Discussions By Condition: I cannot get a diagnosis.

Severe muscle pain and low appetite. 50 pound weightloss in 3 months.

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Arvespa83
  • November 15, 2012
  • 01:26 PM

Hello, my husband is a 38 year old very sick man. He was diagnosed diabetic 5 years ago and Graves' disease. A year ago he was diagnosed with Hashimoto's. around four months ago he started to have heel and foot pain. We got him new shoes and thought that would help. We were wrong. The pain started to make it unbearable to walk and soon he was walking very slow . Soon after the same pain was on his shins. It was very uncomfortable for him to walk. He started to have trouble sleeping and over the counter pain meds provided no relief. Soon after the pain went up to the back of his thighs. It was becoming disabling for him to walk. Saw the family doctor who said it was probsbly diabetic neuropathy. He prescribed gabapentin. It did nothing. By thing time it had been a month since it started. He began to lose his appetite and started to feel full fast. He started to lose weight. Over the next two months the pain got worse. He lost around 30 pounds in two months. He began to have these pains around the clock with worse "attacks" becoming more frequent. By the time three months came, he was practically bed bound. He needed help to walk and dress himself. He started using a cane. In the meantime we waited forever for a neurology appt. the neurologist did a spinal tap, nerve conduction test, MRI of his left thigh muscle and tons of bloodwork. It was all negative. Now it has been four months and my husband went from 180 to 132 in weight. The pain has gotten worse and now is in his back, chest and under left rib cage. He was hospitaluzed at a well known university hospital for nine days for malnutrition and dehydration. The did test after test, and found nothing. The pain was and is do so bad that he walks like an old man and has tremors when its severe. Sometimes he screams and cries when the attacks get real bad. The hospital told us to go home and maybe see a therapist. We were livid. We went to two different hospitals after that only to find nothing. This condition has destroyed my husband. He is in unbearable pain every day. He has pain in his back, left groin, left leg, headaches, left side of chest, left side of under ribcage that wraps around to his back. He gets tremors in his hands and has cold sweats. Shortness of breath upon exertion. Somebody please help us! There is more places we have been than what I put and all negative! I'm scared he's dying and I need ideas please!!!

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4 Replies:

  • Is there any chance you can get your husband to the Mayo Clinic in Rochester Minnesota? They have a program to deal with issues like this. Has your husband ever been exposed to tick bites?
    jeffrey.acree 1 Replies
    • November 21, 2012
    • 02:15 PM
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  • diabetes and graves disease together can be a lot of stress on the body. with graves disease hyperthroid which trows off the balance of the immune system then the diabetes throws off the endocrine system. and its hard to tell what disease is dominating over the other.
    paynet3 5 Replies
    • November 25, 2012
    • 01:03 PM
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  • with graves disease and diabetes it is hard to determine what disease is dominating over the other because your husband has a unbalance endocrine system and immune system.
    paynet3 5 Replies
    • November 25, 2012
    • 01:10 PM
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  • Your husband is showing symptoms associated with intermittent changes in blood flow to the various parts of his body. This is why the pain is more severe at times. In my opinion this tends to be associated with some form of inflammation of blood vessels aka a vasculitis. Look up the following term: Polyangiitis Obliterans. This could be diagnosed by taking a small biopsy of one of the affected blood vessels. I really, really hope this is what is going on so that your husband can get some relief. Good luck'
    Angelou 1 Replies
    • November 27, 2012
    • 01:35 PM
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