance expired a little over a week ago, and I cannot go to the doctor until it is renwed (which will not be for a week or so). My mother, who has been an RN for three decades, believes that a neurological disorder would likely not have been proceeded by those first, insidious attacks, but I am beginning to wonder if the two things are even linked at all. All I know is that I feel absolutely wretched, appear to not be getting better (and may be getting worse) and am terrified about what's coming next. Am I just going out of my mind, or does what I am enduring sound at all familiar to anyone? Any and all help is much appreciated. *Edit* I tried to put this into paragraphs, but for some reason it's been turned into a massive wall of text.

Reply Flag this Discussion

4 Replies:

  • sounds weird but a central nervious system disorder CAN cause some weird symptoms.. i know this as i have a strange central nervous system issue (sympathetic nervous system dysfunction) myself caused by another illness i have. Also psychological issues can cause weird symptoms (except the fever of cause). Im saying that as my father has mental condition (some doctors have said schizophrenia)..and he feels strange numbness and head pressure, dizziness, nausea etc at times when he's having like bouts of his schizophrenia. To him the symptoms are very very real but when on his psych drugs.. he doesnt get them. back to the issue of maybe a possible neuro issue... Two weeks ago, however, I began to feel slightly dizzy/lightheaded while in the car on the way home from my wife's parents' house. This feeling has been just about nonstop since, only going away when I sleep. Sometimes I feel slight pressure in my head (not a headache, just pressure), and I have also experienced bouts of fairly strong nausea, which usually causes me to throw up. At this point, I am completely freaked out. This thought is probably a long shot but when you say it goes away when you sleep.. is it the laying down flat which helps???? (postural change to not being upright). One condition which central nervous system disorders may cause is issues with "orthostatic intollerance" (there are several different conditions which come under this eg POTS)... orthostatic intolerance can cause dizziness, nausea, head pressure (i get all those symptoms with it) but the issues get better when laying down. (with orthostatic intolerance..issues with the heart rate and blood pressure may be happening with being upright and on changing posture and these cause symptoms). Most doctors dont have a clue when it comes to Orthostatic intolerance issues. i suggest you check out http://en.wikipedia.org/wiki/Orthostatic_intolerance You may have some damage to your system which has given you this....
    taniaaust1 2267 Replies
    • September 6, 2008
    • 11:47 AM
    • 0
    Flag this Response
  • A second opinion from a neurologist might be a good idea, i'll search your symptoms and see if anything pops up.
    qwertyuiop123 453 Replies
    • September 8, 2008
    • 11:23 PM
    • 0
    Flag this Response
  • With the exception of the fever, I have had very similar symptoms with migraines including numbness in my arms & hands, nausea, bells palsy like symptoms in my face, occasional "blobs" in vision (although rarely... lots of migraine sufferers experience all kinds of visual symptoms regularly). I think a good neurologist is your best bet. Not only do they treat migraines but can determine if you have another type of neurological condition. Sometimes I get these migraine related symptoms without the severe pain of a migraine but I have been able to establish a correlation. Feel better!
    gofigure 2 Replies
    • September 9, 2008
    • 00:31 AM
    • 0
    Flag this Response
  • How old are you?what if any is your previous medical history?One thing I can think of that can cause all those symptoms is vascular insuffientcy which is can be caused by spasm of a artery.and a mild vasodiolater or a nitrate imdur,nitro,norvasc will help calm these down.I would not rule out a mild stroke warning as you said both sides of you were numb at different times,ask your MD to check you protime/inr and check for clotting disorders like factor v,lupus you could have tiny embolist roaming around and causing all your symptoms.If you think this might be your problem then under the advice of your MD start asprin thearapy (81mg)once a day and try to avoid vitamin k foods (any green foods)as these will thicken the blood
    simidrm 36 Replies
    • September 9, 2008
    • 03:44 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.