Discussions By Condition: I cannot get a diagnosis.

Severe Rash and Swelling - Help

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Vandertramp
  • April 2, 2008
  • 06:07 PM

About 6 weeks ago I started having what were bug bites on my hands and legs. The rash became more severe and soon wherever the rash was I also had severe swelling and muscle spasms in my legs and arms. The rash can appear anywhere (almost always on my hands and frequently on my entire torso). It does not appear to be allergies because it happens regardless of where I am, what I wear, and what I eat. Also antihistamines like benadryl do not seem to have an effect. My primary care physian put me on predisone which seems to stop the rash but as soon as I reduce my dose it comes back instantly. I was refered to a Rhumatologist, all test done by both my primary care physian and rhumatogist came back normal for any autoimmune disease (no high red blood count or inflamation markers). I also saw a dermatologist that said the rash looks like hives, but that could be a symptom of a multitude of things.

About a month before this started I had a failed pregnency (blighted ovum) followed with a D & C. My primary care physian said there is to long a gap between the surgery and the first symptoms for them to be related.

I am having side effects from the predisone and really want to get off it - but the swelling is so severe, I cannot function w/o it. Any ideas?

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  • I think you might look at some of the information on Lyme Disease on this site. The bug bites and your other symptoms are a possible fit. Here is a very long list of some of the symptoms:Musculoskeletal System Joint pain or swelling or tenderness Stiffness of joints, back, neck Muscle pain or cramps Bone painHeavy feeling in one or more limbsNeurological System Tremors or unexplained shaking (especially at night) Burning or stabbing sensations in the body Weakness or partial paralysis/stroke-like symptoms Pressure in the head Numbness in body, tingling, pinpricks Poor balance, dizziness, difficulty walking Increased motion sickness Lightheadedness, woozinessSudden jerking of fingers or entire limbs Pain in spinal columnGeneral Well-being Unexplained weight gain, loss Extreme fatigue Swollen glands Unexplained fevers (high or low grade) Continual infections (sinus, kidney, eye, etc.) Symptoms seem to change, come and go Pain migrates (moves) to different body parts Early on, experienced a "flu-like" illness, after which you have not since felt well. (If it was mild, you may not even recall this.)Eyes/Vision Double, blurry or dim vision Increased floating spots Pain in/behind eyes, or swelling around eyes Over sensitivity to light Flashing lightsOptic neuritis Ears/Hearing Decreased hearing in one or both ears Buzzing or clicking noises in ears Pain in ears or sound sensitivity Ringing in one or both earsPressure or feeling of fullness in ears Digestive and Excretory Systems Diarrhea, irritable bowel Constipation Irritable bladder (trouble starting, stopping)Frequent urination that is not normal Upset stomach (nausea or pain) Respiratory and Circulatory Systems Shortness of breath, cough Chest pain or rib soreness Night sweats or unexplained chills Heart palpitations or extra beats Heart blockage Psychological well-being Mood swings, irritability, rage Unusual depression Disorientation (getting or feeling lost) Feeling as if you are losing your mind Overemotional reactions, crying easily Too much sleep, or insomnia Difficulty falling or staying asleep Mental Capability Memory loss (short or long term) Confusion, difficulty in thinking, brain fogDifficulty with concentration or reading Going to the wrong place Speech difficulty (slurred or slow) Stammering speech Forgetting how to perform simple tasks Head, Face, Neck Unexplained hair loss Headaches, mild or severe Twitching of facial or other muscles Facial paralysis (Bell's Palsy) Tingling of nose, cheek or face Stiff or painful neck or creaking Jaw pain or stiffnessTMJ – sudden onset, jaw spasms Sore throat, hoarsenessLoss of sense of taste Difficulty swallowing, throat spasmsFemales only: Unexplained menstrual pain, irregularity Unexplained breast pain, dischargeMales only: Testicular or pelvic painLYME FACTS1. You do not have to recall a bite or have gotten the target rash to have Lyme disease. Less than 50% of people with Lyme do. 2. The tick that carries Lyme is as small as the period at the end of this sentence and their nymphs are nearly microscopic. Ticks are on the move at 35º and above. It’s a year-round problem.3. You do not have to experience ALL of these symptoms to have Lyme disease. It is also typical for many of these symptoms to come and go or occur once and never occur again.4. It is possible to have Lyme disease and have a negative test result. After Lyme bacteria enter your system, it tricks your immune system into no longer producing antibodies to fight it, hence, a negative test result. There are also other numerous factors that can affect the results. (Google: Lyme disease negative test results.)5. Lyme bacteria hide in the spinal fluid, bone, tendons, muscle and nerve fibers and tissues and in many cases are not “floating” around in the bloodstream where they can be picked up on a test. 6. It takes a LYME SPECIALIST to diagnose, test for and treat Lyme disease and any of its associated co-infections. To find one go to www.LymeNet.org. or www.ilads.org. Lyme specialists do not require a referral. NOTE: Everyone may have symptoms that appear on this list; however, it does not mean he/she has Lyme disease. If one has numerous symptoms on this list and no other explanation for them, consider Lyme.
    Beth56 272 Replies Flag this Response
  • This sounds a lot like hereditary angioedema. www.haea.org Disclaimer-- I have no relationship with this site. I'm just an HAE sufferer.
    aquila 1263 Replies Flag this Response
  • Has anyone sprayed an insecticide around your yard or building? If you live in an apartment, ask the manager when they last sprayed and see if there is a connection. There does seem to be a connection with your pregnancy. I wonder if some of the meds or anesthesia has caused this reaction. It's not poison oak or the doctor would have recognized that.Are you Rh negative? Get your thyroid and progesterone levels checked and get screened for diabetes and syphilis (secondary stage). http://www.healthopedia.com/miscarriage/treatment.htmlWhat are the side effects of the treatments?A D & C may cause bleeding, infection, and allergic reaction to anesthesia. Antibiotics and medicines to help the uterus contract may cause rash, upset stomach, abdominal cramps, and allergic reaction.
    Monsterlove 2921 Replies Flag this Response
  • Is it possible you have bed bugs or some other kind of infestation in your home....in Japan, where i am, we have dani....get in the tatami mats.... I recently saw a news report saying that bed bugs were on the rise....even being found in hotels now and i guess they spread easily from place to place....Joan
    Joan5555 316 Replies Flag this Response
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