Discussions By Condition: I cannot get a diagnosis.

Severe Vitamin D Deficiency

Posted In: I cannot get a diagnosis. 19 Replies
  • Posted By: karate1
  • December 18, 2008
  • 10:06 PM

I was recently dx with a severe Vitamin D deficiency. My level was 9 (norm is 50-100). My doctor prescribed 50,000 units three times a week for 12 weeks. Is this normal? What causes the level to drop that low? I have been feeling poorly lately and wonder if that has anything to do with it.

Reply Flag this Discussion

19 Replies:

  • Primarily we get vitamin D from having our skin exposed to sunlight. Sunscreen prevents this. Vitamin D supplementation is good especially this time of the year. Make sure of the form, as D3 is superior to D2, as it is the same form that is produced naturally when our skin is exposed to the sun. If it is D2 you may want to get yourself the D3 form elsewhere. 50,000 IU of D2 is roughly equivalent to taking 5,000 to 15,000 IU of D3. 2,000 to 10,000 IU D3 per day is a safe maintenence range. Doses of 20,000 and above may be toxic when taken long term.
    Anonymous 42789 Replies
    • December 20, 2008
    • 07:17 AM
    • 0
    Flag this Response
  • I took a look at the prescription and it is 50,000 units of D3 three days a week for 12 weeks. Is that alot?
    karate1 3 Replies
    • December 21, 2008
    • 03:37 PM
    • 0
    Flag this Response
  • That should be okay if taken 3 days a week. Toxicity can occur at 40,000 IU per day when taken for months, but you'll be taking about half that. After the 12 weeks you probably will want to drop your daily intake to 10,000 IU or less.
    Anonymous 42789 Replies
    • December 22, 2008
    • 02:11 AM
    • 0
    Flag this Response
  • Hi Karetel,i have same problem you do ,y docter checked my vit D level it was an 8 unreal and hois nurse called said she called drug store and he wants me to take vit d 1.25 mg says on bottle once a week for 12 weeks well that was dec 8 th still i'm terrified to take it i have been searching internet i;m so tired and scaredparanoid about this dose ,and like you i am wondering how this is so low what causes it .....i just started drinking 2% milk i never drink milk eat meat never get sun i fear wgat tell you about sun now ,saying no sunscreen if want get good dose from uv rays ..well i have see my md face to face i just can't take being this scared i dread this dose ,did you take it yet if you did can you please let me know how you felt does your bottle say what mine does....on my side effect paper it says dristol 1.25 i'm so confused i hope you get some answers also its on my mind every waking hour and at bedtime worrying what to do thank you........mady
    Anonymous 42789 Replies
    • December 28, 2008
    • 02:44 AM
    • 0
    Flag this Response
  • I don't really see the need to take more than 10,000 IU a day, so take what you feel comfortable with. 2,000 IU a day can help; albeit not as much. When taking large doses of vitamin D it is important to have calcium levels checked regularly because D regulates this. Taking somewhere between 2,000 and 10,000 per day is probably best.Getting your levels into a normal range should help you to feel much better.
    Anonymous 42789 Replies
    • January 8, 2009
    • 05:13 AM
    • 0
    Flag this Response
  • Thank you Aplus for the response.....i know my ''calcium'' is 9.3 on my vitamin D bottle it says 'vit D 1.25 mg on side effects paper says dristol maximun D 3 ...how does this all come out to 50,000 i don't understand that its all so new to me.....i have read some negative things others experienced with large dose ,some positive.......well i see my dr next week i know he will be upset that i didn't take vit d yet ,i want so much for him start me off with something less i know my D level is low i have a horrible phobia taking something new he needs to try work with me on this ,their has be a way without that 50,000 whatever my pill means .....i call pharmacies in beginning either busy give question with a question ,i'm exhausted over all stress now that i read up on why we need vit d than i come across deficency can cause death heart etc omg i thought only good bones i just can't take fear ,want to do right thing so i'm hoping i get it in my body a safe way ...i',m vegetarian and also haven't been eating right for years and have hairloss ,i wonder if this can also be why d is low thanks......mady
    Anonymous 42789 Replies
    • January 8, 2009
    • 04:17 PM
    • 0
    Flag this Response
  • i recently was diagnosed with vitamin d deficiency, my levels were not extremely low but were just below the normal range i think from memory mine was 45. my doctor has perscribed 50,000units to be taken once a month for 3 months. is this normal to take it only once a month?
    porcelain 36 Replies
    • January 15, 2009
    • 07:02 AM
    • 0
    Flag this Response
  • I just wanted to say i would be happy to have a vit d level of 45 thats great ,geez i can't believe you would still need 50,000,.....i'm not sure if normal once a month ,sounds like your willing take that dose i wish i was i'm still trying take it my level real low good luck..
    Anonymous 42789 Replies
    • January 15, 2009
    • 02:30 PM
    • 0
    Flag this Response
  • my doctor looked at me and said she wanted to test me for v-d deficiency and sure enough i was in the low to mod range and prescribed 50,000i.u.once a week for 4 weeks and then retest.i did not think any thing was wrong and what are the symptoms,i did not notice anything!i nam diabetic but is that a contributing factor?
    Anonymous 42789 Replies
    • January 16, 2009
    • 07:51 PM
    • 0
    Flag this Response
  • I had severe vitamin D deficiency. I took 50, 000 i.u 3 times a week for 3 months and was rechecked and had to continue another round. I then was put on a maintainence dose of D3=1000 i.u. a week for month. We thought that cleaned up the problem but low and behold, I now have to do D3= 2000 i.u. I urge you also to have bone density scans as well. My bones are falling apart. Got my first fracture ever on my big toe and it keeps rebreaking all by itself without stress. I had severe restless leg syndrome, it looked like seizures at first ,for which they told me I was nuts but it turns out I wasn't nuts at all. It was the severe deficiency manifesting itself in a super severe restless whole body deal. I myself have recently included taking a balanced calcium citrate(1000mg) ( my body hates calcium carbonate-Tums) blended with D3 400 i.u. and magnesium 500mg (mag oxide and mag citrate). And I still take another D3 2000 IU maintainance once a week! Have your parathyroids checked out, and also find out if there is a history of kidney disease in your family! Watch for diabetes and also neuropathy(nerve pain and destruction in your extremities). My oldest son died of end stage chronic renal failure and no one knew! He had many of the complaints I have, but hated doctors. Also the blood likes to maintain a certain calcium level so it will leech it from your bones, and also your teeth, long before lower the blood levels. Changes in your teeth = they turn translucent at the top and at the gum line there is a white ring around each tooth. It's not plaque! And scratching this stuff off will expose the soft insides of the tooth, then it'll decay rapidly in hours to days. My doctor wasn't in and her sub told me they wouldn't do anything for me until I had a fracture. Like wow can't we work on this LONG before going there??? I'd suggest taking the calcium magnesium D3 supplements especially if you are female! Pregnancy, nursing (which is the best health for your infant) , aging and underlying renal disease can sap your supplies.You'll absorb the best during pregnancy and nursing. If you have had gastric bypass surgery (which is on the upswing in this nation) you might even need higher doses due to malabsorption. If you have restless leg syndrome along with D3 deficiency, and it doesn't correct ask your doctor (nicely) if he/she would run a ferritin level (iron), especially if you are craving acidic foods like pickles and olives. These cravings tend to be from: acid aids in iron absorption. I have to keep my ferritin levels slightly above normal to help for that. If you need magnsium you might crave chocolate and legumes ( bean type food). The cravings go away when the deficiency is fixed! The restless leg from iron deficiency feels different from the restless leg syndrome of calcium (with D3) deficiency. The calcium deficiency type is more severe and painful like cats clawing inside the muscles, or your mucles have turned to worms that are squirming vigorously. Lots of toe twitches too. Even my arms were twitching, and I watched it all just freaking out. (ever watch Philadelphia experiment?) I found making sure to take at least one calcium magnesium D3 tablet or 2 even at bedtime is awesome prevention. The iron deficiency restless leg syndrome feels more like an acute twitching and a "I just have to move my legs" feeling. Both are nasty to experience. The twitching in calcium deficiency with D3 deficiency is due to: calcium is released when the muscles fire and the body's homeostatic measures (that "keeping the body functioning" mechanism) borrows some of that calcium for the blood. It keeps the muscles firing so there is sufficient calcium for life functions like your heart beat etc. When it finds it too hard to get enough calcium first your perfect teeth will go and then your bones. The nerve pain is awful. Just remember the blood level really isn't the first sign of trouble because your body has been stealing it from other sources to make it up, and will do so for many years before you get a fracture. Serial bone scans are always a good idea. If you ever notice you have facial drooping on one side of your face you may have what is called Bell's Palsy. Most docs shrug their shoulder at it but, if treated early ... you can actually watch it reverse itself in a mirror! I have to do B12 injections for that. My mother has perniscious anemia and I also inherited the trait. Some vegetarians will have a problem because of diet, for them oral supplements should help. There are the sublingual dots (under the tongue)that are easy to take but I would have to take half a bottle to absorb enough, so I just do the injections twice a month because it's cheaper for me (most people only once a month). I also recommend folic acid with the B12 because they work hand in hand with iron to make healthy red blood cells. I found not having enough B12 increases the severity of restless leg syndrome in iron deficiency. I would warn against not taking D3 when physician recommend (supported with empirical evidence of lab work). You'll lose your teeth and bones and become calcium deficient in the mean time. Some docs worry about too much calcium with initial large doses of D3 but my labs showed nothing of the sort. My bones ate it up right away and the blood levels were okay. So big boosts in D3 at first is appropriate, but people have to follow up with their docs for serial lab work to find their body's individual needs. If your pharmacy only has D2(green gel caps), refuse it and buy from vitacost online (or your preference) who supplies neutraceuticals to pharmacies and also sell to the public. Be sure to take the equivalent prescribed dose if you buy over the counter. Get the better body utilized D3! I have found with most folks, if there is one nutritional deficiency there is bound to be another. I wish modern medicine worked more at prevention rather than watch us get sicker and then decide to treat. God made us each unique individuals, and some bodies just need a little more TLC. Take care of yours, live long and prosper!
    Anonymous 42789 Replies Flag this Response
  • I just got a letter in the mail from my doctor that my vitamin D was low as well. I was an 11. I got a prescription I have to take Mon-Fri once daily. It's 50,000 per pill.
    Anonymous 42789 Replies Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • my doctor looked at me and said she wanted to test me for v-d deficiency and sure enough i was in the low to mod range and prescribed 50,000i.u.once a week for 4 weeks and then retest.i did not think any thing was wrong and what are the symptoms,i did not notice anything!i nam diabetic but is that a contributing factor?I just found out that I am very low on vitamin D and my Dr also put me on 50,000 1 pill a week for only 6 wks. I also am to take 2,000 mg D 3 2xdaliy until I go back. I also found out that my sugar was high. My Dr gave me a list of foods on the glycemic index and believe it or not I have lost 5lbs in a week. So brovo to my Dr. I was scared to take any new meds also but sometimes you have to do as told and keep of the internet on reading about illness. It will only make things worse. Just go with what Dr says, you will know in plenty of time if it is to much D3 for you. Hang in there and good luck hope this helped just a little.
    Anonymous 42789 Replies
    • October 21, 2009
    • 02:45 PM
    • 0
    Flag this Response
  • my doctor looked at me and said she wanted to test me for v-d deficiency and sure enough i was in the low to mod range and prescribed 50,000i.u.once a week for 4 weeks and then retest.i did not think any thing was wrong and what are the symptoms,i did not notice anything!i nam diabetic but is that a contributing factor?study that appeared in Rheumatology shows that 62 of 75 fibromyalgia study participants were low in vitamin D. The subjects who were low in vitamin D reported more pain, depression, and fatigue.http://www.vitaminddeficiencysymptomsguide.com/Take care people
    Anonymous 42789 Replies Flag this Response
  • Hi all,I was diagnosed with coeliacs disease in Feb 2010. However I also have ME, Fibromyalgia and asthma.Prior to coeliac diagnosis I was placed on Calcichew-D3 and iron supplements. This was in October 2009. I have been on this ever since and the doses have been increased.Blood work done recently showed Ferritin 7 and Vitamin D at 14.8. Though I am not iron deficiency anemic yeet it has lowered again.I am currently having palpitations, black dots in front of the eyes as if i'm going to pass out, aching jaw & throat, headaches and heavy feeling limbs. I have also had restless legs syndrome but at the moment I just feel like I need to stretch them but have to stop due to pain. To be completely honest I feel dreadful and have had to stay off work for the past two weeks.My GP said she was unhappy and has referred me to hematology. However, when I returned home from the docs I had a letter from my gastroenterologist saying I need to have iron transfusion. Has anyone else experienced this?I feel awful. My skins has gone awful (I normally have lovely clear skin), I am very pale and have sores in the corners of my mouth and my lips are dry and sore despite using Vaselline. I feel so poorly I partly think at least if I collapsed and went into hospital thing smay get sorted. I've had more bloods done today to check everything else - does anyone have any experience on this.P.S. I also have see through teeth and two have fallen out. They are operating on Tuesday to remove bits of teeth left behind but will they do this with my low iron etc?????Looking forward to your replies.Thanks x
    Anonymous 42789 Replies Flag this Response
  • Hii was diagnosed with vit d deficiency in 2008. My levels was 9. I am taking calciferol and b cal d. I checked my levels recently and it was 28. Is it still low. I have now stopped the medication as i was getting pains on either sides of my back and was told that i have stones(calcium stones) therefore i left it.Please advicethxval
    Anonymous 42789 Replies Flag this Response
  • Vitamin D is very important in women and deficiency of this vitamin can link the woman into many problems like breast cancer, bladder cancer, ovarian and colon cancer.Source : http://howshealth.com/vitamin-d-deficiency-symptoms/
    Anonymous 42789 Replies
    • October 11, 2010
    • 04:30 AM
    • 0
    Flag this Response
  • Put this on another post, but I think it'll help you feel better! I stumbled across this because I was just diagnosed with vitamin d defiecency. However, my levels are at 28.2 and I have all the symptoms that seem to be happening to others with levels alot lower than mine. I'm a 22 year old female and have been suffering from migraines and anxiety since 2008. The migraines progressively got more frequent, hence enhancing the anxiety. I was also ALWAYS tired, so they tested me for hypothyroidism which came back negative. In 2009, I started getting heart palpitations and asthma, which I never suffered from before. This is when I started worrying that something was much more wrong than anyone could figure out. I continued to have these symptoms, and started getting sick about every other month. Stomach viruses, flu, and sinus infections. I was back and forth from the doctor, with my anxiety building, because each time she would just tell me to take something o er the counter. This past August I had the worst migraine I had in my life. My boyfriend picked me up from work (I'm a hair stylist) and I slept until the next day. I woke up with flu like symptoms, aches and pains, fatigue, etc. I was due to go on vacation the week after and didn't want to be bothered by medicine, so I let it run it's course. Only, it didn't. On vacation, we rode everywhere on bikes. My knees KILLED me. It almost felt as though they were separating at the joints. I had a few anxiety attacks because like many of you thought, I thought I was slowly dying. I went to the doctors when I got back and by then it had started in my tricep muscles in my right arm. I told her everything that was happening and she passed it off as anxiety. She asked me if I wanted to go on antianxiety Medicine and I said no because I actually had anxiety over taking the medicine because I knew something was wrong. A few days later, I was home with my boyfriend and started getting short of breath. My arms went numb and my hands and finger hurt. I freaked out and called the doctor, went back that day, and she ended up prescribing a medicine to take for panic attacks and told me the numbing will go away. It persisted. The pains then started in my ankles and feet, as well as my neck, ribs and hips. I got sick yet again. By now it was October, so I went back. She checked all my papers because I had been there 6 times in that month and a half. She went all the way back to 2008, when my migraines started. She checked my joints by bending and asking if it hurt, and she continued to ask me questions. Along with these symptoms, I answered yes to hair loss, mouth ulcers, skin rashes, vision problems, and sweating. She asked if exercise bothered me, I told her as an avid exerciser, hadn't done it in months because it hurt so bad. She ordered a blood test testing my Blood levels, mono, RA, a virus, lyme, metobolic stuff, and "just to see" vitamin d. A few days later I got the call at work. "Good news! It's just vitamin.". It was a relief to know, and I do notice a slight difference for it's only been a few weeks. It's great to read things like this to see that I am normal and not crazy for thinking different things. Nice to know there are others going through this. I've been telling everyone about it and advising them to make sure their vitamin levels are sufficient because I would not wish this one anyone.
    Anonymous 42789 Replies
    • November 7, 2010
    • 05:41 PM
    • 0
    Flag this Response
  • I have been in an out of the doctors for nearly two years now.It started with so many things and so many issues that it really feels pointless to bring them ALL up. However I can tell you that near the end of 2009 I was diagnosed severely vitamin D deficient as well. I was prescribed 1000 IU a day by my internal medicine specialist who discovered the deficiency... I was on it for one month with no improvement so I he had me take it an additional month and retest... well in either case it wasn't helping as my levels hadn't went up at all... (I was taking 1000 IU D3 daily) and so he upped my dose to 3000 IU daily and I took it for another two months or so... in either case at my last testing my levels had improved just slightly and I was ordered to continue taking it...I however stopped out of fear because I know that when you supplement vitamin D it is important to supplement calcium and magnesium as well.It has been ages since all of that and my symptoms have all changed so much and I understand many of you "feeling like you're dying slowly" because that is my feelings exactly.I am stuck now at two possibilities for all my problems, I need to see a neurologist to rule out any neurological problems and beyond that... my only shot at getting well is hoping that this is all just nutritional deficiencies.I am fairly certain I am calcium deficient as over the last month I have experienced the most rapid tooth decay I have ever seen in my life. It went from perfectly fine tooth, to pin ****k sized cavity to gaping hole and nearly half a tooth gone now. Sadly it is happening in the same tooth on the other side now and it is now in the moderately large hole stage... I suffer from pretty serious anxiety and phobias and fears, I too am afraid of taking medicine and this fear has only grown in the passed few months. Also when this ALL began it was just fuzzy thinking, memory loss, de ja vu, time lapses and a severe lack of awareness but now I am recluse, I no longer leave my home and every single day is a struggle, every minute holds a new challenge just to hold myself together. On the physical side I have severe digestive issues, problems with intestinal blockages, cant digest dairy anymore, frequent stomach aches/burning and indigestion issues, severe cramps, constipation/just the opposite sometimes... it's really hard to know how I will feel from one day to the next.As a result I cant even make plans to do things with friends or family anymore, I miss all the holidays and have pretty much quit living.I am hanging all my hope basically on this being nutritional deficiencies.Did you guys know that a calcium deficiency can cause delusions? I had no idea that so many could cause such horrific things. There are multiple deficiencies that cause anxiety/nervousness, etc. and many other things. It would maybe do you guys some good to look into if you are lacking anything else. I'll post two good links I have found to some info on nutritional deficiencies.http://1stholistic.com/nutrition/hol_nutr-def-symptoms.htmhttp://www.sixwise.com/newsletters/06/03/01/nutritional_deficiency_symptoms__amp_recommendations_for_24_common_nutritional_deficiencies.htmGood luck everyone!
    Thursdaysmagic 22 Replies
    • January 4, 2011
    • 04:21 AM
    • 0
    Flag this Response
  • There is a simple way.Regularly spend time with your skin exposed to sunlight.
    Anonymous 42789 Replies
    • January 21, 2011
    • 06:20 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.