Discussions By Condition: I cannot get a diagnosis.

Sick 20 Month Old

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Anonymous
  • January 11, 2008
  • 11:11 PM

My son is 20 months old and is constantly sick. He was Bfed (at least partially) until 15 months and since then we have been on a rapid downhill slide. He became anemic at around 15 months, but wasn't diagnosed until he was 18 months at which time he had a hemoglobin count of 4. After a nice two day stay in the hospital and a blood transfusion, it was up to 9. After six weeks of iron replacement therapy, his hemoglobins were up to 11 (normal), finally. However the docs had him on an overdose of iron for the first two weeks (6 mg) versus (2 mg), until someone finally listened to me about the dosage. We don't get tested again until March to make sure is hemoglobins stay up. He was diagnosed with iron-deficient anemia due to drinking too much milk, poor diet, and because of his size. (80% on height and weight)

Also at 18 months I noticed that he was shaking in the morning and after nap. Finally took him to the doctor at 20 months and he was diagnosed with hypoglycemia. Again due to poor diet. Feeding him French Toast Sticks immediately before bed seems to keep the sugar level up to reasonable levels.

He has also been sick constantly since 15 months. I can only recall two weeks (no not all at once) that he was healthy. When he is healthy he is a funny, outgoing, sweet little guy. But, unfortunately, I typically only see the whiny, fussy, irritable beast. Still love him to death though. He has had numerous colds, walking pnemonia, RSV, etc, etc. He has also had chronic diahrrea for the last 5 months or so, ranging from mild to severe. He has also had excema since birth but recently the flair ups have been unbelievable and unexplainable (by the docs). They just give me a stronger dose of steriods and zyrtec for him.

He eats about every two hours and is a great eater. Usually for the first couple days of a sickness he doesn't want to eat, but then he makes up for it. He eats anything and everything, fruits, veggies, breads, cupcakes. So how can he be anemic and hypoglycemic due to poor diet?

He also doesn't talk. He used to say choo-choo (for train) all the time, now it's like he doesn't remember how. He used to say mama, dada, gab (his sister), nana, quack quack (duck), moo (cow), woof (dog), and meow (cat). Now nothing, just grunts.

He has grown 1/2 inch in 9 months and has lost 3 pounds. I know that this is the timeframe where his genetics will catch up and his growth will slow, but going from off the charts at 6 months for height and weight, to (hopefully) 50 percentile for height and weight for his 2 year seems a bit extreme.

Everytime I talk to the docs the look at me like I am stupid and say if he eats better then we won't relapse...some kids just get sick more than others...his growth is normal...some kids talk late...

Please help

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8 Replies:

  • Has anyone mentioned celiac disease? He may be allergic to gluten found in wheat, rye, & barley. If he does have it, *don't* try to manage it on your own by eliminating breads & cereals. Gluten is found in all kinds of things, even candies, toothpaste and cosmetic products.
    aquila 1263 Replies
    • January 14, 2008
    • 02:04 PM
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  • could be so totally due to allergies to food...have him tested for food allergies...study up on nutrition..you have a great resource, the Internet..what about pets in the home? Have him tested for cat/dog allergies, mold, dust, trees, etc..
    Monsterlove 2921 Replies
    • January 14, 2008
    • 09:16 PM
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  • could be so totally due to allergies to food...have him tested for food allergies...study up on nutrition..you have a great resource, the Internet..what about pets in the home? Have him tested for cat/dog allergies, mold, dust, trees, etc.. Your poor child! I am so sorry but PLEASE consider a more holistic approach to treating your son's problems. I agree with MonsterLove that allergies or food intolerances are playing a big part in this - dairy especially, but others may include, soy, oats, etc... Steroids destroy the immune system!!!! Please don't do this any more for he probably has a ravaged immune system. Please get him on a good quality children's chewable PROBIOTIC - I use Renew Life's FloraBear for kids and my kids seem to like it. A PROBIOTIC will help rebuild his immune system, and is very safe and helpful. What foods do you give him on a daily basis? What does he drink on a daily basis - this can be helpful in figuring out food intolerances. The foods he loves the most may very well be the ones causing him trouble. The reason he is eating so much could be he is having malabsorption problems - again, food intolerances can cause this. I also agree that celiac may be a possibility. Western MD's have nearly zero training on nutrition and food based intolerances. Please research this and try to find a naturopath, homeopath, chiropractor, NAET(Nambudripad Allergy Elimination Techniques) or Oriental medical practitioner who has experience in treating children. These modalities may really make a difference in your child! Best wishesDOM, (mother of two)
    acuann 3080 Replies
    • January 14, 2008
    • 09:39 PM
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  • I was concerned when I read about the neurological symptoms (shaking) that your son has. As a nutritionist, those symptoms sound like B12 anemia rather than iron deficiency anemia. This can cause serious, long lasting damage to the nervous system and often is undiagnosed or "hidden" by the appearance of low iron count. Make sure your doctor actually looked at the blood under a microscope, as this is the only way to differentiate between the two types of anemia. Also, I have a son the same age (21 months) who had severe eczema that has improved by identifying his allergies to wheat, dairy, and eggs. Allergy testing isn't very accurate before 2 years of age, so in the meantime, I would encourage you to start by eliminating the most common allergens from his diet and see if his symptoms improve. Good for you for continuing to search for answers! Good luck!
    Anonymous 42789 Replies
    • January 15, 2008
    • 00:38 AM
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  • I was concerned when I read about the neurological symptoms (shaking) that your son has. As a nutritionist, those symptoms sound like B12 anemia rather than iron deficiency anemia. This can cause serious, long lasting damage to the nervous system and often is undiagnosed or "hidden" by the appearance of low iron count. Make sure your doctor actually looked at the blood under a microscope, as this is the only way to differentiate between the two types of anemia. Also, I have a son the same age (21 months) who had severe eczema that has improved by identifying his allergies to wheat, dairy, and eggs. Allergy testing isn't very accurate before 2 years of age, so in the meantime, I would encourage you to start by eliminating the most common allergens from his diet and see if his symptoms improve. Good for you for continuing to search for answers! Good luck! Yes, very good point on B12 deficiency - this is very important and often misdiagnosed! And you are correct about allergy testing, only that I find it inaccurate in adults as well. NAET is the treatment of choice that can help reverse a food/chemical allergy. DOM
    acuann 3080 Replies
    • January 15, 2008
    • 05:20 AM
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  • I now have a seemingly healthy and very happy 2 1/2 little boy!! After switching pediatricians multiple times, one finally listened!! D has eosinophilic gastroenteritis, which caused his anemia. When he was scoped he was clear, but luckily they did a biopsy and that showed it. Thanks to the person who suggested allergy testing. D's also allergic to egg, oat, and peanut. We figured out egg was causing the flair-ups of the eosinophilic gastroenteritis. Considering french toast WAS D's favorite meal...made sense he was always sick. D still has excema, but it is not nearly as severe, we've cut back to hydrocortizone once every other day to try to help control it, but too much and his hypoglycemia (which causes the severe shaking) flairs. During all of the testing, we also found out D is developing hypothyroidism, so he's on a small dose of synthyroid to keep it regulated. He is still speech delayed and may not catch up for a couple of years, but we just keep working with him, he's already made leaps and bounds and I am just thankful for that! Just as a side note, one of D's many docs thinks that the eosinophilic gastroenteritis was caused by the DTaP shot, which D is allergic to as well...Hope this can help someone else! I can't thank everyone enough for their suggestions! It is such a relief to have my happy go lucky baby back!
    Anonymous 42789 Replies
    • December 30, 2008
    • 06:43 PM
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  • great to hear that his problems are solved :)
    taniaaust1 2267 Replies
    • December 31, 2008
    • 05:37 PM
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  • Yes -glad you found some answers to your son's problems! Please research NAET - Nambudripad Allergy Elimination Techniques. NAET can help reverse and correct his allergies. It is noninvasive and works amazingly well. Best wishesDOM
    acuann 3080 Replies
    • December 31, 2008
    • 08:42 PM
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