Discussions By Condition: I cannot get a diagnosis.

Severe Pelvic Endometriosis Pain

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • October 13, 2010
  • 09:45 AM

My 19 year old daughter has been suffering with severe "stabbing" pelvic pain for 3 out of 4 weeks every month since the onset of her period at 12 years old. After finally being diagnosed with endometriosis, she underwent laparoscopic surgery (CO2 laser removal) to remove as much endo as possible. Now 1 1/2 years later, the severe pelvic pain started again in the summer months, just not as long lasting. Now the bleeding between periods has returned with the severe pelvic pain becoming more long lasting. When the severe bouts of pain occur, she becomes incapacitated and cannot attend classes. She missed many days, adding up to months of middle and high school due to the pain. It was extremely painful to sit still in a chair for long periods of time. Now she is in college and very worried that the pain is coming back so quickly and severely. Originally, the surgeon told us that it could return anywhere from 1 to 7 years. This is quick. She has taken birht control pills for years to lessen heavy bleeding during her period, as well as, to inhibit the growth of the endometriosis. Narcotics really didnt help with the pain and just put her to sleep. Anti-inflammatories have to be taken just before the onset of the bleeding and continued throughout the bleeding to inhibit cramping. That doesnt work because her pain is lasting 3 of 4 weeks per month, and her pelvic pain occurs even when she is not bleeding which is something that is often not included in write-ups on endo. If anyone can give us any new information as to pain relief ideas so that she may be able to hold off on more surgery, we would so appreciate it. Also, if anyone can recommend the type of specialist that helped them, or type of surgical tecnique or medication that worked for you, it would be so helpful. We live in Central New JErsey, but would be happy to travel for the right doctor with an answer. If you can recommend a doctor in this area of the area you live that helped you relieve your endo pain, that would be great. Thank you for your help!

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